Save A Spoon

A girl battling #chronicillness & #chronicpain almost all my life: sharing support, tips & general life! #spoonie

[Save A Spoon @Spoonie_Life]

Do you use a heart rate monitor (HRM) to keep within your (often surprisingly low) energy limit: what you can “do” w/o major impact to your health? (An Alarm can go off) I Used 1 yrs ago-so helpful! I’m Trying it again. Just need a good watch, no body band. Suggestions? #spoonie

[Save A Spoon @Spoonie_Life]

@DafoeWhitney The outside world is an emotional rollercoaster. The highs of being part of the real world, seeing what a “normal” life is. Then the reality of coming back home where sure, there can be joy, but the isolation can be tough. Take your time to heal.

[Save A Spoon @Spoonie_Life]

Seizures were amongst the first symptoms reported in #MECFS cases yet now Drs act like you are nuts if you develop them since they often present as A-Typical. If YOU know something is wrong, you are right. Don’t be pushed around, help is out there #chronicillness

[Save A Spoon @Spoonie_Life]

Having this kind of day?! #spoonie #chronicillness

[Save A Spoon @Spoonie_Life]

#Chronicillness is lonely, it can lead to suicidal thoughts we are afraid to tell. The #Suicide Lifeline is always there. Call or now text!
(More helplines coming)

Please Call or text #988 - 24/7 -don’t suffer! Online: https://t.co/FDSMvy4Owa #spoonie #pain #help

[Save A Spoon @Spoonie_Life]

@arianek Please don’t feel stupid! We have all gone to extreme lengths to get help, it makes you a fighter, or dumb. There might be an automatic legal form you could find online & send them if you want that step but real legal battles are $$$, I learned the hard way. Good luck!

[Save A Spoon @Spoonie_Life]

@DiaryofaSickGrl I follow you!
I’m @spoonie_life if anyone wants to be friends. I became bedridden at 10, ( my whole life). I try to give any tips or support to our amazing community. I’ve been MIA (caught Long COVID) but I’m returning :) #spoonie

[Save A Spoon @Spoonie_Life]

#Spoonie Home Hack: Have problems w mold & mildew?
When you buy a new shower curtain, wash it with salt, it will keep it mold free! #chronicillness #ChronicPain

[Save A Spoon @Spoonie_Life]

Realities of a Doctors’s Appointment! …

[Save A Spoon @Spoonie_Life]

SECRET SUPPORT: It’s shocking patients w the ravages of
#ChronicIllness #SevereME
often deal w/ it in silence for fear getting help might be labeled “crazy”. If you need some support, PLEASE: TEXT - or CALL 988 for immediate private suicide crisis support

[Save A Spoon @Spoonie_Life]

#SpoonieSymptoms I have battled #nausea for yrs, this is the first OTC product that actually helps me. (There is no link,to help prove I’m NOT selling them). I just want to help others. #pain
Plz make sure these are ok for *you to take #chronicillness

[Save A Spoon @Spoonie_Life]

If this is how your day goes, you are not alone. #spoonie #ChronicPain

[Save A Spoon @Spoonie_Life]

Keeping track of medical information is tough when you have a cold, bug, etc What ABX did I take? When? How long? I never write it down, I’m miserable. Now I keep a tiny notebook in w my meds: I gently tear label off ABX bottle, etc & tape it in notebook #ChronicIllness #Spoonie

[Save A Spoon @Spoonie_Life]

The Best #spoonie Halloween costume they made!

[Save A Spoon @Spoonie_Life]

#spoonie Game Changer! Life comes w a lot of cords! Now imagine you have piles of medical devices too. Keeping track is confusing. 1) Put a label / tape on it. 2) Take white-out or nail polish, mark the *top of the cord, you will always know how it goes in! So Worth it!

[Save A Spoon @Spoonie_Life]

@DiaryofaSickGrl BRILLIANT question. The best thing anyone ever did for me was ASK how they could help me. I was so shocked, I didn't know what to say. They stayed w me during a scary bad day & did all my laundry while I slept... I wasn't alone. JUST KEEP BEING THERE.

[Save A Spoon @Spoonie_Life]

@DiaryofaSickGrl @tjozwickautism I have people pick up my meds, I think it depends on the place, meds, etc.

[Save A Spoon @Spoonie_Life]

Pt 1/1: Too sick to get to the dentist/ brush your teeth? "Oil Pulling" is an all natural TX that dates back thousands of yrs. It fights; cavities, tarter, bad breath, gum disease &swelling. Best of all it detoxifies the lymph & blood system! When you *first wake up... #spoonie

[Save A Spoon @Spoonie_Life]

Pt 2/2 - take 1 TBS of Coconut Oil (liquid is easier) & swish 5-20min. They suggest 20, but start w 5 & go slow. You may have some dry mouth, thirst, etc. at first. *Ask your Dr if this is okay for you. **Spit oil in trash! Don't clog your drain!** #spoonie #spoonieTip