Disabled; European; Embroiderer. 'I do not care what comes after; I have seen the dragons on the wind of morning'. ~ The Farthest Shore - Ursula Le Guin
A permanent accessible ramp has been installed inside @York_Minster , marking the largest architectural addition to the building in the last 200 years https://t.co/BHilh9EHDp
Today is #MEAwarenessDay
ME/CFS is often described as neglected and under-researched. That ignores the true history. George Monbiot and Carol Monaghan have described it as one of the greatest medical scandals of the 21st century. They’re right.
Great news from the UK🍾
£4.75 million to do whole-genome sequencing on 6000 DecodeME samples
https://t.co/hH3AMIT6Sv
(paywall)
Unfortunately it's not enough to analyse the full sample
People can find out more about SequenceME & donate here
https://t.co/QeWcyjdLMB
#MEcfs#PwME
It took three years to force @DWPgovuk to release this paper, which shows how its repeated errors and inaction are causing the lives of disabled claimants to 'spiral out of control'.
@CommonsWorkPen
https://t.co/ZTuHal6d31
Calling disabled people in #York - If you are a legacy benefit claimant transitioned onto UC facing a much higher council tax bill, and reduced council tax support, please contact us on [email protected]
An investigation from the Canary shows the DWP and Access to Work are categorising people with ME as having 'acquired neurodivergence'
https://t.co/P8Mi09ljfG
A year ago today since York protested Govt’s welfare reforms outside Council. They set up a Task& Finish group to ‘prepare for benefit cuts’. Well the first cut lands in 11 days yet I can find no evidence this group has met. So much for all the fine words of
solidarity.
@flickhwilliams@CityofYork So sorry this is happening again. One might hope that there was a procedure for noting access adjustments on an account to prevent this nonsense. 🙄