Victoria Parmelee

Restauranteur, mom and wife...living on the beach!

[Victoria Parmelee @Victoria_Parm]

This is the IV infusion of SGF (Stem cell growth factor) that is administered each day in between filtration. Tomorrow is PA number 2 which is where most of the patients really start to feel a difference. Met nurse Lyndsey today. She’s an inspiration!

[Victoria Parmelee @Victoria_Parm]

@lxub84387 So far there is a different feeling… feeling much better but waiting to see how results continue after a few more treatments.

[Victoria Parmelee @Victoria_Parm]

Very promising results but still more treatment needed. Next DFPP is Tuesday… tbc

[Victoria Parmelee @Victoria_Parm]

Update on Anthony’s treatment. He has had 3 SGFs (stem cell growth factor) and 1 DFPP (dual filtration plasma apheresis) so far. About 24 hrs after DFPP he started to feel an energy boost. Also lowering of inflammation/pain. He thinks the magic number will be 3 DFPP.

[Sassy Devil Dog 🔥 @VinoNStrosGal]

This post from April somehow finally made its way onto my For You page today.

Maybe the algorithm knew I needed to see it.

As many of you know, COVID completely changed my life.

After 4 infections I developed Long COVID, POTS/dysautonomia, MCAS, and my body went from being a former Division I athlete and Marine to fighting every single day just to reclaim pieces of who I was.

I’ve learned that Long COVID is not “just fatigue.”

It is vascular, neurological, immunological, and for so many people it has stolen careers, independence, dreams, and identities.

The McCairn Protocol being studied in Japan is fascinating.

It’s still experimental, and we absolutely need rigorous science and clinical trials, but seeing researchers chase answers involving microclots, inflammation, immune dysfunction, and possible repair pathways gives patients something incredibly important:

Hope.

Hope that we aren’t forgotten.

Hope that brilliant minds around the world are still searching.

Hope that one day millions of us won’t have to fight so hard just to feel normal again.

Science starts with questions.

And Long COVID patients have been asking the same one for years:

“What happened to our bodies, and how do we get them back?”

I pray we keep moving closer to that answer. 🙏

[Victoria Parmelee @Victoria_Parm]

@ThePEIMatrix @WellingBeau i’ll take my chances

[Victoria Parmelee @Victoria_Parm]

After 5 1/2 years of suffering and searching for a cure for LongCovid we are finally here! We met with Dr Kato and his team yesterday at Edogawa Hospital. Even through a translator you get a strong sense these people care deeply. First SGF treatment today! 🙏

[Victoria Parmelee @Victoria_Parm]

@GirlOnYourScre3 @RealPureLove i didn’t test my blood because i don’t have any issues but i am curious.

[Victoria Parmelee @Victoria_Parm]

@DIY_Tardis Yea so cool… that’s how it worked! (insert sarcasm)

[Victoria Parmelee @Victoria_Parm]

@NEPArepub @NancyMace they are very transparent with the costs and most people are doing 2 to 4 filtration treatments. The hospital charges approximately $6000 per filtration and $1000 for Stem cell growth factors. Also a small fee for a translator as well. (of course travel expenses)

[Victoria Parmelee @Victoria_Parm]

@DysautoDad Best wishes for Annelise! I believe this is the place to finally find healing!

[Victoria Parmelee @Victoria_Parm]

I will be documenting my husband Anthony’s treatment and progress here as he doesn’t do X

[Casey Sapp @CaseySapp]

I finished my third and final plasmapheresis session yesterday!

This hospital in Tokyo offers a special technique called “Dual Filtration Plasmapheresis” (DFPP/DFPA), which cleans the amyloid fibrin, microclots, misfolded proteins, and autoantibodies to levels as small as 5 microns while protecting your own albumin, hormones, clotting factors, and beneficial antibodies (eg the good stuff).

Compared to the plasma filtering and cleaning techniques in the U.S. — the two most popular being “Plasma Exchange” (TPE) and “EBOO” (Extracorporeal Blood Oxygenation and Ozonation)— the former throws out all the good stuff as much as the bad by extracting your plasma and replacing it with watered-down donor plasma (and in 2026 runs the risk of being contaminated with amyloids of its own). The latter, EBOO, can’t filter out the particle sizes needed to catch the microclots and amyloid fibrin plaguing my specific situation. I’ve done all three styles at this point, and if the U.S. approved techniques worked, I wouldn’t be here.

When I arrived last Monday before starting, the Program Lead and Research Scientist, @KevinMcCairnPhD, sampled my plasma and showed me it had the texture of “hydrogel.” This is not normal, of course, and explains a lot of the symptoms I can’t shake, like fatigue. After three DFPP sessions, my plasma looks much different now, and my energy is returning.

So, the $1MM question is - why so much fatigue, and what’s causing all the “post-exertional malaise”? Why have my energy and biological reserve been having such a hard time keeping up?

At its core, it is a mitochondrial issue. Microclots and misfolded proteins starve your system of oxygen at the cellular level by obstructing the plumbing, and that oxygen is critical to pulling electrons through your ATP cycle in order to generate energy. Essentially, hypoxia of the microvascular system starves your system from the top down.

I met with numerous U.S. doctors, and all I received were blank stares for years. We now know, though, that the answer to restoring mitochondrial function and ATP is to clear up the plumbing, restore oxygen delivery, and activate cellular signaling function.

[Victoria Parmelee @Victoria_Parm]

@Starseeker1986 Also once he had LongCovid… getting Covid again never made his Longcovid worse? I’m guessing newer variants didn’t hit like the original ones

[Victoria Parmelee @Victoria_Parm]

@Starseeker1986 It’s possible… but after my husband getting covid 6 times and 1 vax. It’ll never be as bad as he feels after this We haven’t had a bout of Covid in years.

[Victoria Parmelee @Victoria_Parm]

@AhmedRouizi Look up McCairn Edogawa Protocol (i use Grok) for a full explanation. @KevinMcCairnPhD @CharlesRixey @KenCaptn20114 @HouseLyndseyRN

[Victoria Parmelee @Victoria_Parm]

@Ronald638136191 Yes we both had vaccines but i am fine. Check with @KenCaptn20114 or @CharlesRixey for instructions on sending blood.

[Victoria Parmelee @Victoria_Parm]

@DianaAutismMD @HouseLyndseyRN Amen!

[Victoria Parmelee @Victoria_Parm]

@DeafVaxInjured @patty27112506 @GovRonDeSantis @FLSurgeonGen @braddrake5 @MaryBowdenMD @HouseLyndseyRN @CharlesRixey He had bad Long covid before getting any vaccine. I stupidly encouraged him to get a vax and it almost killed him. I imagine similar spike protein issues from both sources.

[Victoria Parmelee @Victoria_Parm]

@AdamVanBavel @frogess33 My hope is for anyone suffering can get help… it does suck that money has to be a factor. Best of luck with your book!

[Victoria Parmelee @Victoria_Parm]

@kstevovic123 part of the McCairn Edogawa Protocol… Stem Cell Growth Factor to assist in healing vascular issues

[Victoria Parmelee @Victoria_Parm]

@DisabledDoctor Dr Kevin McCairn is doing the research… so far less than 40 patients with data collected. Nothing published at this point. Data looks promising!🙏