Veronica

[Veronica @Vlopez2825]

@RaymondALopez Happy Anniversary!

[Veronica @Vlopez2825]

@cgonzagaj

[Veronica @Vlopez2825]

Illinois newborns to be screened for genetic disorder, thanks to Oswego family https://t.co/lOz3fSm3dN via @nbcchicago

[Claudia Gonzaga-Jauregui @cgonzagaj]

Excited to be at the Precise IHCC #CohortsToClinics Conference of @GlobalGenMed in Singapore this week and talk about Genomics of #RareDiseases in Mexico through @ReMexER1 and in Latin America with @CEPCAL_LATAM! Will try to stay awake as much as possible!

[NARIZ ROJA AC @NARIZROJAAC]

Y usted que opina ?

[Organic Acidemia Asn @OrganicAcidemia]

We honored our Angels at our recent 2024 FOD/OAA Family Forum. Forever in Our Hearts. 💕 #allinthistogether

[Lurie Children's @LurieChildrens]

We are thrilled to announce the launch of the Journal of Health Advocacy (JHA), the first of its kind peer-reviewed open access journal housed within the organization’s Patrick M. Magoon Institute for Healthy Communities https://t.co/vsq43sZ6zJ.

[Organic Acidemia Asn @OrganicAcidemia]

We pray this young man with #GA1 can get his surgery soon!

[Drug Discovery News @DrugDiscovNews]

Long before the release of their lifesaving COVID-19 vaccines, #RareDisease researchers @moderna_tx were developing mRNA therapies for rare metabolic disorders that currently have no other treatments.

@sci_steph spoke with Paolo Martini to learn more:
https://t.co/pdoX6rg4bJ

[Veronica @Vlopez2825]

@NIHClinicalCntr @NIH @NICHD_NIH @genome_gov 👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼

[SIMD @SIMDtweets]

The very last presentation at #SIMD2024 with more to come for GMDI: a moving panel on the importance of patient advocacy in IEM life. Thank you for all you do for each other and for us.

[ReMexER @ReMexER1]

Este #DiaInternacionalDeLaMujer reconocemos la importante labor de las mujeres como cuidadoras, representantes y luchadoras por la mejor calidad de vida de pacientes que viven con #EnfermedadesRaras #EnfermedadesPocoFrecuentes #8M2024 #8marzo2024 #InternationalWomensDay

[Veronica @Vlopez2825]

@ClementYChow 👏🏼👏🏼🫶🏼

[Clement Chow @ClementYChow]

On this rare disease day, I’m in a strategy meeting with clinicians, scientists and most importantly, the families and parents of the kids we’re tryin to help. #RareDiseaseDay2024 #RareDiseaseDay

[Economist Enterprise @econ_enterprise]

In Latin America, 75% of rare disease patients lack a definitive diagnosis. How is addressing the diagnostic odyssey key to ensuring patients live healthier, more fulfilled lives? Read our report supported by @AstraZeneca https://t.co/BsomjHszUz

#rarediseaseday #showyourstripes

[Claudia GonzagaJ MX 🧬 @GonzagajMx]

El Laboratorio de Genómica Mendeliana y Salud de Precisión del @LIIGH_UNAM se unió hoy a la conmemoración del #DiaMundialdelasEnfermedadesRaras
que se celebra el último día de febrero con nuestro ajolote cebra favorito!
#RareDiseaseDay2024 #RareDiseaseDay 🦓🧬

[ReMexER @ReMexER1]

¿Te interesa apoyar la investigación de #EnfermedadesRaras y facilitar el diagnóstico molecular de pacientes en México? Ahora ya puedes donar para apoyar la secuenciación genómica de pacientes mexicanos que viven con enfermedades genéticas.

https://t.co/5FWCHSg3cz

[Rare Disease Day @rarediseaseday]

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

[Veronica @Vlopez2825]

@RareRevolutionM Propionic Acidemia

[Veronica @Vlopez2825]

@GonzagajMx @ReMexER1 @LIIGH_UNAM 👏🏼👏🏼👏🏼👏🏼👏🏼