Hello 👋
I’ve put together a list for you of my writing & publications that draw on my research & direct experience of living with post-viral, energy-limiting chronic illness & background as #psychologist & #psychotherapist since 2016. #Hypermobility#hEDS#POTS#MECFS#LongCovid
My response to NICE draft guidance for ME/CFS was sent yesterday. Deadline for anyone still looking to engage with the consultation have until 5pm tomorrow 22nd Dec.
A hopeful end to the year - a happy #WinterSolstice & good wishes for change to come.
#chronicillness#psychology
A recent study published in Frontiers found that 7.7% of US healthcare workers have LongCOVID, causing high levels of burnout, depression and anxiety.
Additionally, PASC is implicated in up to 15% of unfilled jobs, highlighting its significant impact on workforce participation.
The Management Team are delighted to announce DecodeME’s initial DNA results & discuss what this means for #pwME & future research.
A huge thanks to all our participants for giving their time, energy & DNA to the project. Learn more about our findings: https://t.co/eNdu1S7szG
“Building back better” rolled off the tongues of politicians during the pandemic, disabled campaigner tells #Covid inquiry. But all that's happened has been a 'huge rollback' of disability rights.
https://t.co/4amAPJOv1M
This week in Severe ME Awareness Week, 4th - 10th August 2025
It is estimated that at least 404,000 people in the UK have ME and around 25% of these people may have severe or very severe symptoms for prolonged periods.
The severity and intensity of ME symptoms means that people with severe ME can be housebound/bedbound for years often needing 24 hour care to maintain activities of daily living.
Patients have suffered decades of misunderstanding and misconceptions, which has further compounded the effects of this life changing illness.
This week, we'll be sharing poems, artwork and photos sent to us by people with severe ME. Please help us to raise awareness of this debilitating condition by sharing our posts, and amplifying those voices of those in our community.
Find out more about Severe ME Week: https://t.co/RaNnqnwhiV
#MyalgicEncephamyelitis #SevereME #SevereMEAwareness #SevereMEAwarenessWeek #SMEWeek2025
My first book, Crippled: Austerity and the Demonisation of Disabled People, has been out 6 years today. As more disability cuts hit, I’m gutted it’s still so bloody relevant - but grateful for everyone buying, teaching, and sharing it.
All formats here: https://t.co/G4wmzImEmk
🚨BREAKING NEWS🚨
Yesterday, over 100 Disabled people joined the mass lobby of MPs to resist benefit cuts - the largest lobby of Disabled people Parliament has seen in over a decade.
Read more👇
https://t.co/aEdECDIVWH
The government's benefit cuts will result in a £500 million reduction in spending on financial support for carers — the biggest cut to carers' entitlements since the benefit was first established in 1976.
Sign @CarersUK open letter against the cuts👇
https://t.co/r7vUlDOwT9
We stand with people affected by ME to deliver a simple message to the UK government after generations of neglect and empty promises, now is the time for action.
Read the joint statement organised by #ThereForME supported by #MEActionUK 👇🏼
#MillionsMissing#DisabilitySOS
This #WorldMEday we want to take a pause & recognise the challenges, stigma & neglect that many #pwME face. We hope that #DecodeME can pave the way forward in accelerating research into M.E./CFS & will help to set a standard in research to include voices of pw lived experiences.
Powerful moment at Sir Bob Geldof's event: Belinda & Brooke Nickeas (ME/CFS community) shared a letter outlining the history of ME/CFS. Touched by their courage, he shared these words 💙 On #MECFS Awareness Day, their act is a gift. You are seen. You matter.
The Greens support all our #MECFS#longCOVID election commitments! Research investment, clinical education, healthcare and disability support access. Thank them and urge all parties to do the same. Tag your local candidates! #FairGoForME
📚 Hot off the press! Our study, published today in @APA_Journals Psychological Bulletin, is a systematic review of 151 qualitative or mixed methods studies representing over 11,000 patients documented the harm that results from #invalidation by doctors.
https://t.co/7q65mOdvS3