Tom Fitz 👨🏻‍💻💡🔌

I’m just a guy fighting ALS the best I can, tweeting about all things programming 👨‍💻and my toddler 👼

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

The smarter you get the more you realize how little you know

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@MinoShah @FDACBER @SecKennedy @FDA_KyleD @SenRonJohnson @houmanhemmati @BellinaMatthew @BellinaDeb Y aren't these new commissioners addressing the past injustices of @US_FDA and FDA CBER AdComms? I have seen ludicrously unqualified Patient Reps chosen out of indifference and panelists assuming expertise on rare diseases they have zero experience with. I see no reason for hope

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@PmtStats @Noahs4Cents classic Nico

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

Never ask a with #ALS "how are you doing?" unless you're ready for a loaded response lol

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@LTCShop @GoldenCareUSA thank you

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

I'm looking for a full-time #caregiver so Shannon can go back to work. I spoke to an advisor from @GoldenCareUSA who told me because I need care #LongTermCare #insurance companies will refuse coverage

Long Term Care insurance rejects people that need care. That seems cruel to me

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@LTCShop @GoldenCareUSA so we have to pay them to do nothing before they will provide the services they advertise. That seems backwards

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

the @NBA tries to spin @Money23Green being a dirty player into him being passionate but we know triple single needs to give cheap shots when he shoots 20% from beyond 6ft lol

[Gavin McHugh @gavinmchughh]

this might be one of the great moments of the NBA season

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

I work a full time job using only my eyes. Nobody tell @realDonaldTrump though!

#ALS #TobiiDynavox #EyeGaze

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@MinoShah @FDACBER @VPrasadMDMPH @SecKennedy @DrMakaryFDA it appears to be only posturing. We are still overlooked and not treated with urgency. The only thing acting with urgency for us is #ALS

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@CraigReagan2 me too. Who gets to nominate these? Can patients have a say?

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@CathyStandish happy birthday @bsw5020 !

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@KickenALSAss is this a new thing? Our power chairs are as expensive as a new car

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@limpbroozkit I have that same Uno ASL switch!

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

I still pray for a chance to live having #ALS. Whether it's a cure or change in regulation. Nothing has changed yet but I won't lose faith ever

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@CathyStandish @US_FDA @NIH @iamalsorg so bills can get proposed then dropped and the ones that do get passed the @US_FDA will ignore. Sorry I'm just fed up with our reps

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

I’m the opposite. I love hugging my friends. I was always told I give the best hugs. But being touched is not the same as a mutual embrace. It’s very different now. I need a firm handshake in my life lol.

[Brooke Eby @limpbroozkit]

Tomorrow is a latter day

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

Today is 4 years since I was diagnosed with #ALS. I still have decent function in my right arm. I still work full time.

I don’t know what makes me a slow progresser. I just thank God for that.

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

The sun doesn’t ask for permission to shine. Neither should you

[Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble]

@linds_kado @limpbroozkit Brooke is the GOAT of ALS lol