#actionforEDS

Help & Support people living with Ehlers Danlos Syndrome.

[Jessica kill 💙 @ukJessicaKill]

@jordansibley Leah from Southampton desperately needs to raise 350k for life saving surgery in the US. A shout out from her beloved Southampton FC would be amazing. She needs all the help she can get. She is an incredible woman with so much to live for. https://t.co/mRtT4XFG4b

[Jessica kill 💙 @ukJessicaKill]

@RocketLaunchUK We would be eternally grateful if you could help with any PR advise around getting Leah's Lifeline fundraising campaign some support in Hampshire and beyond. Even if its just a share. She is an incredible woman with so much to live for.https://t.co/mRtT4XFG4b

[#actionforEDS @actionforeds]

#leahslifeline

[#actionforEDS @actionforeds]

Pls #rt to help #leahslifeline

[Jeremy Heit, MD, PhD @JeremyHeitMDPHD]

Hi everyone - I've had a number of requests to share this figure from my talk today, so here you all go! #ASNR2020 @stanfordneuroi1

[Team Fight POTS @TeamFightPOTS]

The latest The #POTS Patrol Weekly Roundup! https://t.co/1422US4txZ Thanks to @NChayyah @DrPaulChristo @LesWix #spoonie #chronicillness

[Peter M. Lawrence @PeterMLawrence1]

Article published in the month’s @TheJNS spine contains some classic medical illustrations created over 30 years ago by Mark Schornak. The article is titled “History and Advances in Spinal Neurosurgery” written by Corey Walker, MD, PGY-6 Neurosurgery Resident at @BarrowNeuro

[Dr Umesh Prabhu @DrUmeshPrabhu]

@EDSAmanda @LoveInYourTummy @GemmaSPearce @robyndarcey5 @actionnoneglect @paulawoods5 @nihrheumatology @RheumatologyNet @EMJRheum @RheumJC @ACRheum Educating the educated is the real challenge.

[Rachael Swindon @Rachael_Swindon]

The number of complaints to the Tories about its disability benefit assessments has increased.

But how much by?

100%? No ✖️
500%? No ✖️
1,000%? No ✖️
2,000%? No ✖️
3,000%? No ✖️

6,000%? Yes ✅

Now that really is some ‘growth’ the Tories would rather you didn’t know about.

[#actionforEDS @actionforeds]

Atlas joint instability: Causes, consequences and solutions - https://t.co/lTG7H9xfzi https://t.co/FDFC35okbT

[#actionforEDS @actionforeds]

💔Heartbreaking to see Carrie like this last year 😞. X https://t.co/4RodgWyZt2

[#actionforEDS @actionforeds]

https://t.co/2CzqcaGVJ8

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

Amongst #IIMEC14 Conference Speakers - Professor Ron Davis - Stanford Genome Technology Center, USA
14th International ME Conference in #London

https://t.co/dJHc726NsF
#mecfs #MECOnferenceWeek2019 #NHS #research #CofEforME #BRMEC9 #cpd @LetsDoIt4ME

[#actionforEDS @actionforeds]

🌟 Styloidogenic Jugular Venous Compression
Syndrome: Diagnosis and Treatment: Case Report
BACKGROUND AND IMPORTANCE: Intracranial venous hypertension is known to be
associated with venous outflow... https://t.co/po3ouL7BIj

[#actionforEDS @actionforeds]

🚨 Styloidogenic jugular venous compression syndrome: diagnosis and treatment: case report.
https://t.co/3UATcN5348 https://t.co/3UATcN5348

[#actionforEDS @actionforeds]

https://t.co/7nDS8NdaJ5 https://t.co/7nDS8NdaJ5

[#MEAction Network UK @MEActNetUK]

This! 👇

[#actionforEDS @actionforeds]

https://t.co/U4PLuEhnO7 https://t.co/U4PLuEhnO7

[#actionforEDS @actionforeds]

https://t.co/08cLTnMrZj

[Joanne Drayson @LookingatLyme]

Bug that causes relapsing fever identified in tick collected in Ireland https://t.co/GaQmeOo0KK