Ali Mourey Coppolino

[Ali Mourey Coppolino @ali_mourey]

This year, I will be riding in my 2nd @TriStateTrek in memory of my mom, @becky_mourey. I ride, because I dream of a world in which ALS can no longer steal mothers from their daughters before their wedding day. #EndALS

Please consider donating or RT https://t.co/qd3vhRLTi0

[Morris R1 Crew @R1_Crew]

Today the R1 Crew remembers @becky_mourey

Becky was an incredible advocate, loving wife and mother, and loyal friend to all. She was a valued member of our team and kept us moving forward.

https://t.co/uVdCtIZ3ui

[ALS Advocacy @alsadvocacy]

Always a bad idea to quote Lou when your bad break is trivial compared to ALS...
Kevin McCarthy Cites Lou Gehrig’s Farewell Address https://t.co/6EDrtYkmQ2 via @wsj

[Pat Dolan @Team_Thriving]

Presentation at the @CDCEnvironment National #ALS Registry https://t.co/ksbeDNBgoJ

Presentation dedicated to Sandy Morris & Becky Mourey.
Thanks to @srfinger @alsadvocacy for their insights on the registry.

Earl Sarow, @RyansMom2, @ClareDurrett for their work on this study.

[Doug Butchart @butchart_doug]

.@usairforce do the right thing. #ENDALS

[Brooke Eby @limpbroozkit]

@MrBeast @MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.

[Seth Poling @SethPoling10]

There is a beginning and end to every story; this is the end of my story, but this is not goodbye; it is a see you later. In the end, it's not the years in your life that count. It's the life in your years. Friends and family, THANK YOU. Please continue my fight to #EndALS.

[Seth Poling @SethPoling10]

💔 Tonight, my son asked my wife if he could lay on top of me if #ALS takes me away, so he could go to heaven with me. The innocence and love in his question shattered my heart.

Let's work together to #EndALS and ensure a future where no child has to ask these questions. ❤️🙏

[Danielle Boyce @DataSciDanielle]

There's a big difference between inclusion and belonging. I took Charlie to a new YMCA tonight and braced myself. Typically inclusion programs are not built for us, and we come away feeling like we spent our entire recreational time educating, apologizing, and customizing. 1/4

[Jamie Smith @JamieLW8]

I held Scott’s hand as he took his last breath. Felt his pulse weaken and hand turn cold. I consider it the highest honor to have been by his side while he passed. But also a curse. The trauma from it will never leave me. But I would do it all over again for him. ❤️
#EndALS

[Danielle Boyce @DataSciDanielle]

PSA: It is never appropriate to exclude someone from an active role in your meeting because they use eye gaze technology or some other 'alternative' means of communication. 1/3

[ALS Advocacy @alsadvocacy]

Dusting this off… Meet Sandy Morris, the ALS Heroine Hardly Anybody Knows https://t.co/pHM3cN2nNT

[Shelly Hoover @shellyhoover]

I'm bringing these two fierce women with me as I travel to DC to meet with @USHVHA Dr. Elnahal to advocate for Veterans living with ALS.

[Ali Mourey Coppolino @ali_mourey]

This is the LAST DAY to order a BeLikeBecky shirt in memory of @becky_mourey! #EndALS

Fun fact: my mom herself helped design these shirts. “Searching for the ABC in ALS” was discussed on a phone call with her approximately 6 months post-diagnosis

https://t.co/GP11a6Bp9a

[Phil Green @pjgreen]

#ALSAwarenessMonth (US version) is coming to a close and I have yet to see any national campaigns that speak to a broad audience not affected by #ALS. We need to break out of the ALS Community echo chamber and turn heartbreak into action!

[Ali Mourey Coppolino @ali_mourey]

@MeganDuffyPhD @becky_mourey @ALSTDI @TriStateTrek Thanks so much!!! 🫶

[Ali Mourey Coppolino @ali_mourey]

There is just ONE WEEK left to get your BeLikeBecky shirt in memory of @becky_mourey to benefit @ALSTDI. Here I am wearing mine while I train for the @TriStateTrek! #EndALS

[Ali Mourey Coppolino @ali_mourey]

I have relaunched the BeLikeBecky t-shirt fundraiser! A few people expressed interest after missing out on the first round of fundraising. Now there are 2 more weeks to buy a shirt to #EndALS and raise money for @ALSTDI in memory of @becky_mourey

https://t.co/UzcTtfjhNx

[Ali Mourey Coppolino @ali_mourey]

@RunningMama0522 @becky_mourey @ALSTDI @TriStateTrek Thank you! 🫶

[Deb Paust @PaustDeb]

8 days left to get your BeLikeBecky t-shirt!!
@iamalsorg @ALSTDI

[Deb Paust @PaustDeb]

#ALSinDC