Amplify Sickle Cell Voices International

A global initiative encouraging SCD advocates, people living with sickle cell and their families to use their voices to change SCD narrative. #OneVoice #Global

[Australian Sickle Cell Advocacy Inc (ASCA) @AuSickle]

#PRESS #RELEASE

@AuSickle is proud to officially announce that The Medical Advisory Committee ( MSAC) has approved our application for the inclusion of Newborn Screening for Sickle Cell Disease in Australia.
For more information on this link:
https://t.co/pylTxsJ5VR
#SickleCell

[Amplify Sickle Cell Voices International @amplifySCDvoice]

Join @AuSickle for the 3rd Sickle Cell Conference on 4th November. Tickets here: https://t.co/UfRjnyG4PD
This is a hybrid event. Warriors and Caregivers free.
#SickleCellAwareness
#SickleCellDisease
#Australia
#Conference
#Event

[Amplify Sickle Cell Voices International @amplifySCDvoice]

Incoming @amplifySCDvoice Chairperson Dr Mary Akua Ampomah running this much needed awareness campaign at The University of Health and Allied Sciences in Ghana. Follow this link to know more.
#SickleCellDisease
#Amplifysicklevoices
#YourVoiceMatters
https://t.co/sUhdV3O2nH

[Amplify Sickle Cell Voices International @amplifySCDvoice]

@Drshahran @IJBFOJjpMuUYssC Please translate for us.

[Zambian Network for Sickle Cell Advocacy @znsava]

We are participating in this year's Inter- Company Relay (ICR), under the theme “Reignite your Health”.

Date: 15th July 2023
Time: From 5:30am to 17 hours
Venue: Heroes Stadium in Lusaka.

#TeamZnsava
#SickleCellDisease
#SickleCellAwareness
#Znsava

https://t.co/ymsGTwli2x

[Fred Piel 💙🖤🌍 @FredPiel]

Great to see a @bbchealth Health Check on #SCD following the publication of our @TheLancetHaem Commission and #GBD recent estimates. https://t.co/e3GadVpW8A

[Prabhat Sinha @ThePksinha]

#RareDisease demands attention - CSR panelists at @IHWCouncil 7th CSR Health Impact Awards @Kamalomer

[Julie Kanter @jkw4444]

We work hard to improve care for people living with #sicklecell and this inappropriate use of money will not be tolerated. Don’t let these people misrepresent those of us needing appropriate federal $& to improve outcomes in #SCD #SickleCellAwareness
https://t.co/kwr9dlE8vv

[Elle Cole (She/her) @Cleverlychangin]

@akshatdoctor @CayenneWellness @SCANCA_INC @SAMIupdate @SickleCellUK @CrimsonBowSCI @ConquerSCD @SCWarriorsInc @sicklecellnews @iamtoyinadesola @MySickleCare @Memej99 @SickCells @SickleCellMI @HeismyPeace83 @sickle_t @hersickledj @DrDexPatelSCAF Yes, Dr. Rowley, will share the recording once it is available. It will also stream from the @CayenneWellness Twitter account.

[Cayenne Wellness @CayenneWellness]

At 8 am PST on 7/14/23, join us for our Ask the Expert conversation on Respiratory Disease & #sicklecelldisease
🩸 Date: Friday, July 14, 2023
🩸 Time: 8:00 am PST
🩸 Register at 🔗 https://t.co/ynRZpyYv2j

Our guest expert is Dr. Elizabeth Klings. #sicklecell #cme #cmecredit

[European Hematology Association @EHA_Hematology]

After a range of workshops and plenaries, the first day of the #EHALTF retreat has come to an end. Lighting the Flame inspires and supports medical students & trainees in furthering their careers in #hematology.
Learn more: https://t.co/7tRkiCQYnC

[Sickle Cell Disease Coalition @ConquerSCD]

Want to share your latest work on #SCD?

Submit an abstract for @SCDAAorg's Annual #NationalConvention taking place October 11-14, 2023! Abstracts will be accepted until Monday, July 17th; submit today and learn more here: https://t.co/W89ZkcJtA0

#SickleCell #Science

[Amplify Sickle Cell Voices International @amplifySCDvoice]

#TeamASVI #Weareback

📢Session 5 for our ASVI Webinar Series is back this Saturday.

📢Join us this Saturday 27th May 2023 at 7 am. EST

📢Join us vis Zoom on 27th May 2023
https://t.co/PQ8uOArmmt

#ASVI
#Amplifysicklevoices
#SickleCellAwareness
#YourVoiceMatters

[Amplify Sickle Cell Voices International @amplifySCDvoice]

Send us your country of origin and your headshot. We will highlight these issues for you the week of World Sickle Cell Day. Remember that you are not alone.

You can use your voice to change the sickle cell narratives. Send your message & headshots to WhatsApp [phone].

[Amplify Sickle Cell Voices International @amplifySCDvoice]

World Sickle Cell Day falls on 19th June. This year @amplifySCDvoice would like to highlight issues affecting your community in terms of sickle cell management.

Send us one sentence of critical issues affecting management of sickle cell warriors.
#WSCD2023
#YourVoiceMatters

[Sickle Cell Disease Coalition @ConquerSCD]

Register for next week's @nih_nhlbi workshop on Reproductive Health in Women & Girls with #SCD: Gaps to Solutions! This program will focus on a lifespan approach to reproductive health & SCD and address questions related to pathophysiology and care. Visit: https://t.co/J330DYaS5w

[Amplify Sickle Cell Voices International @amplifySCDvoice]

Updated more participants. Join us on Saturday 29th April at 7am est. Details on the previous twit.

[Academy for Sickle Cell & Thalassaemia (ASCAT) @ascatconference]

The theme for our meeting is ‘Therapeutic Strategies for Sickle Cell and Thalassaemia: Time to Consider A Multi-Modal & Personalised Approach’ in recognition of the changing landscape for the management of Haemoglobinopathies.

#ascatconference #sicklecelldisease #thalassaemia