Andy Hugh

[@TheChronicCollaboration @TheChronicColab]

Live streaming outside NICE #ProtestNICE4ME #PublishThatGuideline https://t.co/4fMQ3KD471

[Andy Hugh @AndyH___]

@drphilhammond We can evidence a plethora of harms caused by paediatric ME clinics and the paediatricians, OTs, physios, social and education professionals they advise.
To suggest that harms are not caused in clinics is a play on words.

[Andy Hugh @AndyH___]

@drphilhammond I have yet to hear of a paediatric ME/CFS service drawing baselines low enough to prevent long term harm. Mostly I hear of child protection triggered in response to patient choice and psychological labelling of ME symptoms.

[Andy Hugh @AndyH___]

@Aarsil0 @TomKindlon @NICEComms Nice have not given a legitimate reason for delaying publication. They would surely have done so if they had one.
We do not need to seek reason or engage in tittle tattle but enforce publication.

[Andy Hugh @AndyH___]

@ValeriEliotSmit @NICEComms Absolutely. The time for new evidence is long over, and they can't legitimately consider opposition to GRADE at this point in time, especially unproven opposition. Publishing is the only legitimate option.

[Andy Hugh @AndyH___]

@TomKindlon @tymestrust Medical negligence of the highest order.

[Andy Hugh @AndyH___]

@OfficialNIHR @BristolUni She should be sectioned IMHO.

[Andy Hugh @AndyH___]

@JaneCColby KidswithME learn to fear uneducated professionals they trusted because of the repeated harms they experience. That fear is covered up with a dx of anxiety.

[Andy Hugh @AndyH___]

@thestonebird “Its so hard to put into words”. Not a truer word said Greg. NICE’s pen pushers can never understand ME with intuition or knowledge of other conditions. Sufferers and parents of children need empowering by NICE to insist on what helps and refuse what doesn’t. You have to live it.

[Andy Hugh @AndyH___]

@adambeyoncelowe @carolbinks Training behaviour focussed fatigue clinics to treat ME can never work. Primary care physicians should be the focus. Shutting the clinics and a rapid update to the guidance are a must.

[Erik Johnson @erikmoldwarrior]

@unrestfilm Dr Peterson told me he is not getting any interest in CFS history/evidence due to Unrest. Any ideas how to make that happen?

[Andy Hugh @AndyH___]

@TomKindlon Daughter was moderate-severe and improving very slowly until 'professionals' got their hands on her. Improved but stuck at 5% since.

[Andy Hugh @AndyH___]

@keithgeraghty @sholiv @EndMECFS The idea there's harassment being fabricated of course.

[Andy Hugh @AndyH___]

@keithgeraghty @sholiv @EndMECFS FOI showed no reports of harrassment by third parties to uni staff. Zero history, pattern of harassment or concern. Fabricated to hide data.

[John Peters @johnthejack]

@sTeamTraen EC used it in her speech last week, saying she had recvd it. Gill, the man responsible, confirmed it was made up & is reported phone call to SW. Gill emailed EC during the week & asked her not to use it out of context. EC today claimed it was an actual email she had recvd.

[Andy Hugh @AndyH___]

@secretspartacus @gilmour_eilidh I DARE TO DISRUPT the harmful status quo that Crawley and others have peddled for far too many years.

[Andy Hugh @AndyH___]

@TinaRodwell1 Why does she even have to ask? She loves subjective data. She'd get her answers from VanNess etc. but studies bring her funding :(

[Andy Hugh @AndyH___]

@JaneCColby @tymestrust Thank you Jane. You have clearly shown that even had they received a complaint that wasn't logged, there's no pattern or ongoing concerns.

[Andy Hugh @AndyH___]

@CoyneoftheRealm @_Sue_W_ @TEDxBristol It's in the interest of ME sufferers to let her dig herself a deeper hole.

[Andy Hugh @AndyH___]

@keithgeraghty Hher opening remarks, she couldn't remember about cannon balls, came from here: https://t.co/hX02UWPg3D in which Shepherd rebuts the abuse.