ARREY-ECHI

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

Webinar Alert 🚨

Join the 3 Aflud Alliance virtual session on Leg ulcers in #SickleCellDisease, featuring patient testimonies and expert interventions on care and management. 💙

📅 25 July 2026 | 11:30 GMT / 13:30 Paris
🔗 Register here: https://t.co/HA6tH14VDx

#GlobalHealth

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

Join voices across Africa on 30th May 2026 as we unite to address the burden of SCD through African-led advocacy, research, innovation, policy, and implementation. Together, lets break barriers, amplify patient voices & build a future where no warrior is left behind.

[Anne-Chantal @Ayukie2000]

Stigmatisation in #SickleCellDisease remains a significant barrier to equitable #PatientCare.
In the latest #podcast, @LaurelBrumant -Palmer offered a powerful, practical tip on tackling this critical issue.

👉Spotify: https://t.co/1mYBCyTfHr

👉YouTube: https://t.co/ou2C0Z5P9w

[Anne-Chantal @Ayukie2000]

NEW SCD PODCAST! The 3rd edition of Sickle Cell Role Models and Mentors is ON AIR, focusing on women's resilience:

Facing Stigma.

Faith as a key coping tool.

Don't miss this powerful conversation. 👇

📺 YouTube: https://t.co/A8N3zX7GJt🎧 Spotify: https://t.co/LNzXLrEiL6

#SCD

[ARREY-ECHI @arreyechi01]

@UMASCCO_Africa @novonordisk @WHOAFRO @ConquerSCD @FundSickleCell @uscrfuganda @UN_SDG @cscfsicklecell @MohGambia @MinofHealthUG Profound and timely.

[Anne-Chantal @Ayukie2000]

🚩Soon on air!

Edition 2 of Sickle Cell Role Models and Mentors is out this Friday on @YouTube & @Spotify!

We talk to an SCD Coach who gives empowering, practical advice on thriving with #SCD.

More📷https://t.co/OGzWH2cRRZ

#SickleCellDiseaseAwareness #SDG3 #podcast

[ARREY-ECHI @arreyechi01]

The end of September doesn't end the work. Advocacy has no timeline so let's keep advocating.

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

The curtain may be closing on #SickleCellDiseaseAwarenessMonth, but our work is far from over.
SCD advocacy must be a year-round commitment.

We need a September-to-September cycle of continuous action. Join us! Many drops make an ocean. 🌊
#SCD #ContinuousAdvocacy #HealthForAll

[ARREY-ECHI @arreyechi01]

@UMASCCO_Africa @WHO @WHOAFRO @novonordisk @ConquerSCD @FundSickleCell @GlobalSCDN @MinofHealthUG @mohgovgh The end of September doesn't end the work. Advocacy has no timeline so let's keep advocating.

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

#DidYouKnow? Many kids don't know about #SickleCellDisease?

The school is the FIRST place to promote #SCD awareness.

Let's educate pupils/students to create a stigma-free future & support classmates with SCD.

This is urgent!
#SCDEducation #SCDAwarenessMonth

[Anne-Chantal @Ayukie2000]

Tommorrow, in #NewYork, #SickleCellDsiease will enter into the discussion table at #UNGA80.

Calling all the warriors in NewYork to attend.

Register here: https://t.co/K9rIB3kCpk.

Let through you, the voice of every #warrior be heard.

#SickleCellAwarenessMonth
#SCDAwareness

[ARREY-ECHI @arreyechi01]

@UMASCCO_Africa Important because doing so helps you to make informed decisions.

[ARREY-ECHI @arreyechi01]

Important because doing so helps you to make informed decisions.

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

Saviez-vous que le #dépistagegénétique avant le mariage peut aider à enrayer la transmission de la #drépanocytose ?

En le rendant obligatoire, les nations peuvent s'assurer que les couples sont informés pour faire des choix éclairés pour leur avenir et celui de leurs enfants.

[ARREY-ECHI @arreyechi01]

When we voice it out, know that we have already reached our tolerance threshold. Because you don't see it doesn't mean it is not there.

Believe Us when we say we are in pain and show a little empathy 🙏🏾

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

A painful reality for many with #SickleCellDisease:

"I'm in pain, I need help." "Are you sure? You don't look like it."
The mildest #SCD pain can be an 8/10. When a patient arrives at the ER, they are likely at a 10/10.

Treat every case as a near-emergency.
#PatientAdvocacy

[ARREY-ECHI @arreyechi01]

@UMASCCO_Africa @WHO @WHOAFRO @novonordisk @ConquerSCD @FundSickleCell @GlobalSCDN @REDACnetwork @sicklecell_news @UnPhilemon When we voice it out, know that we have already reached our tolerance threshold. Because you don't see it doesn't mean it is not there.

Believe Us when we say we are in pain and show a little empathy 🙏🏾

[ARREY-ECHI @arreyechi01]

@UMASCCO_Africa @WHOAFRO @MinsanteCMR @MinSanteRDC @DrepaGab @oumar_djamil @CentreCNRD @FondationPFabre @DORYS_Drepano @novonordisk @OMSCentrafrique This can not be over emphasized enough.

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

Plus de 500 000 bébés dans le 🌎naissent avec la #drépanocytose chaque année, surtout en #Afrique. Sans dépistage néonatal, beaucoup ne survivent pas à l'âge de 5 ans. Il est temps de militer pour un dépistage national obligatoire. Luttons pour le droit de chaque enfant à la vie.

[ARREY-ECHI @arreyechi01]

Very necessary

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

Le #MoisDeLaSensibilisationÀLaDrépanocytose continue !
Connaissez-vous votre génotype ?
C'est la première étape vers une vie plus saine.
Faites-vous dépister et encouragez vos amis à faire de même.

#Drépanocytose #Génotype #ConnaîtreSonStatut #Sensibilisation

[Anne-Chantal @Ayukie2000]

It's still #SickleCellDiseaseAwarenessMonth!

What better way to raise awareness than through the power of #storytelling?

Listen to my podcast, "Sickle Cell Role Models and Mentors," now on @Spotify!👇
https://t.co/g0S77RrvER

Like, comment and share!

[UMASCCO (Umoja Africa Sickle Cell Consortia) @UMASCCO_Africa]

🗓️It is #SickleCellAwarenessMonth.
💡 Are you #SickleCellDisease aware?
Do you know what your genotype is?
This month of #September, take a moment to find out where you stand.
🔬 Consider getting tested for sickle cell disease.

#SickleCellAwarenessMonth