"Beyond what we thought, towards what we dreamed."
@curesmaindia extends its deepest gratitude to the Government of Kerala, and Hon. Health Minister Smt. Veena George @VeenaGeorge03
4 the historic decision to expand the the age limit for risdiplam to 25 years !!!
@curesmaindia wishes every1 a happy Republic day 2026 2day!. As v celebrate d values of equality, dignity n hope enshrined in ur Constitution, v stand in solidarity wid children and adults living wid Spinal Muscular Atrophy (SMA) n their families @MoHFW_INDIA@CDSCO_INDIA_INF
Meet Diya,a 4-yr-old SMA warrior thriving thanks to breakthrough treatments & daily physiotherapy!Physiotherapy builds strength, improves movement & gains independence. Let's celebrate Diya's progress & raise awareness! 🌈💕 #SMAWarrior#PhysiotherapyMatters#CureSMA#SMAwareness
✨ Dylan's Story ✨ 9-yr-old Dylan's treatment halted due to funding issues. SMA meds are life-changing but unaffordable. No child should lose strength due to cost. Sustainable access is key! 🌸💜 #CureSMAIndia#SMAAwareness#AccessToMedicines#HopeForSMA
🌸 Meet Devansh, a 21-month-old SMA warrior! 💜 With therapy, treatment & love, he's becoming stronger each day. Let's raise awareness & work towards a future where no child's potential is limited by SMA! 🌍💜 #SMAAwarenessMonth#CureSMAIndia#StrongerWithSMA
Our #SMArtWarrior Mahima spoke at Google’s Awareness Session . She shared how crowdfunding gave her access to Risdiplam, halting disease progression & giving her strength to attend online classes. She urges us to raise awareness & support SMA warriors. #SMAAwareness#HopeForSMA
Happy Independence Day! 💫 Let's break free from limitations & unleash our strengths, just like Zaid, young #SMArt warrior who's reaching for the stars! Freedom to live life to the fullest,with accessibility and inclusion for all! 🙌 #IndependenceDay#SMAwareness#InclusionForAll
Meet Aditya, #SMArt warrior from Tamil Nadu! Despite living with #SMA, Aditya is determined to fight! 💪 He stays active with physiotherapy and attends school in his wheelchair. Let's support Aditya who is waiting for treatment. 🙏 #SMAwareness#AccessToTreatment#SupportAditya
Heartfelt thanks to @iprdkerala for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to @KeralaHealth for their unwavering support to patients with SMA! #SMAawareness#KeralaHealthcare
On World Disability Day, let's reaffirm our commitment to creating a world where individuals are valued for their abilities, talents, and potential, irrespective of their challenges.
As we celebrate the 10th anniversary of the CureSMA Foundation of India, we are proud to announce the launch of our new podcast, “SMArtitude”—the unstoppable attitude.
https://t.co/JlK7UOlBAz
#SMAawarenessMonth
Day 31: Meet Ishan, a 6.5 yr old #SMArtWarrior ! In 4 yrs with #Spinraza he's made incredible progress from a weak, non-sitter to achieving milestones like head control, rolling, sitting, improved leg & hand movements, and better swallowing! #BattleAgainstSMA
#SMAawarenessMonth
Day 30: Meet Vriddhi, a 3 yr old #SMArtWarrior! With 2 SMN2 copies, she started Risdiplam at 8 mos. In 2 yrs 6 mos, she's gone from a floppy child to achieving milestones: head control, rolling, sitting, improved leg & hand movements, and better swallowing! 💪
SMArtCon2024: A Resounding Success! 🎉
Thrilled to announce that our event exceeded expectations! Dynamic discussions, empowering sessions & unforgettable connections made. Heartfelt thanks to esteemed guests & panelists 🙏
Let's keep the momentum going 💪 & make a difference !
#SMAawarenessMonth
Day 15: Break free from #SMA struggles through assistive technologies ! Embrace freedom from SMA & empowerment through inclusive policies, adaptive sports & mental health resources. Let's win the #BattleAgainstSMA & gain independence. #IndianIndependenceDay