Bateman Horne Center

Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating ME/CFS, FM, Long COVID, and related conditions.

[Bateman Horne Center @BatemanHorne]

We're happy to share this upcoming Community Conversation from the @MassMECFS, focused on "Managing Your Energy Envelope." Join the discussion on June 28 to connect with others and learn practical approaches to pacing.

[Massachusetts ME/CFS & FM Association @MassMECFS]

Please join us for a Community Conversation about Pacing
"Managing Your Energy Envelope"
Sunday, June 28, 2026
4:00 pm ET on Zoom

https://t.co/pP3BZiKM1N

#massmecfs #chronicfatigue #chronicfatiguesyndome #fibromyalgia #MECFS #longcovid #iacci #chronicillnesspacing

[Bateman Horne Center @BatemanHorne]

Looking to stay informed about emerging ME/CFS research?

We're sharing this free webinar from @PlzSolveCFS, where the Simmaron Research team will discuss their Catalyst Award-funded rapamycin study and future research plans.

Join them on July 14.

[Solve ME/CFS Initiative @PlzSolveCFS]

Register today for our free webinar, “Repurposing Rapamycin: A Report On the First Biomarker-Driven Treatment Trial for ME/CFS,” with the @RedefiningMECFS team. Tues. July 14, @ 3:00 pm PT / 6:00 pm ET.

https://t.co/vreCXwMBXA

#MEAwarenessHour

[Bateman Horne Center @BatemanHorne]

Looking for a creative way to connect and express your experience during Disability Pride Month?

@MEActNet is hosting an accessible art workshop with artist Nyx Mir on July 16. Space is limited, and applications are due June 30.

[#MEAction Network @MEActNet]

We have an exciting opportunity for you! We are offering a special art workshop with multidisciplinary artist Nyx Mir (creator of the ILLMARKS project! https://t.co/TLILPx7sqJ) on Thursday, July 16, 2026 at 2pm ET. Apply by June 30th.
https://t.co/2zVwOyHuWv

#pwME #art

[#MEAction Network @MEActNet]

July is #DisabilityPrideMonth, and we're celebrating with a special Writing Workshop presented by our Narrative Working Group on July 9th at 2 pm ET. We'd love for you to join us. Registration required: https://t.co/pyOPY7jgYZ

#Disability #pwME #MECFS

[Bateman Horne Center @BatemanHorne]

Stay connected with Bateman Horne Center.

Sign up for our email list to receive educational resources, event announcements, research updates, and more.

📧 https://t.co/fXYF0e2d4M

[#MEAction Network @MEActNet]

Attention #caregivers! You are invited to join our ME Caregivers Support Call on the 3rd Saturday of the month- June 20th at 1:30 pm ET. All caregivers of people with myalgic encephalomyelitis (ME), Long COVID, and associated conditions are welcome! https://t.co/SMobGEMNYT

[Bateman Horne Center @BatemanHorne]

In Case You Missed It: New MERC training video on the 10-Minute NASA Lean Test (Passive Stand Test).

Learn how clinicians can assess orthostatic intolerance in ME/CFS and Long COVID with this practical, clinic-friendly tool.

Watch: https://t.co/L2LH9ep1tB

[Bateman Horne Center @BatemanHorne]

We want to thank the stellar team at @RTHM_Health for their informative webinar this morning. Here is a link to the testing recommendations Dr. Curtin referenced (@LBatemanMD was a key contributor): https://t.co/ksg8spLweH

[Bateman Horne Center @BatemanHorne]

Our most-viewed YouTube video last month is worth another look.

"What is ME/CFS?" breaks down the core symptoms of ME/CFS, including PEM, cognitive impairment, unrefreshing sleep, and orthostatic intolerance.

Watch now: https://t.co/aPinStIYpm

[Bateman Horne Center @BatemanHorne]

Been told your orthostatic testing was "normal," but standing still makes you feel worse?

Orthostatic intolerance is broader than POTS. Our latest blog explores emerging research, diagnostic gaps, and why "no POTS" doesn't always mean "no dysautonomia."

https://t.co/lExVW5UU19

[Open Medicine Foundation @OpenMedF]

Today at the Invest in ME Conference, Dr. Maureen Hanson — member of OMF's Scientific Advisory Board — presented "Searching for Chronic Infection in ME."

Thank you, Dr. Hanson, for the research that moves us closer to answers for the millions living with ME/CFS.

[Bateman Horne Center @BatemanHorne]

New research estimates nearly 4 million U.S. adults are living with Long COVID that significantly limits daily activity.

The study found Long COVID’s disability burden is comparable to Alzheimer’s disease and asthma.

Read study: https://t.co/RvCS6eH8rC

[Bateman Horne Center @BatemanHorne]

New provider education video  

Learn how to perform the 10-Minute NASA Lean Test, an accessible office-based tool used to help identify orthostatic intolerance in ME/CFS, Long COVID & related conditions. (aka Passive Stand Test)

Watch video: https://t.co/L2LH9eotE3

@OpenMedF

[Bateman Horne Center @BatemanHorne]

Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years.

Our latest blog explains:
• Tilt Table Tests
• Active Stand Tests
• NASA Lean Tests

…and why accessible testing matters.

Read more: https://t.co/n85VE7A9fa

[Bateman Horne Center @BatemanHorne]

@MEActNet Thanks for everything you do for the community 💙

[Bateman Horne Center @BatemanHorne]

@markeology Thank you for sharing this so openly. Posts like this help illustrate the reality & complexity of living with ME/CFS; the tradeoffs, limits, the small moments that matter, & the toll that often follows.

[Open Medicine Foundation @OpenMedF]

Linda Tannenbaum, Founder and CEO of OMF, will deliver the inaugural lecture of Faculty of Medicine of the University of Lisbon’s new Open Lectures series on May 25.

[Bateman Horne Center @BatemanHorne]

A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count. - @OpenMedF
https://t.co/aIUIvTDyTi

[Open Medicine Foundation @OpenMedF]

What are your research priorities? Over 1k patients and caregivers have already shared theirs. The CTN Lite survey closes May 15.

Help shape research for ME/CFS. Caregivers can complete on behalf of patients & answers save if you need to take breaks.
https://t.co/MVgAcHzxhT

[Bateman Horne Center @BatemanHorne]

Update: Recording will be added to our YouTube channel by the end of the month.

[Bateman Horne Center @BatemanHorne]

"Coffee" with a Clinician is LIVE
https://t.co/ZmoGqPCqxX