Nick H

[Jon Douglas @atranscendedman]

RECOVER studied 74 autopsies and found replicating SARS-CoV-2 in the heart in 11 cases.

82% had cardiac Long COVID symptoms.

The virus was found inside heart muscle cells alongside immune and structural changes, supporting viral persistence.

https://t.co/UHJ0wprTa3

[charlos @loscharlos]

“Exposure to respiratory viruses before a baby’s first birthday — when immune systems are immature and before most childhood vaccinations — consistently predicted reduced earnings, education and health decades later.”

[Michael Dempsey @mhdempsey]

i cannot stress enough the importance of the idea that the entire world is looking for specific stories and scenarios to grasp onto in order to understand the forward looking possibilities.

The aperture for what visions of the future people/companies/governments will internalize and then work off of is wide open because so few are willing to imagine and produce specific, time-bound scenarios.

[Nick H @breakfastnick]

@DuaneStorey Yes - and similar data has been abundant in the literature for years.

[Dr. Pat Soon-Shiong @DrPatrick]

The independent research by a world renowned breast cancer oncologist at UCLA, Dr Aditya Barda, breaks news today at AACR that consistently shows regardless of the stage of BREAST CANCER, that post Covid lymphopenia results in poorer prognosis, poorer response to treatment and even 2x higher recurrence when patients are in remission. The relationship of low NK and low T cells to breast cancer ( and frankly all cancers ) is so clear.
Will share his data that he presented at major breast cancer conferences and now at AACR next. Very compelling

[Jumpei Ito @jampei2]

By rapidly quantifying interferon-stimulated genes (ISGs) expression across 220k RNA-seq data sets from diverse animals, we comprehensively identified “hidden viral infections” in wildlife and livestock (1/n).
https://t.co/K6Yu47dhCJ

[Marcelo Freire #drInflammation @drmfreire]

What is persistent #SARS-CoV-2 Spike doing in gut tissue in situ?

In our new preprint, we used spatial transcriptomics, RNAscope, GeoMx DSP, and multiplex IF to investigate biopsies from #LongCOVID
The immune dysfunction happen on spike + regions of LC.

https://t.co/nt0aZdm9bX

[Jon Douglas @atranscendedman]

Wow. I’ve always wondered if the antibiotics I took for a kidney stone right before COVID played a role in my long COVID.

This discovery makes you wonder how many things we once called mysterious are really just bacteria or viruses and now we have the tools to confirm.

[Jon Douglas @atranscendedman]

54 year old Jari Litmanen opens up about years of long Covid that left him unable to play for 4 years.

The former Liverpool and Ajax star says returning in 2024 legends games felt like a new life and he is now almost fully recovered.

https://t.co/RBFZ9OJK1H

[Nick H @breakfastnick]

@atranscendedman Yes! Been obvious for 5 years… the fact that we’re still here without a single properly architected study on this is such an indictment of the medical research and biotech system it’s hard to over state.

[tern @1goodtern]

Ten words you need to know to understand how we can be entering the seventh year of the covid pandemic.

[Whitney Dafoe @DafoeWhitney]

Talking Again in 2025

I started eating again in 2024.  After 11 years not eating a crumb of food or even drinking a drop of water.  I got all fluids and nutrition from tubes inserted into my body.  For 11 years.  

In 2025 I have another big improvement to announce.  

I have started ‼️ TALKING ‼️ again after 12 years of not saying a word to anyone!  

What will 2026 bring❓

Talking has been truly AMAZING.  A slow process, it started when I slowly started feeling like I could talk again, but my stress response was still very high about it and it was hard to breach that stress wall and say the first words to someone.  I first talked to my best friend, who I am really close with, comfortable with and feel very safe with so my stress levels are lower with her.  I practiced talking to her on calls and video calls for about 6 months before talking to anyone else.  Then I moved on with a few more close friends.  It was hardest with my parents and caregiver because of the incredibly high stress I have been through with them in the past during my sickest years - my stress response seems to still be high with them - sensing danger likely due to a PTSD response mixed with the messed up fight or flight response in ME/CFS.  But I am now talking to everyone!  It is sooo much easier with my caregiver to just tell her what I need instead of pantomiming every little thing for sometimes a long time until she figures it out.  What a relief!  And I can have conversations with friends and loved ones!  

I just said goodbye to a lifelong friend who is dying and I got to talk to her on the phone and tell her how much she means to me, the impact she has had on my life, how wonderful she is; And then say goodbye.  It was profoundly sad, but it meant the world to me that I got to talk to her and say goodbye at all.  She is not online and does not text, so it would have been so devastating not to have that last connection with her…

Read, watch or listen to the whole post on my blog!
https://t.co/yD9kRoMttN

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#mecfs #chronicillness #pwME #LongCovid #Disability

[Jon Douglas @atranscendedman]

Researchers studied 99 COVID-19 patients and found that SARS-CoV-2’s nucleocapsid protein can trigger complement activation even without matching antibodies.

This suggests the N protein may play a larger role than spike in severe immune overreactions.

https://t.co/prvdaOWG6K

[Jon Douglas @atranscendedman]

UC Irvine scientists report that Long COVID may be driven by hidden reservoirs of SARS-CoV-2 lingering in organs for months or years.

These reservoirs keep the immune system overstimulated, leading to fatigue, brain fog, and organ damage.

https://t.co/z5U1NCCQZ0

[The Sick Times @thesicktimes]

It can feel lonely navigating the #LongCOVID a life-changing disease that affects over 400 million people worldwide.

Sign up for our newsletter and join others who want fact-based news without COVID-19 denial, minimizing, or gaslighting. https://t.co/ZSY5E2SlOB

[Jeremy Jeffs @magnetoJJ]

I’ve spent 3 years photographing people with #MECFS, a condition I’ve lived with since 1987.

50 people. Invisible & incurable illness.

The work shows at Oxo Tower in September.

Updates & book info here: https://t.co/XKdL5WrOEz

#InvisibleIllness #PhotographyForChange

[HHS @HHSGov]

.@SecKennedy opens the Long COVID Consortium at HHS, stating he convened today’s roundtables for people who “don’t know where to go, and feel their voices aren’t being listened to.”

[Meighan Stone @meighanstone]

@SecKennedy @RogerMarshallMD @DrMakaryFDA @NIHDirector_Jay @LongCFoundation @PutrinoLab @DrBobRedfield51 @NIH @Invivyd @polybioRF @brucep13 @MichaelPelusoMD @ARPAHealth It sounds like some real news was just made today by @SecKennedy @HHSGov: it appears @ARPAHealth WILL now take on #LongCOVID for the first time, after two years of patient advocacy & outreach! A huge testament to our Hill partners & community engagement. #HHSLongCOVID 14/x

[Meighan Stone @meighanstone]

Tomorrow's HHS gathering of #LongCOVID experts is a critical meeting & opportunity for US patients. If I could share "Five Ideas Secretary Kennedy Could Just Decide Today" with these high-level officials—that don't require any new legislation, rules or funding now—they'd be:
1/x

[Jon Douglas @atranscendedman]

UCSF researchers review new evidence showing Epstein-Barr virus is not just linked but required for multiple sclerosis.

Nearly 100% of MS patients have prior EBV infection and risk rises 32-fold after catching the virus.

https://t.co/VbT7zm8LYy