Cam Medlin

Technology enthusiast. M.D. #pwME #MEcfs #POTS

[#MEAction Network @MEActNet]

Thanks to you, we've raised over $50,000 to sustain & grow our work!

We're thrilled to announce 3 generous donors are offering a $25,000 matching grant. Every dollar donated to #MEAction until we reach our $100,000 goal will be DOUBLED!

Donate: https://t.co/y5MYMvZ64f

#pwME

[#MEAction Network @MEActNet]

@exceedhergrasp1, #MEAction Director of Scientific and Medical Outreach, at #MillionsMissing SF getting personal about why she is fighting for #pwME. Read more and support her work here: https://t.co/oPCbVIcKsN

[Cam Medlin @cammedlin]

#MillionsMissing #MyalgicEncephalomyelitis https://t.co/Td5xlOXbDd

[Janet Dafoe @JanetDafoe]

In fact, Ron Davis applied to NIH for the nanoneedle work and was turned down! Reviewers were very critical and said it wouldn't work in spite of good preliminary data. STOP saying you don't fund ME/CFS because you don't get good grant applications! Patients funded this! @OMF

[Janet Dafoe @JanetDafoe]

That NIH grant was TERMINATED about 2 years ago because NIH said they didn't want to fund that technology anymore. That grant had funded the initial development of the nanoneedle on cancer cells & bacteria. All the ME/CFS work started AFTER that & was FUNDED BY PATIENTS @OpenMedF

[Cam Medlin @cammedlin]

So @NIH and @NIHDirector refuses to fund good quality #ME #CFS research by the excellent team at @stanfordmed headed by Dr. Ron Davis, then take credit for it after we, the sick/disabled #MyalgicE patients/families fund it through @OpenMedF? #MillionsMissing

[Janet Dafoe @JanetDafoe]

@Maankobbe @NIHDirector @StanfordMed NIH did not find any of the work on ME/CFS using the nano needle! NIH funded some of the work developing the nano needle in the beginning when it was used on other things. All the ME/CFS work was funded by patients through OMF.

[Cam Medlin @cammedlin]

Join the #MillionsMissing & help us to keep fighting for people with #MyalgicE! Join a local event & donate! https://t.co/dnjMFTJL72

[Scott Simpson -- Remedies Online Counseling 🏳️‍🌈 @RemediesPodcast]

As someone living with both HIV and ME, there is no equivalency. Not on research funding, not on treatment options, and certainly not on physician support. If you have to choose between HIV and ME, choose HIV every time. Its a no brainer.

[Cam Medlin @cammedlin]

Hey @NIHDirector, if you really want to improve #MyalgicE research how about dealing with these 5 obstacles blocking any major #MEcfs research? https://t.co/HJr5eoJNu2 via @statnews by @jspotila
#MillionsMissing #pwME #NIH

[#MEAction Network @MEActNet]

.@NIHDirector: Thank you, Dr. Collins, for recognizing we need a path forward for our community. But, at the pace the NIH is moving, you will leave an entire generation to die without solutions. We crucially need you to deliver biomarkers & treatments for #pwME in 5 years.

[Cam Medlin @cammedlin]

Don't let @CDCgov repeat a terrible mistake. Demand #pwme and expert input for ME treatment guidelines! Sign and share the petition today. #mecfs #NoMoreShoddyWork https://t.co/Y4Vn2tfUC7

[Unrest @unrestfilm]

Unrest is in the running for this year's Independent Lens Audience Award which honors fans’ favorite film of the season. This film has become a major tool in advocating for #mecfs visibility & health equality. Cast your vote to promote visibility for ME!: https://t.co/lp4Bk5wKQ3

[Jennie Spotila @jspotila]

If you feel despair that there are still no treatments and NIH is just twiddling its thumbs and whistling innocently, then get MAD. We are NOT powerless! I have ideas about what we can do: https://t.co/aQDudU176B

[Jennie Spotila @jspotila]

NIH has a de facto plan for ME, and unless something changes, more than a few people with ME will die before that plan produces meaningful results. https://t.co/XiSbtwvRu2

[Cam Medlin @cammedlin]

@jenbrea I would like to help as much as my ME brain allows :) but am not on Facebook so I can't join your group. Is FB necessary for discussing what needs to be edited, etc.?

[Cam Medlin @cammedlin]

At Montreal conference "@DrMaureenHanson reported she was able to identify 95% of ME/CFS patients correctly using 41 metabolites. Her search for metabolomic subsets failed – suggesting perhaps that metabolic problems are at the core of ME/CFS." https://t.co/S4OuzYqQ8m

[Jennifer Brea🦒 @jenbrea]

Unless you have #mecfs

#millionsmissing https://t.co/KOOLNfgzLZ

[mayadusenbery @mayadusenbery]

Love to all those protesting -- in the streets & from their beds -- for equitable funding for research on #MECFS. Sign the petition to @NIHDirector demanding an end to decades of federal neglect: https://t.co/JTrAmdLs1W #MillionsMissing https://t.co/uvwoy62v5v

[Cam Medlin @cammedlin]

This is me before and after M.E. Still an #invisibleillness? #MillionsMissing #MECFS

[Cam Medlin @cammedlin]

Please join me in signing the @MEActNet letter to @NIHDirector Francis Collins. #mecfs research is the most underfunded compared to any disease by a ridiculous margin. #millionsmissing https://t.co/zPf3OBFF1r