Daffodil Bear

[Daffodil Bear @daffodilbear]

https://t.co/GEVxDJuPUT

[Anon Opin. @anon_opin]

Life. It's just a cycle of maintenance. Cleaning cooking washing working all day every day just to ensure we don't slip behind. We exist just to expend all our energy maintaining that existence. It's circular and pointless and therefore meaningless

[🕸️Dr.T, PhD @chydorina]

Of all the things that are hard to deal with in complex chronic illness like MECFS it seems like the hardest thing to wrap ones head around is that you cant 'fix' the disease by simply treating the thing that got you sick.

With cancer you treat the runaway cell growth and while the period of recuperation might be long, the body often heals well and completely even after such a severe trauma (both the disease and the treatments are hard on the body).

With MECFS its different.

Conceptually we need to think about MECFS not so much as a disease per se but as a disease state. Removing the disease itself might be the goal but to get there you have to change the functioning of the system as a whole.

Why? Why it is so different?

The basic idea here is that the body has adapted (most of the time over years) to survive by fundamentally altering the way it functions. It has learnt to cope by adapting.

It does this to survive. Essentially you get this total reorganization of how energy is processed - from the mitochondria through the kreb's cycle and all the way up to the organs and organ systems. Every part of our being has to adapt to converse energy and function on less energy.

This is one of the reasons we see such different patterns early on in the disease course and later on. The body keeps adapting to the new conditions. And not all of the conditions are imposed by the biochemistry. Behavior changes and lifestyle changes occur of necessity and the changes then also start to drive changes in biochemistry (such as altered circadian rhythms that then affect HPA axis and stress and digestion and metabolism).

Its like a cascade where changes trigger changes that trigger changes.

Unravelling the disease state often has little to do then with what made you sick but instead slowly altering the biochemistry to nudge the body itself back to a place of health.

Doing this often involves basics like mineral and nutrient repletion, re-establishing circadian cycles, lowering neuroinflammation. It also involves slowly starting to chip away at the whole system pathogen loads that we have picked up through the course of our lives as well as dealing with autoimmunity and environmental triggers.

Systems approaches to disease management are what have the highest chance to lead to major shifts in the disease course.

What we are trying to do with MECFS is re-establish health - not treat disease.

[Royal Holloway @RoyalHolloway]

#OnThisDay in 2021, our campus was covered in a beautiful blanket of snow! ❄️

Who's hoping for some more snow in the coming weeks? 🤞

[Fiona @Fionas_Story]

I keep thinking about the big ol' shift I made in my opinions to get well

I used to hate the idea that my symptoms were 'all in my head' or that I was in control of them. They were so awful. I didn't want to be ill.

How I recovered doesn't mean my symptoms weren't real, however

[Science girl @sciencegirl]

The Gardiner Brothers, born in the U.S. to Irish parents from Galway, dancing to Jose Feliciano's "Feliz Navidad,"
https://t.co/jXgwj8eCdp

[Buitengebieden @buitengebieden]

It is one of the best of this year..

Siblings love.. 😊

[j c jeremy hobson @jcjeremyhobson]

I've always loved the light in Joseph Farquharson's paintings - especially his winter scenes...

[Dr. Nicole LePera @Theholisticpsyc]

Social anxiety is a term for fight or flight.

A sign of a dysregulated nervous system is you're only at ease when completely alone. Being around new people triggers a fear response.

[Bantshire University @BantshireUni]

NEWS: Bantshire University axes Benny Hill theme from graduation ceremonies amid students' claims it is 'old-fashioned' and 'offensive to some'.

[Samuel West 💙💛 @exitthelemming]

If you haven’t seen this yet, don’t deny yourself the pleasure. Or the memories #ShaneMacGowan

[Royal Holloway @RoyalHolloway]

Golden hour on campus 🌞 #FeatureFriday

📷 Alex Istudor

[The Figen @TheFigen_]

Genius 😂

[VeryBritishProblems @SoVeryBritish]

Some people: “Well, we need to be there at 10am and it takes half an hour to get there so we’ll leave at 9.30am”

These people are not me. Where’s the extra half an hour for inevitable problems (or the extra 4 hours if it involves an airport)? Where’s the extra time for enjoying some peace in the car once we’ve parked? What if there’s nowhere TO park?! What if we want to stop for an emergency sausage roll?

No, we should leave at 8am.

[Royal Holloway @RoyalHolloway]

Happy #FeatureFriday! We’ve had a lot of rain on campus recently, thank you to Esther Johnson for sending us these fantastic photos of the reflections it has created 🌈

[Kernow Weather Team @KWTWeather]

🌊Why is the ocean calming.🌊

Good evening.

Many of us enjoy the seaside not just to spend time with family and friends, but to sometimes sit, think and watch the waves lash the shore. Whether the sea is rough or calm, watching the ocean can actually change our brain wave frequency, this in turn makes us feel like we're in some kind of meditive peaceful state. The colour blue is supposed to have a calming and peaceful affect on the brain, whilst listening to the sound of the waves naturally relaxes the brain, as the parasympathetic nervous system is activated. Acoustic camouflage, have you ever heard of this, this is the a sound that actually drowns out other noises around you.

If you don't swim in the sea, go for a paddle, the ocean is linked to other feel good hormones that of dopamine and oxytocin.

Sea air is good for you to, it helps the body to absorb more oxygen and naturally increases levels of serotonin. Now I have to admit, after being on the beach even for a short while I always feel good, but I never knew it had that affect on the brain.

I hope you enjoyed this little snippet of information.

Kind regards,
Penny,
KWT
#Sea #health #ocean #beach #seaside #Cornwall #kernow.

[Tim Vine @RealTimVine]

My grasp of basic economics is really flimsy. Can someone start by answering this question- Why does printing money cause inflation? (And p.s. can you remind me again what inflation is. It just means high prices across the board right?)

[Cian McCarthy @arealmofwonder]

"It's dark because you are trying too hard. Lightly child, lightly. Learn to do everything lightly. Yes, feel lightly even though you're feeling deeply. Just lightly let things happen and lightly cope with them."
~ Aldous Huxley

[Berkshire Live @berkshire_live]

All should be on your list of places to visit this summer
https://t.co/0kYmgEdLtF