Lindsey Johnson Edwards

PhD student. Seminary grad. Wife to Ethan. Rare disease patient + advocate. Occasional writer. President of my dog’s fan club.

[Lindsey Johnson Edwards @edwards_linds]

@s_seglenieks I chose to take Hebrew for my foreign language requirement in college because I wanted to learn to translate my favorite psalms.

LOL.

I had no clue what I was getting myself into, but I’m so glad I was naive and optimistic enough to begin my Hebrew journey.

[Lindsey Johnson Edwards @edwards_linds]

@RareDiseaseDad I feel this deeply.

[Lindsey Johnson Edwards @edwards_linds]

@FellipeDoVale1 Eeeeek!!!!! So exciting!

[Lindsey Johnson Edwards @edwards_linds]

@JacksonWoosley YAY YAY YAY!!!! I’m so excited! Seriously, let me know when you want to zoom/FaceTime/pen pal about it!

[Lindsey Johnson Edwards @edwards_linds]

@katarmstrong1

[Lindsey Johnson Edwards @edwards_linds]

@kyl16cox KYLE. This little bitty thread had a big ole impact on me. Thank you.

[Lindsey Johnson Edwards @edwards_linds]

@KranzRob 👏🏼👏🏼👏🏼

[Lindsey Johnson Edwards @edwards_linds]

@FellipeDoVale1 Hochschild’s book was one of my favorite reads last fall! What a stellar lineup!

[Lindsey Johnson Edwards @edwards_linds]

@AftrTheShock Certainly!

[Lindsey Johnson Edwards @edwards_linds]

When I was in the hospital last week, I needed a new IV.

As the IV access guy walked in, he introduced himself. Then I saw his face and quickly said, “You’ve stuck me before (many times).”

He immediately replied, “Oh my gosh, kid. I think about that day in the ER all the time.”

[Lindsey Johnson Edwards @edwards_linds]

@AftrTheShock I’d love to chat with you sometime! Yeah, I went to seminary thinking I’d spend the rest of my life studying Hebrew and the OT. But as my disease progressed, my academic interests started to shift. I couldn’t avoid questions about quality of life care and ethics.

[Lindsey Johnson Edwards @edwards_linds]

@RareDiseaseDad @_allstripes @OnceUponAGene @Purrfectly_Rare @SarcoidosisofLI @Kenz_Chronicles @MandySellars36 @Cleverlychangin @thisisjmx Thanks so much for bringing up the guilt factor involved in trying to get the care you need. It’s always helpful for me to know that I’m not the only one that’s struggled with guilt, so thank you for being honest about that. It makes me feel less isolated.

[Lindsey Johnson Edwards @edwards_linds]

@_allstripes @OnceUponAGene @RareDiseaseDad @Purrfectly_Rare @SarcoidosisofLI @Kenz_Chronicles @MandySellars36 @Cleverlychangin @thisisjmx I grew up traveling from Sherman, TX to Boston, MA for surgical care. When I wasn’t in Boston, I was in Dallas.

Even when they built a Children’s hospital closer to my childhood home, I still had to go to Dallas because of the level of care I needed.

So I moved to Dallas.

[Lindsey Johnson Edwards @edwards_linds]

@AaronBrianDavis This makes me feel allllllll the feels.

[Lindsey Johnson Edwards @edwards_linds]

@themattiemae Y E S

[Lindsey Johnson Edwards @edwards_linds]

@RareBeacon @CLOVESSyndrome @GoPI3Ks

[Lindsey Johnson Edwards @edwards_linds]

@JacksonWoosley I think you’ll really love her work, especially her reflections on suffering and flourishing!

[Lindsey Johnson Edwards @edwards_linds]

@JacksonWoosley Have you read Stump’s chapter on the Eucharist in ‘Atonement?’ If not, I think you’d really appreciate her insights. It was one of the most edifying chapters for me personally, not just academically.

[Lindsey Johnson Edwards @edwards_linds]

@CurtisWayneJr @MadisonPierce She really is remarkable.

[Lindsey Johnson Edwards @edwards_linds]

@TheKateBoyd @laniewalkup SAME, GIRL. I didn’t know a whole lot about it beforehand, so I wasn’t prepared to feel all the feels and be both broken and healed all at once.