Tony Collier BEM

Living with incurable prostate cancer and doing my best to make sure as few men as possible end up like me. Read my blog

[Tony Collier BEM @ethansgrumps]

@GarrethAspinall @PintsBeauty Nice pint for sure

[Tony Collier BEM @ethansgrumps]

@drdavidbull Only sensible thing I think I’ve ever seen you tweet. 100% agree!

[Tony Collier BEM @ethansgrumps]

@Nina95544940449 @drlukeevans All men are included in the TRANSFORM trial!

[Tony Collier BEM @ethansgrumps]

@Ritsunf6v @drlukeevans I’ve come across men of all colours being refused testing by some GP’s but I’ve got no idea why you think white men are turned away from testing for prostate cancer because of their skin colour

[Tony Collier BEM @ethansgrumps]

@FreeNationTalk @drlukeevans Phase 2 of the trial was already scheduled to invite over 300,000 men, predominantly white men!

[Tony Collier BEM @ethansgrumps]

@AngeKnox64 @TheChristieNHS Their admin was truly awful back then. It’s better now thankfully but still not great

[Tony Collier BEM @ethansgrumps]

@SmartAsDaddy @DHSCgovuk @jamesmurray_ldn I hate to be cynical but it feels like we are just being left to die

[Tony Collier BEM @ethansgrumps]

@AngeKnox64 @TheChristieNHS I sat at the treatment centre for 5 hours once for a 1 hour treatment 🤦 it really can be hell

[Tony Collier BEM @ethansgrumps]

@valhumphreys51 Many HCP’s incl urologists think there should be targeted screening

[Tony Collier BEM @ethansgrumps]

@whippletom @dannybo75414644 The TRANSFORM trial promises interim output in 2 years. NSC promised to consider it. If it’s not enough then we face a 10 year wait for full data and 5 years to implement and that means another 180,000 deaths. I’m not positive of seeing population screening in my lifetime!

[Tony Collier BEM @ethansgrumps]

@whippletom @dannybo75414644 The problem with opportunistic testing is that it exacerbates already huge health care inequalities created by socioeconomic deprivation as I touch on in this article https://t.co/ftFXnzSSsO

[Tony Collier BEM @ethansgrumps]

@whippletom @dannybo75414644 Yes of course anyone over 50 has a right to request a PSA test. They may still face push back from some GP’s and we need to do something about that. Yes family history is a challenge but there are plans to improve that. In any event the new funding won’t start until phase 2, 2029

[Tony Collier BEM @ethansgrumps]

@LaindonFEMINIST @suelily123 I’d like him deported

[Tony Collier BEM @ethansgrumps]

@nlfm_game @Inter_Alty1977 @altrinchamfc

[Tony Collier BEM @ethansgrumps]

@whippletom Also worth highlighting that the trial was already scheduled to recruit over 300,000, predominantly, white men

[Tony Collier BEM @ethansgrumps]

@whippletom @dannybo75414644 Men with a family history at even greater risk than black men but excluded

[Tony Collier BEM @ethansgrumps]

@Toby_Jugs @jamesmurray_ldn @Vinc_Ev_ NSC decision based on flawed modelling and poor data https://t.co/ftFXnzSSsO

[Tony Collier BEM @ethansgrumps]

@Claire54783043 @jamesmurray_ldn They are also significantly harder to test, investigate and treat