Top Tweets for #2018GGsummit
#StoryInMedicine @LeviGersh the boys absolutely loved their shirts! Thank you @GlobalGenes for a truly amazing experience at #2018GGSummit
@RarePOV @GlobalGenes #2019GGSummit is sure coming up fast. Seems like just a year ago we were learning and enjoying networking with other advocates at #2018GGSummit 😊
In the #Ataxia #patient group cupboard we came accross the #USB stick from @GlobalGenes #2018GGsummit wow what a coincidence for #2019ggsummit on #ThrowbackThursday
It's #ThursdayThoughts for #ThrowbackThursday as we sort the #Ataxia #patient group #charity goody cupboard
and Looky what we found 👏👏 from #2018GGsummit @GlobalGenes
We are ready for #2019ggsummit
#CareAboutRare
#RareDisease
#AllInThisTogether
#RareSpecialPowers
#dazzle4rare
Looking in on #DataDIY brings good memories from attending #2018ggsummit in #Irvine
Looking forward to @GlobalGenes #2019ggsummit #raredisease #PatientAdvocacy >AT
cc @AarskogSyndrome
#2018GGSummit social media ambassador @lbdeck continues to raise awareness of Moyamoya, her #raredisease, + advocate for heart & stroke health https://t.co/tARd9ZIam1 "That I'm able to share something positive helps people to see the possibilities."
Proud #TeamAtaxia #TîmAtaxia for that #FridayFeeling to be #Rare Foundation Alliance members @GlobalGenes #2018ggsummit
Plus part of the #Global #raredisease Leaders
#2019ggsummit
#Ataxia #2019AAC
Proud that #TeamAtaxia #TîmAtaxia to continuing to be #Rare Foundation Alliance members @GlobalGenes #2018ggsummit
Plus part of the #Global #raredisease Leaders
#2019ggsummit
Proud #TeamAtaxia #TîmAtaxia for that #FridayFeeling to be #Rare Foundation Alliance members @GlobalGenes #2018ggsummit
Plus part of the #Global #raredisease Leaders
#2019ggsummit
Congratulations to our friend @KristinSmedley on the publication of her book #ThrivingBlind! We were glad Kristin joined us as a speaker at #2018GGSummit in a breakout session on living with a life-altering #raredisease. #CareAboutRare
#ThrivingBlind debuts as #1 New Release on @amazon!
Thriving Blind: Stories of Real People Succeeding Without SIght by Kristin Sm... https://t.co/0HMjoZueGX via @amazon #blindness #specialneeds #disability
@UnphasedLtd I am optimistic after hearing Allison Moore of @CMTNeuropathy & Scott Schliebner of @PRAHSciences highlight applications of new technology revolutionizing the type of data that can be collected when studying a #raredisease at #2018ggsummit https://t.co/maJLDAM5q1
@FoGenomics YES !
had a fun with these at @GlobalGenes #2018ggsummit
@PatientWorthy
#RAREDISEASE
cc @WalesGenePark
#genomicsfest
Stats 4 kicks!
In 2018 #raredisease was my most used # - 90 times
#Patient #Pain close 2nd
I tweeted @Globalgenes - 176 times. I might be a stalker?
@KFS_Freedom - 109 times
#2018GGSummit 48 times
And #safariLIVE - 39 times @WildEarth - 47 times I do have other interests?
Dear .@TheEllenShow we've been trying to get @NeenaNizar and #TheAdamBoys on your show for the last 355 days so that they can advocate more passionately for #Jansens and #rarediseases
*Day 355* @americanmothers @RDWB13 #2018GGSummit #CareAboutRare
Will you help us?
I signed up to #ThriveforRare at #2018GGSummit. We can accomplish more by working together and these ideals are fully aligned with those of @RareAdvocacy.
Watch the #2018GGSummit video at https://t.co/3JlbpTX7Ei to learn more about THRIVE, a collaborative effort to engage, embrace & drive change in the #raredisease community. Sign up to support THRIVE as an individual or rare organization at https://t.co/uDi0j5C9Aq. #ThriveforRare
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