Top Tweets for #APCDG
Find out about the new user-friendly website to showcase practical signposting for the CDG community:
https://t.co/MQWOMM2dbz
Website: https://t.co/C1GUEqhfuc
@worldCDG
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
Fiona Waddell knows first-hand how a rare disorder can monopolise your life and leave you incessantly searching for answers. Read her story here: https://t.co/pe10dvnHRq
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
As a united voice for people living with CDG, @worldCDG has launched a new website to showcase practical signposting for the CDG community.
https://t.co/MQWOMM2dbz
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
Professor Eva Morava-Kozicz, scientific researcher, discusses how she is splitting her time between research and clinical care to improve the lives of CDG families around the world.
https://t.co/4MrjCnkaB3
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
Founder of multiple CDG organisations, Vanessa Ferreira discusses her role in driving people-centric research as a scientist and family member to an individual living with CDG.
https://t.co/rQiwHcLlQv
#CDGResearch #CDGAwareness #CDGCommunity
#APCDG #StandUnited4CDG @worldCDG
Ann and Steve, parents to Emmett who was diagnosed with PIGA-CDG, discuss their on-going global research journey searching for a treatment for the rare disease.
https://t.co/UuZWbj1VGa
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
Ann and Steve, parents to Emmett who was diagnosed with PIGA-CDG, discuss their on-going global research journey searching for a treatment for the rare disease.
https://t.co/jvp6tpeD7A
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG @worldCDG
Ann and Steve, parents to Emmett who was diagnosed with PIGA-CDG, discuss their on-going global research journey searching for a treatment for the rare disease.
https://t.co/jvp6tpeD7A
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG @worldCDG
Located in different parts of the world, Mandy Pinheiro and Mariana Esquinca share similar concerns, challenges and goals as carers for their children with different CDG types.
https://t.co/b1KnJapZW8
#CDGResearch #CDGAwareness #CDGCommunity #APCDG #StandUnited4CDG
Located in different parts of the world, Mandy Pinheiro and Mariana Esquinca share similar concerns, challenges and goals as carers for their children with different CDG types.
https://t.co/jgjy5XeNNK
#CDGResearch #CDGAwareness #CDGCommunity #APCDG #StandUnited4CDG @worldCDG
Located in different parts of the world, Mandy Pinheiro and Mariana Esquinca share similar concerns, challenges and goals as carers for their children with different CDG types.
https://t.co/jgjy5XeNNK
#CDGResearch #CDGAwareness #CDGCommunity #APCDG #StandUnited4CDG @worldCDG
Journalist Fiona Waddell shares her long journey to a CDG diagnosis and her vast contribution to past and present CDG research. Open here: https://t.co/pe10dvnHRq
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
Professor Jaak Jaeken, the scientist who published the very first clinical description of PMM2-CDG in 1980, provides an overview of the discovery and complexity of CDG.
https://t.co/1SIYU7KCVc
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG @worldCDG
Stepping into the spotlight soon - #CDG. We are proud to be working in partnership with @worldCDG and the CDG community on this upcoming #DigitalSpotlight #ComingSoon.
@CDGCAREorg @MexicoCdg @UK_CDG
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
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