Top Tweets for #CDGAWARENESS
#CDGAwareness Day. Science in #RareDisease is urgent, personal, and deeply human. In studying Congenital Disorders of Glycosylation (CDG), we decode biology, fight for diagnosis, push treatments forward, and learn from families.
Read more: https://t.co/4t8ZwsCTgP
Almost 9 years ago our little firecracker was diagnosed at the age of 3 with a rare genetic condition called CDG Type 2 - today is World CDG Awareness Day and to celebrate we will be going green ๐๐. #worldcdgday #cdgawareness @CDGCAREorg
@OGdukeneurosurg It is affected in #PMM2-#CDG, so kids with this rare genetic disease know itโs role intimately. @FrontierCDG #CDGAwareness
Today is #WorldCDGDay, and we are raising awareness for #CDGresearch. We #StandUnited4CDG and are committed to developing new #PMM2CDG therapies to improve the quality of life for people with this #raredisease.
Learn more: https://t.co/joI7LgC2r8
#CDGawareness #rarediseases
Happy CDG Awareness Day!
Let's come together to raise awareness & #StandUnited4CDG !
#WorldCDGDay #raredisease #CDGAwareness #CDGGoGreen
Happy CDG Awareness Day!
May 16th is World CDG Day & Prof. Jaak Jaeken's bday who discovered CDG in 1980. Let's come together to raise awareness & #StandUnited4CDG !
#WorldCDGDay #CDGHub #raredisease #CDGAwareness
Tomorrow is #WorldCDGDay! Are you ready?๐
There are so many ways in which you can join us in these world awareness celebrations.
๐Paint the World Green
๐Get your photo framed with #CDGAwareness here: https://t.co/3Rdi3bdTEy
๐Get active, get creative #StandUnited4CDG!
World CDG Day - May 16 is approaching!๐
Sharing information is an effective way to make your local community learn about CDG.
More #CDGAwareness means more interest, and ultimately, more advances towards treatments and therapies!๐
#WorldCDGDay #StandUnited4CDG #CDGGoGreen
FOR ME CDG AWARENESS IS โฆ
We challenge you to share with us what is for you #CDGAWARENESS and why it is so important for the people who live with CDG, their families and caregivers.
๐Letโs raise awareness around the world together! ๐
#WorldCDGDay #StandUnited4CDG #CDGGoGreen
Just 2 weeks to GO!๐
Itโs time for you to join us by framing your photo, following us on social media, like our posts and share with the world.๐
๐Letโs help people who live with CDG, their families and caregivers by spreading #CDGAWARENESS.
Discover the #WorldCDGDay and raise #CDGAwareness!๐
๐ Follow, like and share our #WorldCDGDay posts;
๐ Use the campaign hashtags when you post too:
#WorldCDGDay #StandUnited4CDG #CDGGoGreen;
๐ Frame your profile picture here: https://t.co/3Rdi3bvv38
Help us raise #CDGAwareness like never before! ๐
Follow, like, and share our posts dedicated to May 16th World CDG Awareness Day, and invite your friends!
We thank you for your Support!
#WorldCDGDay #StandUnited4CDG #CDGGoGreen
Find out about the new user-friendly website to showcase practical signposting for the CDG community:
https://t.co/MQWOMM2dbz
Website: https://t.co/C1GUEqhfuc
@worldCDG
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
''We realised that we are stronger together and we needed to be one voice. Even though there are different CDG types, we all experience a lot of the same signs and symptoms. And so, we stood united.'' Andrea Miller
https://t.co/p96awWNjEa
@CDGCAREorg
#CDGResearch #CDGAwareness
Tanto Mandy como Mariana tuvieron embarazos sanos con sus hijos menores sin seรฑales de advertencia para sospechar que algo iba a estar mal con sus bebรฉs. Conoce el impacto que tiene un diagnรณstico de #CDG en una familia en este artรญculo โฌ๏ธ #EnfermedadesRaras #cdgawareness
Both Mandy and Mariana had healthy pregnancies with their youngest sons with no warning signs to suspect anything was going to be wrong with their babies. Find out the impact a CDG diagnosis has on a family:
https://t.co/jgjy5XeNNK
#CDGResearch #CDGAwareness
Both Mandy and Mariana had healthy pregnancies with their youngest sons with no warning signs to suspect anything was going to be wrong with their babies. Find out the impact a CDG diagnosis has on a family:
https://t.co/jgjy5XeNNK
#CDGResearch #CDGAwareness
Fiona Waddell knows first-hand how a rare disorder can monopolise your life and leave you incessantly searching for answers. Read her story here: https://t.co/pe10dvnHRq
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
As a united voice for people living with CDG, @worldCDG has launched a new website to showcase practical signposting for the CDG community.
https://t.co/MQWOMM2dbz
#CDGResearch #CDGAwareness #CDGCommunity #WCDGO #APCDG #StandUnited4CDG
Glycomineโs Natural History Study Informs Potentially Lifesaving Update to Standard of Care for PMM2-CDG Patients
https://t.co/IAhtv0IXnk
#PMM2CDG #glycosylation #glycoprotein #glycans #glycosylated #CDG #CDGresearch #CDGawareness #rarediseases #raredisease #glycoresearch
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