Top Tweets for #CDGCare
๐CDG Initiatives
FCDGC is a consortium focused on conducting research for integrated #CDGCare. Led by Dr. Morava, #FCDGC joins patient associations, clinicians, and scientists to lead #CDGResearch, trials, and develop treatments ๐งช
More at https://t.co/veDbaLxRXl
Excited for the start of 11th annual #rarediseaseday2020 and 3rd biennial #CDG Family conference @SBPdiscovery with @NicoleEngelhar5 @FreezeHud @emoravakozicz #FCDGC #CDGCARE #glycotime
#CDGCommunity #CDGAwareness #2018GGSummit #CDGCARE๐ Thank you @ataxiaandme 4 sharing! @UK_CDG @cdgsindrome @AmourFund @VJsapps @lilladybughugs @SArduimBrasil @GlobalGenes
Do you have a patient with a Congenital Disorder of Glycosylation? Please stop by #ACMGMtg17 booth 435 to learn more about #cdg & #cdgcare !
2 #NGLY1 moms observing #WorldCDGDay2016 at @US_FDA and @NIH on behalf of @ngly1org & #CDGcare. #CDG #RareDisease
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