Top Tweets for #CFDAD
In our upcoming #CFMasterClass series, you'll hear from incredible #CFDad Joel Hersch.
Joel is raising three kids; his 21-year-old daughter, Shayna, has #cysticfibrosis. He speaks on his journey as a #CFparent, including raising his kids as a single dad.
#cfcommunity
The CF Master Class is coming soon. You'll meet Pete Odland.
@OdlandPete Pete adopted Dylan, and discovered he had CF. As a CF Dad he has so much to share with you! #cfdad #CFMasterClass #CF Sharon's son Valentino has CF. She shares all she's doing to advocate. #CFMom
Thanks to Joe Bonnell for doing a CF Dad podcast! He's Laura Bonnell's husband, and Dad to Molly and Emily! Woo Jose Bonnell! #cfdadadvice #CFDAD #CYSTICFIBROSIS
To finish our week of sharing #CFDads Advice, we're happy to share an extra special message!
Joe Bonnell has two adult daughters with #cysticfibrosis, and he likes to stay under the social media radar. But for his wife Laura, he agreed to be a part of the dads' advice brigade!
Cystic Fibrosis doesn't come with a manual, it's comes with a DAD who never GIVES UP 🧿
#cfdad #cysticfibrosis #CFAwarenessMonth #cflife #CysticFibrosisFamily #CysticFibrosisIndia
I am working hard to manage finances so dat I can arrange all his medicines on time without any delay,his health is my first priority i'm doing my best to keep him healthy & happy,
sometimes i feel like I'm mentally exhausted,but his smiles makes me strong💜 .1/2
The way he enjoys every second of his life motivates me 💜
I will do everything that makes you smile VIHAAN 💜🥰 .2/2
#vihaan #medicaldaddy #cfdad #CFAwarenessMonth #cysticfibrosis #CysticFibrosisIndia #cysticfibrosisfoundation #cysticfibrosisfighter #cysticfibrosisfamily
@G17Esiason And yet, when Trikafta came out the US had it first. Canada still doesn't really have access, although it is getting better :( #CFdad
Hey @Manulife, any chance #Trikafta #DIN02517140 will be covered soon? This stuff WORKS! @OTIP_Insurance #cysticfibrosis @VertexPharma @CFCanada #CFDad🙏
I am blown away! Today we got a letter of intent (which means intention to publicly cover) #orkambi and #kalydeco and finally got @GovCanHealth approval for #trikafta #happydance #cfdad #abouttime @VertexPharma #sohappy
@PattyHajdu Not #COVID19 related. Would love to know when the #cysticfibrosis drug #trikafta will be approved for 12+? @GovCanHealth has been at it for 12+ mnths and 🤐🤐 yet the @US_FDA approved in less than 3 months and recently expanded it for kids 6+ #waiting #cfdad #cdnpoli
I am a #cfdad and I really valued reading @JacobCFGetLoud’s story and hope you will too. Please give it a read. There is no reason Canada should be this far behind when it comes to #cysticfibrosis and #medicines to support better outcomes https://t.co/4nqILiPSCp
Our letter to the @OAG_BVG requesting an investigation into the @PMPRB_CEPMB for their attempt to target, marginalize & de-legitimize patient groups in Canada. @JustinTrudeau & @PattyHajdu, this is an abuse of authority and inappropriate use of taxpayer funds. #cdnpoli #cdnhealth
Blue Caboose stands with those who are inspired by children with CF
#cf #bluecaboose4cf #bc4cf #cfparent #cfmom #cfdad #cysticfibrosisawareness #cfsupport
In honor of #RareDiseaseDay, MassBio President & CEO @BobCoughlin discusses his journey as a #CFdad, the path to "buying a cure" & the work ahead to find a treatment for the millions of #RareDisease #patients still waiting. Read more via @MediaplanetUSA https://t.co/ruTctR4bCs
Each month we host a dinner for Parents of Children with Cystic Fibrosis to help create a supportive community! We had a lovely February Dinner #cfparents #cfawareness #cfmom #cfdad #bc4cf #cysticfibrosis
New drug appears to slow effects of #cysticfibrosis, offering hope to long-suffering patients. Thank you to all who donate to the @CF_Foundation! Your generous gifts make this possible for the CF community.
#cffamily #cfdad #cfawareness
https://t.co/LvFOGEzuVP
@WordsWFriends @garthbrooks Would he be willing to come to Wichita KS on May 19th and 20th to be at our charity event raising money to find a cure for Cystic Fibrosis? My son has CF and we need awareness! #cfdad
Would you consider making a donation to the @CF_Foundation in honor of my girls on this #GivingTuesday? Give today @ https://t.co/ommQBqdt47.
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#drurydarlings #cfawareness #cfdad
This #CFdad had a blast today at @CFF_STL #GreatStrides. I amazed that almost $250,000 was raised at this walk. Way to go STL!
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