Top Tweets for #CFParents
Only a CF parent knows the value of even the tiniest wish. For Vihaan, we do everything we can to make his wishes come true ❤️.
#VihaansLifeWithCysticFibrosis
#65roses
#CysticFibrosis
#CFParents
His Wish Fullfilled 🥹❤️
masth enjoy chesadu movie ❤️❤️
*All good and safe 🥰
#TheyCallHimOG
#VlovesPawanKalyan
Excited for our event Saturday! OMG! Night of Hope Gala! Speakers are @OdlandPete #cesarHernandez #HeatherTrammel #GraceBooth and #JulieMcAffrey #CFParents! #dylanmortimer artwork just cause it’s so gorgeous and was at NACFC!
#CFCommunity #CFParents #CysticFibrosis #CFCarers
If like us, you're still numb at the uncertainty of what the recent news means for your little ones future. I want you to know you can reach out to me, my wife and my family, to talk.
You're not alone and we will fight together.
Some fights don’t give you the choice if you will fight them or not. I know I face my own struggles daily but I can’t imagine how my wife does it with the momma aspect on top of it. It’s been a learning process in how to help & support each other through the struggles #cfparents
Our #CFMasterClass series is out NOW! #CFparents tell emotional stories of raising children with #CF.
@PeteOdland's 26-year-old son, Dylan, was adopted and lives with #cysticfibrosis.
Hear his story at https://t.co/cixTsWBG4X!
Made possible w/ support from @CF_Foundation.
CF Parents, highly recommend this podcast. So much helpful info to help us understand and improve our journey as CF parents. Thank you @LauraTbonnell for this fabulous informative podcast with Dr Heather Walter.
#cysticfibrosis #cfmoms #cfparents #ptsdchronicillness
A new and wonderful podcast out today! PTSD and CF parents. Meet Heather:
https://t.co/xihzRL6AlX... .
Podcast here: https://t.co/dpQkgCVigs #cysticfibrosis #cf #ptsd
Each month we host a dinner for Parents of Children with Cystic Fibrosis to help create a supportive community! We had a lovely February Dinner #cfparents #cfawareness #cfmom #cfdad #bc4cf #cysticfibrosis
#CFParents when will I come to terms with the fact my baby has Cystic Fibrosis? 7 months have passed and it still upsets me every single day 💔 when will it get easier? #CF #CysticFibrosis
"Three moments from my daughter’s first weeks are imprinted on my heart forever..." Laura Spiegel, Mother and CF Warrior @her_color
Read More:
https://t.co/n24Kf9Xshk
#cfmom #cfparents #curecf #cysticfibrosis #cfwarrior #cfwarriorproject
When @peter100percent hijacks your phone. #NACFC antics. #CFParents play hard but work harder at finding the cure.
@orlatinsley @rte A powerful watch last night Orla. Thankful 4 the awareness a Programme like that brings to the cf community. ur positivity is incredible in light of what u faced. No 1 deserved it more. ur parents are incredible. Hope my son has the positivity u have in the future 💜 #cfparents
@VertexPharma Thank you!
#orkambinow #orkambi #cysticfibrosis #cfparents #cflife #fucf #fuckcf
And hooray that it will be finally listed on the pbs in Australia! 🖤🖤🖤🖤🖤🖤
@Carolin98033090 @VarnalsVintage @MattHancock #CFparents are awesome. Finding silver linings (and creon gellules) in unexpected places. 💪 Keep positive. The better days are ahead.
#OrkambiNow #pipelinedeal #cysticfibrosis
@BecGullo @GregHuntMP Definitely hear your pain. Constant worry and not a day off. Mental torture. #CFParents are with you x
When everyone is #AllIn for cystic fibrosis...tomorrows happen! @CullariGlobal @VertexPharma #CFparents #BreathOfLifeGala
@smelis73 so proud to follow in your footsteps! Thanks for showing #cfparents the way! @CF_Foundation
Stanley-Ray Jeffery 💛 new blog post coming today! #cfbaby #cfparents #cysticfibrosis #cf… https://t.co/xIYA01UtI2
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