Top Tweets for #CFprobs
With 15 minutes left I can officially say that for the 2nd time ever (2013) I have done a full calendar year without needing to be admitted into the hospital #CFprobs #cysticfibrosis
You know you have CF when you baste your chicken with a syringe.. ๐๐๐ #cfprobs #cflife #cysticfibrosis
Why do I always eat so much.. ๐๐ So full but will probably be snacking again in an hour ๐๐ #cfprobs
How can we do this all again, I'm literally heartbroken.. Just as I'm building up my business again and feeling a bit more confident in getting my life back.. Its all gone to ๐ฉ
So sad rn #pissoffcovid #cfprobs
Feeling grateful.. Had a pretty shit start to the week with a bleed in my lung&needing reassurance I didn't have corona.. Spent the week relaxing, reading and finding mindful inspiration online..
I feel empowered and motivated to move forward ๐
#cysticfibrosis #cfprobs #isolife
When you have to take your Symkevi with fat, so order a milkshake that has 1000 calories ๐ฑ๐ฑ how is that possible?!! It was so rich I couldn't even finish it all #cfprobs #symkevi #fatfatfat #hardrockcafe #lasvegas
Today I started Symkevi ๐คฉ๐คฉ the first day of the rest of my life..
Its surreal to think what a difference these could make to me ๐ #cysticfibrosis #lifesavingdrugs #cfaware #cfprobs #symkevinow #trikaftanext #surreal
When you actually work up a sweat at the gym and end up just covered in salt #cfprobs
I envy people who can just pack a bag and go away for the weekend instead of lugging a case full of medical related shit. If youโve messaged me, Iโll get back to you.. itโs been a really busy/hectic week ๐ด #cfprobs
Trying to find a patch of skin on my body where my pump or Dexcom (CGM) hasn't been in the last 3 days so I can put one there now #impossible #cfprobs #jephprobz
Parking decks are not good for pulmonary patients. Having to do PFTs after walking through smoke from rude smokers and exhaust fumes from vehicles is not ideal. ๐#curecf #cfprobs #cysticfibrosis
The scale gave me a number I didn't want so I kicked it until it raised the number...good news gained some weight guys :D #cfprobs
Defo not a total win.. did escape IV's, to be re-evaluated in a week ๐ฌ and can continue to eat without going on a January diet.. (woop) but now on extra orals and steroids so totally annoying #cysticfibrosis #cfprobs #newyear #newstart #feelingpositive #letsgo
When your shoulder flexibility is trash but you still get that shit over your head. ๐คท๐ผโโ๏ธ #cfprobs #retiredathleteprobs #mypoorshoulders
I donโt even have to say my name at Walgreens the pharmacy tech and I are buds. I just walk up they immediately say โhey miss Taylor! We got three for ya today!โ #cfprobs
Showering with oxygen is definitely one of the most bizarre things #NotAFan #CysticFibrosis #CfProbs #CFirl #CureCF
When doctors tell you to get admitted so people can take care of you, when in reality I take better care of myself at home & now Iโm in a place where they donโt draw labs on time, withhold/ delay treatment, & I have to micromanage everyone & everything to get what I need #CfProbs
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