Top Tweets for #ECDAwarenessWeek
We're excited to share a Seattle Conference session with Kevin O’Brien! In this talk, he identifies strategies to address pain and fatigue in the treatment of ECD and coping techniques. To view his talk and more, click below!
https://t.co/aXpMGCEKxC
#ECDGA #ECDAwarenessWeek
In honor of #ECDAwarenessWeek here are some things #neurologists should know about this rare disease. You may be thinking this is medical oncology, why me? Even for general neuro, there are many high yield points. Come along, it is pointless to RECIST (thank you James Earl Jones)
Sharing info about ECD is a powerful way to raise awareness and educate those unfamiliar with this rare condition. These efforts demystify the disease, highlight the challenges, and emphasize the importance of early diagnosis and research #ECDGA #ECDAwarenessWeek #MoveForECD
Sharing personal experiences, challenges, and successes, strengthens the ECD community and fosters a deeper understanding of the disease. This empowers patients to advocate for themselves by knowing they're not alone in this. #ECDGA #ECDAwarenessWeek
We are thrilled to see everyone’s enthusiasm during ECD Awareness Week! So whether you’re running, walking, rolling, or participating in other ECD-related activities, we want to see! Just be sure to use the hashtag #ECDAwarenessWeek and tag us!
Dr. Eli Diamond and Dr. Francesco Pegararo had an amazing talk at our Seattle conference on the impact of ECD on the body’s organ systems and what symptoms should be reported. To view their talk and more, click below. #MoveForECD #ECDGA #ECDAwarenessWeek https://t.co/yoohFOjQZE
Sharing info about ECD is a powerful way to raise awareness and educate those unfamiliar with this rare condition. These efforts demystify the disease, highlight the challenges, and emphasize the importance of early diagnosis and research #ECDGA #ECDAwarenessWeek #MoveForECD
It's day 2 of #ECDAwarenessWeek! Today we're going to share some facts that you can share, as well as give out some info about the #ECD Fun Run/Walk/Roll #ECDGA #MoveForECD
As #ECDawarenessWeek comes to a close, we need to continue spreading the word! Keep telling your story to the world, they will listen! Together we can make a difference! #ENDecd #Awareness #TogetherWeCan
#ENDECD Awareness Week is right around the corner! Stock up on your Erdheim-Chester Disease Gear! Many options are available for t-shirts, hoodies, baseball T-shirts and long-sleeved shirts. Order at https://t.co/pW2gW2aHuF to make sure you can show it off for #ECDAwarenessWeek
Youssef Elbanna, Medical Student @ the Edward Via College of Osteopathic Medicine (VCOM) & Demi Neely, Physician Liaison at Beauregard Health System do a little more research into Erdheim-Chester disease this #ECDAwarenessWeek. TY to our local supporters! @DeRidderCity
Awareness is improving! Doctors are becoming more familiar with #ErdheimChesterDisease, not only because of the ECD Global Alliance, but because of YOU! Keep educating others about ECD! @IJuvianee @NIHClinicalCntr @NIH #endECD #ECDAwarenessWeek
Newest @MayoClinic article is out in time for #ECDAwarenessWeek! @AHazimMD : "...The absence of knee bone involvement should not dismiss the possibility of a diagnosis of ECD.” TY @GauravGoyalMD @AAcosta_MedMD @GordonRuan @JithmaA @aravindranmd et al! https://t.co/rPRx7AJMWd
We are kicking ECD Awareness Week w The Importance of Early Detection. @GauravGoyalMD w UAB talks about diagnosing #ErdheimChester disease patients as early as possible. Please help spread the word this #ECDAwarenessWeek by sharing! #endECD https://t.co/pV4Q5HpXUe
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