Top Tweets for #HADDS
Over the last seven years, Hannah and her son were diagnosed with two rare genetic conditions: HADDS and AUTS2.
In her interview, Hannah discusses the importance of, and need for, increased awareness.
Read Hannah's story: https://t.co/JeaW6j0tCR
#RareDisease #AUTS2 #HADDS
Wonderful sharing our discoveries in #ataxia, #cerebellum, #autism, #HADDS w/ @UWNeurology! Many thanks to amazing @GustJuliane for the invite, Dr. Thabele & UW Neuro for an exciting conversation on #rarediseases, #neurotherapeutics. @TCHResearchNews @bcmgenetics @bcm_neurosci
The bridge will be lit in teal and navy for HADDS Awareness Month. https://t.co/7bxNPQQLE4 #HADDS #HADDSRARE #HADDSLOVE #HADDSAwareness #EBF3HADDS @HADDSFoundation #yeg #LightTheBridge
February is Rare Disease Awareness & HADDS Awareness month! Disease affecting <1 in 2000 people is considered rare, but >300 million people have a rare disease. Grateful to work w/ the #HADDS & other communities. @HADDSFoundation @TCHResearchNews @bcmgenetics @bcm_neurosci
Thank you to all HADDS in Motion 2022 participants, donors and supporters! Our 141 participants from 11 teams walked, ran, biked and stepped 5.259 miles/ 8.464 km and raised U$20.937,00! #HADDSinMotion #HADDS #EBF3
Children with EBF3-#HADDS, a rare neurological disorder discovered in 2016 by researchers at the #DuncanNRI @TexasChildrens @bcmhouston, meet others from around the world https://t.co/F0J4CEgA5M via @houstonchron #RareDisease @HTChaoLab @mfwangler @UDNconnect @TCHResearchNews
Grateful to @TexasChildrens for sharing our #EBF3 discovery w/ predictive algorithms for diagnosis+prognosis in #HADDS+#10q26del syndromes on @doximity. Amazing team of scientists+collaborators led by Cole Deisseroth! @VCLerma @mfwangler @ChristinaMagyar https://t.co/a3cg9kVxSE
Love this man! Just did another ‘Willow Talks’ podcast - looking back on the SCG test and looking forward to Tassie! @triplemcricket @listnrau #hadds @charliewhite___ @liamjflanagan #crew
Willow Talk - done and dusted - wrap of Adelaide and preview Boxing Day. Grab it on @LiSTNRau @ljflannas #hadds @charliewhite_15
Our @TNTurnerLab paper on coding and noncoding variants in EBF3 is now out in Human Genomics! https://t.co/dgNcMdRGmJ #genomics #genetics #enhancers #autism #HADDS @WashUGenetics
[#Handicap]🧑🦼
🎥 C’est la Journée internationale des #maladiesrares. L’occasion de rencontrer Maxime, 7 ans, atteint de la maladie de #Hadds qui affecte les fonctions du corps.
🦮 Le petit garçon fait beaucoup de progrès grâce à Noisette !
+ d’infos : https://t.co/O5j0M4hWKq
I just published a thing wot I wrote on Medium. It feels dead grown-up. #swan #bsfa #amwriting #specialneedsparent #ctbp1 #hadds @swan_uk https://t.co/J1T5nEPmmP
We've always had each other's back! 👯♂️
#TheSiddlelakes #TeamMates #Hadds #BestMates 🏏 https://t.co/1TurgdAcdk
Hasan Ali has been bowling really well. He gets another near miss at the start off his second over as #Hadds plays and misses. @thePSLt20
Just Love #Watto #Hadds in Shalwar Kameez.They look soo Handsome..Love u so much @ShaneRwatson33.#PSL2017 #OpeningCeremony
Aware of the "Consumer Demand" 4 @MSCintheUK 'Sustainable' #CornishHAKE @Ajax_Hake NOW rtn's for MonAmMkt #pollack #Hadds @ThroughTheGaps
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