Top Tweets for #HarvardMECFS
If anyone wants to support my neuroimaging work, the best and most direct way is to do so here:
https://t.co/ZTluFPteKt
I've fundraised every dime of all the ME/CFS work I've ever done. Please don't donate if you are on disability or struggling.
#HarvardMECFS
Saying goodbye to Eeleen, a first-year medical student who spent the past 2 months visiting us from Australia
#VagabondLab
#HarvardMECFS
@KingsDClinPsy It’s so weird. Ingram isn’t one I remember from
#MECFS18
#MECFS19
#IIMEC12 13 14
#HarvardMECFS
#MECFSatNIH19
#mecfsconference
I must have forgotten about this researcher. I’ll go back and check...
@guardian Adding my voice here now I have one
1) I’m not an activist I’m a patient last well in 1993 diagnosed in 1999 not helped by any NHS intervention.
2) Why does this keep appearing if Sharpe has left the field?
3) #IIMEC13 #HarvardMECFS #MECFSatNIH19 #mecfsconference #mecfs19
@BShuell Good qn I don't know answer to. Davis said they used normal blood glucose monitors, which I assume only measure circ levels? In which case, it may include both? @exceedhergrasp1 may know better. @JanetDafoe would love to hear more from Ron on glucose findings! #HarvardMECFS #pwME
@OpenMedF @MassMECFS I hope so! All of us have lost far too many years to this devastating illness. And some have lost their lives. #pwME #MillionsMissing #HarvardMECFS
@minadjenkins @MEActNet Glad to hear! 😊 I hate having to wait for video recordings and have so appreciated live-tweeters of previous #MEcfs conferences, so am happy to contribute myself. And feel so lucky that there is now an @OpenMedF center and events like this here in Boston! #HarvardMECFS
Detailed thread from @claudiamcarrera about @DrMaureenHanson’s presentation on immune dysregulation in #pwme at OMF's Harvard ME/CFS Collaboration Public Symposium yesterday.
#HarvardMECFS
#MECFS #MyalgicE
Before Xiao came Maureen Hanson on findings of immune dysregulation in #MECFS and ongoing studies / next steps. Apologies for blurry slide pics in this thread! Started w/ background on T cells, focus of recent study. #HarvardMECFS #pwME #Immunology
In this thread, @claudiamcarrera , who did a brilliant job of live-tweeting from #HarvardMECFS yesterday, talks about the effects of pushing beyond her usual limits and her own story of learning to understand how #MECFS affected her life. Thanks, Claudia!
#pwme #MyalgicE
Phew, finally done (partly live!) tweeting the fantastic inaugural @OpenMedF #HarvardMECFS Collaboration public symposium. Thank you to @exceedhergrasp1 of @MEActNet for the opportunity, and to all #pwME and allies who have read, shared, and commented! #MEcfs #MyalgicE
Glad to have been able to share the #HarvardMECFS event prior to video release, esp w/ home- and bed-bound #pwME well enough to follow along but not attend confs. Recommend still watching videos if you can! Lots I left out. Then can return here to continue discussion :) #MEcfs
Phew, finally done (partly live!) tweeting the fantastic inaugural @OpenMedF #HarvardMECFS Collaboration public symposium. Thank you to @exceedhergrasp1 of @MEActNet for the opportunity, and to all #pwME and allies who have read, shared, and commented! #MEcfs #MyalgicE
@BiomedicsMECFS Hola please find the unroll here: Thread by @claudiamcarrera: "Now up: Dr. Ron Davis on OMF projects. Started w/ severe patient study. Focused on observation-- necessary BEFORE hypoth […]" #harvardmecfs #pwme https://t.co/WwL8HSllI6
Enjoy :) 🤖
Thank you so much @claudiamcarrera for live tweeting from #HarvardMECFS.
Great thread on Ron Davis' talk and check her profile for more from other scientists making headway in #MyalgicE research.
Now up: Dr. Ron Davis on OMF projects. Started w/ severe patient study. Focused on observation-- necessary BEFORE hypothesis generation, tho no NIH funding for it. #harvardmecfs #pwme
Note: Ended up filling some gaps by referencing recently published @MBVanElzakker review article. Would love if others present can correct any mistakes and/or add details from presentation! @FlowingUnder @CeciarceCarrera #HarvardMECFS #pwME #mecfs
Prelim results: No clear markers of increased neuroinflam so far, but markers of increased brain #hypoxia (eg Gln & Glu) detected in #pwME in #PEM, which may lead to neuroinflam. Missed explanation of 1st 2 slides- sorry! Watch coming recording for details. #HarvardMECFS #MEcfs
Activation of #microglia affects outgoing #vagus fn, resulting in effects characteristic of #MEcfs. Central element (#autonomic dysfunction) measurable via invasive #CPET methodology developed by Dr. David Systrom at BWH. #HarvardMECFS #pwME
"Neuroinflammation" proxy for activation of #microglia (brain immune cells). Activation prompts shape change & release of "-kine" molecules prompting further activation and proliferation along glial networks. May remain sensitized, w/ large rxn to small signal #HarvardMECFS #pwME
Name #MyalgicE, coined back in 1955 (missed some great slides on this history!), cited CNS inflammation as central to condition based on CSF abnormalities. Borne out in recent imaging studies. But that terminology is imprecise. #HarvardMECFS #pwME #MEcfs
#Vagus nerve detects markers of periph immune activation (eg local cytokines) & sends incoming signals to CNS, triggering sickness response (eg fever) via "mirror response" (immune activ w/in blood-brain barrier) measurable w/ PET scans (detecting TSPO) #HarvardMECFS #pwME #MEcfs
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