Marian

Disabled HCW 34yrs w ME/CFS. Long Vax 2yrs. Love flowers, photography, sunshine, films, Sci-Fi, & historical novels. Gr8ful 4 social media, streaming Mask up!

[Marian @msknits]

Um that was supposed to include My Fair Lady! Forgot to include the name of the show. Duh! It was in my head but not on the page!

[Marian @msknits]

@SethRudetsky They did record both the original London and Broadway casts. Lots of the same actors. And it was back in the 1950s.

[Kelly @broadwaybabyto]

Immediately after withdrawing from the WHO, Trump stops CDC, FDA & NIH from giving public health updates.

“The CDC was scheduled to publish several MMWR reports this week, including 3 about H5N1 outbreak, according to federal health official who spoke on condition of anonymity”

[Dr. Lucky Tran @luckytran]

The censorship begins: According to officials, the Trump administration is instructing health agencies including the CDC, FDA, NIH, and HHS to pause all external communications, such as health advisories, weekly scientific reports, updates to websites and social media posts.

[Marian @msknits]

@SethRudetsky Antithesis? If it was just two words, one would be the antonym of the other.

[Solve ME/CFS Initiative @PlzSolveCFS]

We’re in the final stretch of our year-end matching challenge, and all gifts made by midnight tonight will be matched dollar-for-dollar up to $200,000.
https://t.co/GFeCICVVEu

[Tatiana Prowell, MD @tmprowell]

President Jimmy Carter died today at age 100, having lived w/ melanoma that had spread to his brain & liver for >9y. I grew up in GA admiring him, so as an oncologist, I’d like to honor his life by teaching you a bit. #melsm #MedTwitter

First, the ⚠️ signs (ABCDE 👇) & pics

/1

[Marian @msknits]

@BottsieHicks I hear you. My brother lives in another state. He’s getting married this spring. I have major doubts whether I’ll be able to attend. I’m really too ill to travel. Have missed so many family gatherings. It breaks my heart over & over. Yet @NIH doesn’t take #MECFS seriously.

[Marian @msknits]

@ValerieJay16 Once upon a time, hospital acquired infections were something that all medical facilities worked hard to avoid. I believe statistics used to be collected and could affect a hospital’s rating. Current situation is horrible & inexcusable! #CovidIsntOver #COVIDisAirborne #Maskswork

[Marian @msknits]

@LizMEActGA @NIH @NINDSdirector @PlzSolveCFS @MEActNet This makes me so sad & angry. I’ve had disabling #MECFS for 34 years. Mostly homebound last few years. So much suffering 4 all #pwME. Yet we’re ignored, minimal research funding. How much would be available 4 treatment & prevention if serious research had been done all this time?

[Marian @msknits]

@loofymectin @danaparish I’ve wondered about that possibility. Glad you brought it up.

[Marian @msknits]

@danaparish What about those of us with long vax. Yes, it’s a real thing. Developed it after bivalent shot 2 yrs ago. Made already disabling ME/CFS much worse. Hasn’t improved. Now homebound. We need help!

[Marian @msknits]

@julierehmeyer Done! Thanks for posting about this vital issue!

[Marian @msknits]

@danaparish @Bryce_Nickels @Lymenews @BayAreaLyme @alisonannyoung @LewsView @FoxNews @60Minutes @PutrinoLab @DrJBhattacharya @marybethpf Thank you for this excellent interview. And for all your work and support of the patient community. You make a tremendous difference.

[Marian @msknits]

@Kerbrech @danaparish @Bryce_Nickels @Lymenews @BayAreaLyme @60Minutes @PutrinoLab @DrJBhattacharya @marybethpf Long vax since bivalent vaccine 10/22, on top of decades of disabling ME. Makes perfect sense that the spike protein is a problem, whether it’s from C19 or vaccine itself. Powerful video. So frustrating there’s still no treatment for ME, long Covid, long vax. So much suffering.

[Marian @msknits]

@luckytran I am so worried about where these unsound policies will lead this country. We will all be the victims. 😱😡

[Marian @msknits]

@58bugeye This is terrifying. This man is completely wrong and has absolutely no qualifications that would make him a good candidate for this job! His plans are dangerous for public health & for future medical research. Medical dark ages.

[Marian @msknits]

@JanetDafoe I’m so sorry, Janet. And I see Ron has it too. That’s the last thing that either of you need. I hope Paxlovid works well for both of you & that you have a rapid & full recovery. 💕🙏🏻

[Marian @msknits]

@Kirstycfsmelife Disabled by ME for decades. Pfizer bivalent 2 yrs ago gave me long vax. ME is significantly worse now. Have a feeling there’s not much I can do abt it. I’d love to be wrong but I think not.

[Marian @msknits]

@1goodtern I’ve been masking the entire time and will continue to mask to protect myself and others. N95.