Top Tweets for #LayDown4CF
Here’s my countdown thank you tweet @blakeydark @MattHancock. Yesterday it was a year to the day since our community #LayDown4CF to remember those passed & raise awareness of our fight. Who’d have thought a year latter we’d have our meds 😊 we can’t thank you enough.

Tears in my eyes again for beautiful Isobelle and her amazing family. @eabibb has been an on line friend for years now, we’ve supported each other through difficult times and we finally got to meet and hug in July at our #laydown4cf and bonus I got to meet Pops too!
@BBCSounds Isabelle has #CysticFibrosis and has just been given access to a life-extending drug for the first time.
She wants to thank these people. 👇
🎧Listen via @BBCSounds
Yup - that’s me!!! @Daily_Express won’t give up until there is #Cysticfibrosis drugs justice in the UK. #orkambinow #dailyexpresscrusade4cf @VertexPharma #lifesavingdrugsnow @NICEComms @MattHancock #laydown4cf @NHSEngland @MotherhoodvsCF

@g_maynard @ChrisMRiches Hope he has the staying power of a Duracell bunny, will need it!! Thanks to @ChrisMRiches & you & all ay @Daily_Express for the coverage you give our fight for #LifeSavingDrugsNow
#cysticfibrosis
-After our #LayDown4CF events last week in london Almac & Gurnsey, the idea has caught on elsewhere Let’s keep going Anyone Anywhere can #LayDown4CF until we get #LifeSavingDrugs4CF #OrkambiNow
#interimDealNow pls @MattHancock @VertexPharma @NHSEngland @ChrisMRiches @cftrust

Great to see the #LayDown4CF making the front page of the @GuernseyPress #Guernsey #CFAwareness #CFAware #LifeSavingCFDrugsNow #cysticfibrosis #GuernseyPress

Yes massive thanks to @KerryMP @johnmcdonnellMP @Thelma_WalkerMP @scullyp and other MPs including Andrew Griffiths and Col Bob Stewart for their support of #laydown4CF #orkambiNow event last Thursday by Parliament. @MotherhoodvsCF @VertexPharma @MattHancock @Daily_Express
Why I took part in #laydown4cf we have a 3 year old with #cysticfibrosis he has struggled with pseudomonas since he was 10 months he’s currently in hospital

I couldn't #LayDown4CF because for one I'd struggle to get back up and well laying flat puts me at risk of choking on the mucus that blocks up my airways. These are only a couple of #cysticfibrosisproblems
Thank you @johnmcdonnellMP for supporting the #cysticFibrosis community yesterday at #laydown4cf. If @UKLabour win the next general election, will you make #LifeSavingDrugs4CF available on NHS?
Our politics may differ slightly, but hugely grateful to @johnmcdonnellMP for his support for #LifeSavingDrugsNow #LayDown4CF

Zoey Jones is fighting for her young daughter and others with cystic fibrosis: https://t.co/8NOIDRx09p
@CheshireLive /@strawfie Thanks for organising this local coverage. And to the amazing @DrRaviJ too. @cftrust @NickMedhurst @Noramag @lbeswickcft @DavidRamCFT @Alidilly @ChrisMRiches #LifeSavingDrugs4CF #LayDown4CF #OrkambiNow @MattHancock @VertexPharma @NHSEngland @NHSEnglandNMD @NICEComms
We had a visit from a member of the House of Lords yesterday and I Don’t think they were “impressed” by you in fact one word they did say whilst looking at the sea of yellow was “Shameful” #LifeSavingDrugs4CF #LayDown4CF

#cysticfibrosis Yellow demo to make MPs’ listen to sufferers’ plight
https://t.co/9X6FAzRtOO

https://t.co/PufkrJg1LU
#cysticfibrosis #LayDown4CF #lifeSavingDrugsNow #OrkambiNow #SymkeviNow #FridayFeeling

Well @MattHancock such a shame you didn’t come and lay down in the square yesterday. One visiting member from the House of Lords was Very moved and simply said “It’s Shameful”, and that Mr Hancock is exacty what it is 😞 #Laydown4CF #interimaccess

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