Top Tweets for #LeadInHealth
@Daily_Express @lilyk_w @MattHancock @PKUFamily Absolutely agree @lilyk_w - very well put. Let’s remember @BorisJohnson’s promise to us all, we all pay in so that those who need medicines, get the very best. #LeadInHealth Not just those under 18. #AgeDescrimination
@JaneWaite19 This is amazing! 💛❤️💜 So pleased to see this - well done Daz, and Thank You @VertexPharma. Imagine the possibilities for the future. #AllIn4CF @MattHancock @BorisJohnson Let’s get this done! #cysticfibrosis #LeadInHealth
.@BorisJohnson @MattHancock - please remember your commitment to those with #CysticFibrosis -real life stories like Michelle’s are why we must provide #Trikafta4CF. We are living #Covid19 terror *each & every day*. Change is in your power. #LetThemLive #Prevention #LeadInHealth
.@MattHancock @blakeydark @NHSEngland - every eligible #CysticFibrosis patient needs access to this medicine urgently. #LetThemLive #Trikafta4CF #LeadInHealth
@MattHancock “...live better longer lives as soon as possible” -every CF parents dream. 💛Thank you Matt for sticking to your commitment to patients in the UK w/ #CysticFibrosis. This deal would give thousands like @myCFHero a future, where she can reach her potential. Thank you #LeadInHealth
I think they will fund it -they have very publically committed to doing so. The question is how long will they make people suffer for before doing so? Will they & @VertexPharma work together to avoid the mistakes of the past 4 yrs & #LeadInHealth for patients in the UK #Trikafta
@myCFHero @BorisJohnson @MattHancock He'll do nothing of the sort but he'll bluster.He's a liar . When the sleeping majority wakes up it will realise they closed their eyes & were duped
@MattHancock When you kiss your kids goodnight, please think of ours; their lives depend on you. #LetThemLive? Please act with the utmost urgency; things can change so devastatingly, so rapidly, at any moment. #LifeSavingMeds4CF #DoTheRightThing #MattsTheMan #LeadInHealth
@MattHancock You realise it’s actually NOT there for children & young people born with life limiting #CysticFibrosis - medicines have been commercially avail for 4 yrs & yet you allow them to suffer & decline. Other countries provide access yet you claim to #LeadInHealth!! #LifeSavingMeds4CF
@GreatStrides65 @Alidilly @MattHancock @BorisJohnson @scotgov @NicolaSturgeon Absolutely agree! Will England fail in providing life saving medicines for children? @BorisJohnson? @MattHancock? #CysticFibrosis #LeadInHealth #HighQualityHealthcareForAll
@MattHancock Will you see that children born with life limiting illness #CysticFibrosis get access to medicines to keep them ALIVE @MattHancock? Last yr half who died were under 30, yet European peers have access to meds that add 23 yrs & better quality of life? #LetsMoveForward #LeadInHealth
Will @MattHancock & @BorisJohnson get access to #LifeSavingDrugs4CF - so that #GreatBritain can #LeadInHealth? It’s outrageous that these medicines have been available for so long & yet patients are being denied help! #DoTheRightThing #CysticFibrosis @Daily_Express
Will @BorisJohnson save innocent children’s lives??? #NewPM #NewUk #LeadInHealth #NHS #CysticFibrosis worlds 2nd largest patient group #GreatBritain #LifeSavingMeds4CF @ChrisMRiches
We’ve written to new PM @BorisJohnson @10DowningStreet to ask him to break the deadlock on access to #lifesavingdrugsnow. People with #cysticfibrosis and their families like @Elizabe46045399’s deserve better https://t.co/5bBfjhsRbC
Listen to @EamonnHolmes #DoTheRightThing - let children with #CysticFibrosis live. UK needs #OrkambiNow #LifeSavingMeds4CF @MattHancock let’s #LeadInHealth #EveryDayMatters #NotBornToDie
Eamonn Holmes begs for life-changing cystic fibrosis drug to be free on NHS during #ThisMorning interview with Jenny Agutter
https://t.co/mCy0v7CC1u
@thismorning @lbeswickcft @4JennyAgutter Thank you @thismorning for featuring #CysticFibrosis again today - we urgently need medicines for children born with this life limiting disease - how can other countries provide access - yet UK do not? #LeadInHealth? @MattHancock @VertexPharma please, #LetThemBreath #LivePast30
Save thousand of innocent children’s lives - the UK urgently needs access to #LifeSavingDrugs4CF like #OrkambiNow .@MattHancock we need you to #LeadInHealth #InterimAccess #EveryDayMatters
.@MattHancock @theresa_may -will you leave our children without life saving Medicine #OrkambiNow -will they be left alone to fight for their lives? Or will the UK stand up &take care of those with #CysticFibrosis? We have the 2nd largest patient group in the world! #LeadInHealth?
Every day, people living with #cysticfibrosis do their treatments multiple times a day to stay healthy. You are not alone! #CFawareness
@emmagadie2009 @UK4Europe @Conservatives Where attendance was high and all agreed that a deal was needed, and urgently! Delays are costing lives and irreversible lung damage- lets get this done and move forward for #GreatBritain #LeadInHealth? #CysticFibrosis #OrkambiNow
@MattHancock @DavidRamCFT @cftrust @IanAustinMP @lbeswickcft Our children’s lives are in your hands @MattHancock Please think of them when you kiss yours goodnight. Make #OrkambiNow available for those with #CysticFibrosis & give them all many more, & better, tomorrows. #BasicHope #Breathe #LivePast30
#MedicinesExistToHelp #LeadInHealth
@JoshLJ24 @theresa_may @CFwarriorsUK @NPbespoke @10DowningStreet Congratulations @JoshLJ24 👍 Well deserved! 🤩 👏Hoping that @theresa_may is able to progress the dire situation with lack of access to medicines so that all our #CFFamily can live our their full potential #CFWarriors #SaveCFLives #PrecisionMeds4CF #LeadInHealth #DoTheRightThing
@EdwardJDavey Are you able to attend this important debate tomorrow - if @VertexPharma won’t engage, we cannot let our children sit & suffer? This medicine could add 23yrs to her life 💔#Agonising #CysticFibrosis #OrkambiNow #Prevention #LeadInHealth
Very disappointed that @VertexPharma are refusing to submit life saving medicine #OrkambiNow to NICE & @NHSEngland for review despite being assured higher reimbursement can be achieved. Now we need to see @MattHancock take action to #Prevent our children dying unnecessarily #Lead
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