Top Tweets for #MEnotCFS
I have been missing from life since 2000. So many #PwME are just existing, not living.
It is a much misunderstood, cruel, often mocked illness.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek #MEnotCFS
Today,May 12th, is International ME Awareness Day & Fibromyalgia Awareness Day. These are cruel,misunderstood,often mocked conditionsππ
#MENotCFS #PwME #MEawarenessDay #BelieveME #StillTheSaME #MillionsMissing #FibroAwarenessDay
https://t.co/RMciux6PbE https://t.co/MgwZPnKkQG
Address βnon-existentβ severe ME care or risk further deaths, UK health minister told | ME / Chronic fatigue syndrome | The Guardian
#SevereME #BelieveME #MEnotCFS #PwME #MyalgicE https://t.co/91jFAoVx0I
Leeds long Covid sufferer's call for better support - BBC News
If only ME/Post viral illnesses were investigated,believed,researched more pre-Covidπ
So many are just stuck,over 24 yrs for meπ
#ThereforME #MEnotCFS #MylagicE #SevereME #LongCovid #PwME https://t.co/FtzmkAOBBQ
#MEawarenessDay #MEawarenessWeek
#MEawarenessMonth #MEnotCFS #WorldMEday
#GlobalVoiceForME π
ME is a global health crisis...
I have been suffering with ME for over 24 years. It has stolen any chance of life I had(I was 14 when diagnosed). The way #PwME are treated is a scandal!
I was 14, always been pretty badly affected but, now 36 & have been fully housebound for over 2.5 years. Today marks #MEawarenessDay The first #WorldMEday
#MillionsMissing #JustOneWish #MeawarenessWeek #MEnotCFS #PwME #BelieveME #LearnFromME #May12th
1/2 ME Awareness Week 2022 - Question 2.
What age were you diagnosed (ie. 20's, 30's, 40's 50's etc) and how long has it been impacting on your daily life?
ME/CFS is a long-term, multi-system disease that can have a devastating impact on functional ability and quality of life.
May is #MEawarenessMonth & today marks the start of #MEawarenessWeek
I became ill in 2000, aged 14 but, probβ had it longer.
lβm now 36 & been fully
housebound for over 2.5 yrs.
ME is often mocked, misunderstood & belittled.
Often we exist not live,it ruins lives π
#MEnotCFS
May is #MEawarenessMonth π
I became ill in 2000 (when I was 14) but, have probably had it longer.
l am now 36 & have been fully
housebound for over 2.5 years.
ME is often mocked, misunderstood & belittled but, it ruins lives. Often we exist not liveπ
#MillionsMissing #MEnotCFS
Chronic fatigue guidelines scrap exercise therapy advice - BBC News
βChronic Fatigue guidelinesβ ππππππ€―
I know there are research projects & I sound negative but, Weβre never gonna get help for PwME are weπ΅βπ«π΅βπ«π
#PwME #MEnotCFS #MyalgicE https://t.co/6ZgayO0DGL
@Petra_ikhebME_ @MECFS_Stuttgart @StenHelmfrid @Official_CS27 Oh, I agree!! Iβm all for #ICC4ME, although many in this country are against it (including patients).
Which is why we must continue to speak out.
#EndTheStigma #StopTheHarm #MEnotCFS
What the irrational, self-serving BPS lobby fail to acknowledge is acute/severe ME=feeling so ill you think you will die @sjmnotes #MEnotcfs
Trusting a Dr after many yrs with #MEnotcfs is hard so it's easier to not say anything, be strong and learn knowledge is power. #MEwarrior
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