Top Tweets for #MeasureMECFS
@pausedME It's why I push so hard for the need for #MECFS diagnostic biomarkers.
We need to be able to objectively measure what is happening in the beginning, during the remissions, during the relapses, the treatment responses.
So we can #MeasureMECFS.
All of it.
Dr. Daniel Missailidis is molecular cell biologist fighting hard for #MECFS patients to have a diagnostic blood test.
If you live near Victoria, Australia and can help him with his studies, please do. #MeasureMECFS
Still just a tad short on our ME/CFS participant target - please help get us across the line so that our immunometabolic and gut study can have the maximum power possible!
Radically Rest for #MECFS
Fund a #MECFS diagnostic blood test
#MeasureMECFS
https://t.co/wCORN6vN7i
(Annesley, S et al, 2024, Cell Press)
@GarethBStreeter @TinaRodwell1 @Severe_ME Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
Follow the Biomedical Science
*1 recognized
Objective marker
(2-DayCPET)
*4 diagnostic blood tests in development
#MeasureMECFS
https://t.co/wc2hXIveI7
#Myalgicencephalomyelitis/chronic fatigue syndrome (ME/CFS) Awareness Day
Has 1 objective marker and 4 diagnostic blood tests in development
Maybe what you think you know about ME/CFS is wrong...
May 12th #MeasureMECFS
@thephysicsgirl #MECFS has 1 recognized objective marker (the 2-Day CPET) and there are 4 diagnostic blood tests in development- MicroRNAs, Raman spectroscopy, Electrical Impedance and a new one out of Australia. There are clinical trials using biomarkers now.
Hold on. #MeasureMECFS
The key to#treatLongCovid is diagnostic biomarkers for each subtype- this legislation needs to reflect that for #LongCovidMoonshot to succeed.
If the NIH had funded the Nanoneedle - which could measure 1/2 #LongCovid 100% accuracy where would we be? @SenSanders #MeasureMECFS
We are thrilled about @SenSanders' proposed legislation for a #LongCovid moonshot of a mandatory $10b in research funding!
Please see our joint press release with @LCMoonshot here: https://t.co/gmbdv0b0xx
"Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Has Eleven Validated MicroRNAs
and “Altered Effort Preference”
ain’t one!"
https://t.co/WLr92ov0C1
#MeasureMECFS #MECFS #MillionsMissing
@RorPreston @AaronCa11 I think if we started advertising how #MECFS and #LongCovid could be potentially measured- that if we say that- instead of "it's real"- it could change the conversation entirely. Because that's the message people go home with- it can be measured. #MeasureMECFS #MeasureLongCovid
I am of the opinion that Rebellion is finding a billboard near Oxford University where Michael Sharpe drives or walks every day that says "1 objective marker (2-Day CPET) 4 diagnostic blood tests in development. #MeasureMECFS - then a link to the Annesleys, Sarah et al paper
Important point by @Huisarts_Vink in his rebuttal of the Oslo Consortium: When the Cognitive Model for #MECFS was developed, the authors themselves pointed out that observations must be confirmed by objective data. Now, when the shoe doesn’t fit, they dismiss objective data!
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