Top Tweets for #MyPIStory
World PI Week 2022 - My physician and I
#MyPhysicianAndI #IPOPI #PrimaryImmunodeficiencies #Immunology #Healthcare
#WorldPIWeek, #AccesstoCareMatters #MyPIStory
Learn more about life with a #primaryimmunodeficiency, and find out how to get involved in #WorldPIWeek 2022!
https://t.co/xz7amUE7iQ
#MyPIStory
Hear the stories of Lucy and Thieu, who live with a #primaryimmunodeficiency, as a way to start #WorldPIWeek! #MyPIStory
What's it like to live with PID❓
🎥I Lucy (6y) and Thieu (10y) tell their story; the good and sad moments. What do you want to share about #livingwithPID? 🙋♀️ Let’s make a story like the one of Lucy and Thieu but for every patient 🤗 https://t.co/WoP0eDXWpg
#WorldPIWeek
Eduardo shares his story of living with a #primaryimmunodeficiency.
Thank you @FundacionPide for supporting #MyPIstory and contributing to our campaign explaining why #AccesstoCareMatters, in the lead up to #WorldPIWeek!
Conoce la situación de Eduardo Cajamarca de 10 años, paciente con Inmunodeficiencia Primaria. Te invitamos a informarte más en la Semana de concientización de las IDPS del 22 al 29 de Abril. @IESSec @Salud_Ec
#worldpiweek #inmunodeficienciasprimarias
#WorldPIWeek 2022 is less than a month away!
To share your experience as a person living with PID, caring for someone with PIDs, or treating patients with PIDs, tag your post, photo or video with #MyPIstory
https://t.co/Xu6NdarjZc
As #WorldPIWeek 2021 ends it's important we continue to raise awareness of #PrimaryImmunodeficiency and help people #LivingWithPI get access to appropriate care. Thanks to everyone who has supported or shared their own #MyPIstory! You can find out more at https://t.co/WjGReMNIqq
Many people living with or caring for someone with WHIM Syndrome have never met someone with their same diagnosis. For #WorldPIWeek we encourage people to share their story & advice for others living with or newly diagnosed with #WHIM syndrome. https://t.co/5xpb6nLZG4 #MyPIStory
Being diagnosed can be a turning point for people with #PrimaryImmunodeficiency and better awareness of the condition could help patients like Gary be diagnosed sooner. Hear more about what life is like #LivingWithPI here: https://t.co/5TzwX35bFP @WorldPIWeek #MyPIStory
The #caring role of #PID #families is all encompassing. Juggling work, school and ongoing #medical appointments which come with a #ChronicIllness. Creating #QualityOfLife for your children is key.
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Read their story here: https://t.co/DkXoupUnIV
#WorldPIWeek #MyPIStory
Meet Kirsty, a woman who is living with #WHIM Syndrome. Watch this video to hear more about Kirsty’s journey to diagnosis, her experience connecting with other patients & her hope for a more effective treatment: https://t.co/qDGMllza9E. #WorldPIWeek #MyPIstory
#PrimaryImmunodeficiency affects everyone differently. #WorldPIWeek aims to raise awareness of PI and the importance of the right support for people #LivingWithPI. To learn more and find out how you can help, visit https://t.co/yzdyAFmdcD @WorldPIWeek #MyPIstory
This #WorldPIWeek, our #PrimaryImmunodeficiency (PI) ambassadors have created moving artworks representing their individual journeys #LivingWithPI. To hear more stories from the ambassadors and to help us raise awareness watch https://t.co/WszSoIQnqq #MyPIStory
We are excited to be supporting #WorldPIWeek again! This year @ipopi_info is focusing on the importance of protecting people #LivingWithPI and we are proud to be standing in solidarity with them. Visit https://t.co/WjGReMNIqq for more information! #MyPIstory
#WorldPIWeek is building a series to capture the lives & experiences of the #primaryimmunodeficiency community, to go live in April.
> WHO: patients, families, doctors, researchers
> HOW: send a portrait picture + a short quote
> WHEN: by 1/03
https://t.co/ImUIgNFfyT #MyPIstory
“Being diagnosed was bitter sweet as at last I had an answer but I had to accept that I’m a patient now.” Maria’s story: https://t.co/j2DZRcXtTl #MyPIstory
“I was thankfully diagnosed at the age of 58. Had another year passed without answers I would have been hospitalized or dead. Awareness will be my lifetime commitment from now on!” Read Susan’s story: https://t.co/AqUyrFRstG #MyPIstory
As a healthcare professional, how do you provide care for #primaryimmunodeficiency patients around the holidays?
**Share your story with us #MyPIstory**
https://t.co/QkD63bUKlB #PIawareness
"Having a child with a rare disease is not always easy, the uncertainty of his condition is difficult. But we know we’re not alone. We also have a great physician" Read Thieu's story: https://t.co/4E9iLevaT0 Thank you for sharing!
#MyPIstory #primaryimmunodeficiency
We are looking for quality pictures & stories of #primaryimmunodeficiency patients, families, immunologists, specialist nurses and other healthcare professionals
👉 To participate, email us or join the #MyPIstory campaign https://t.co/nKb1JTdPnL #WorldPIWeek #PIawareness
"I’ve got a better quality of life now and not getting so many infections and wished this could have been diagnosed earlier in my life, or at birth, as it has held me back so much" Tommy's story: https://t.co/GruVuy4Li7 #MyPIstory
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