Top Tweets for #NESVoid
This ⬇️ What the past 4 years has been like for me personally... and approximately 2.7+ million people around the globe who are battling #LongCovid and other.
#Covid #ME #CFS #POTS #Dysautonomia #MCAS #autoimmune #IgG #CKD #PEM #chronicillness #millionsmissing #nesvoid #mitochondria #brainfog #LongCovidAwarenessDay
The emotional state required to survive the Long Covid experience involves the unshakable belief you will be recovering while also accepting the brutal reality of where you are and how bad things are. You have to act like a prisoner of war being tortured to get through.
Anyone have advice on how to deal with diverticulitis pain until I can afford to get to the doctor? I’m eating boring food but the pain is severe. 😬#Diverticulitus #ChronicPain #NESVoid
Folks who care about #LongCovid #NESVoid #CovidIsNotOver #pwME #MECFS #DisabilityJustice:
Are you paying attention?
To what's done with your money and in your name. More death instead of any funding, wherever you are or over there, to fight the pandemic & keep anyone alive.
I have a friend who has severe MECFS and is bedroom bound but urgently needs to be seen at hospital. I’ve seen some people take medication to help pre empt or alleviate crashes in these situations, does anyone know what they are or have advice? #MEtwitter #LCtwitter #NESVoid
I went to a universal healthcare conference yesterday. Masking was not universal. There were only 2 of us masked 😔
How can you advocate for universal healthcare & not wear masks to protect yourself & those most at risk around us? #CovidIsNotOver #nesvoid
@SpicyPurritos @PTSDAdvocate @MediaClymer @dawnimatrix @KatTwisted @TSBurkhardt @Pain_Speaking @ThomasKlineMD @Irishbrat1966 @VIoletTailor @plwin49 @Bilked2TheBrink @hope411adcock @PainSteals @MistSprayer @Madeinavalon @JuliaHeath21 @Faithgirlee @GetaPetaHome @after_shook @whereshansel @MaryinKansas @kirsten_klang @sureuwanttoknow @tonigussi7 @ezmirellda @truth_uni @GeneW22614687 @WandaMoCats @Mrsyumahotrod @LondonMurray12 @CRPSisaRealPain @imemjae62 @shelley_bean60 @AngelaOBrian5 @lil23rdss @CContrarus @Merry_Hippie @ibdgirl76 @headdock @MomalaDearest @HeatherLinda11 @TLCStruggle @puppyluvr312 @AdamGentry2021 @CanadaPain @josephcarolan20 @TheFuglyFrog Doctors care NOTHING about “Doing No Harm” & now they’re getting a futile lesson as they continue to drop their patients without warning or weaning.
#PainPatientsAreNotDisposable
#StopSavingUs2Death
#GovtMandatedTorture
#NESvoid
#PainPatientsLivesMatter
#Medtwitter
We read a great interview on @thisisinsider about how a 'chronic illness resume' can help you to advocate for yourself at medical appointments.
We couldn't find a template online and so we made one that you can download free: https://t.co/3CF01PAP8s
#chronicillness #nesvoid
my knee x ray results came in, and ya'll, I got medial joint compartment narrowing. I'm fuckin 18 and have arthritis now, on top of the HSD, POTS, IBS and GERD. Life is so unfair. #NESvoid #DisabilityTwitter
#Spoonie culture is forgetting you can take additional painkillers for actual injuries, because you're so used to pain that you just? Ignore it? #nesvoid #DisabilityTwitter
Awesome how people will list & talk about examples of diversity for things: gender, sex, race, ethnicity, religion, age, sexual orientation, class, nationality etc..everything under the sun even freaking hair/eye color before they’ll mention #disability. #DisabledInSTEM #NESVoid
was supposed to be seeing someone for my eds diagnosis today and they pulled up google to find the hypermobility diagnosis after waiting months for an appointment:) why did i get seen by someone who doesn’t know enough about eds lmao #NESVoid
1) I was not going to do an end of the year post, but 2023 reminded me how long I have been living with this. Here is hopefully my final thread about some of my certain experiences in grad school as well as the academic #ableism.
#DisabledInSTEM #NESVoid #DisabilityTwitter
And no, I refuse to name the rescues. I don't want any harm to animals, and I respect their work and hope they will learn and evolve for the better someday. Thank you for listening. #rawfeeling #vent #NESVOID #KindnessMatters
question for fellow #gastroparesis sufferers. i used to order domperidone/motillum for my own gp years ago through 2 different online pharmacies but it’s been so long that i don’t have that info saved anymore, so wondering if anyone can help? #NESvoid
Does anyone have any resources for connective tissue disorders in stage managers/technicians/backstage humans? @ukbapam is great, but their hypermobility guide is tailored for musicians, dancers & vocal specialists. #NESVoid #TheatreTwitter
Ok, as a queer Marvel fan with EDS this made me tear up. Representation matters more than you think, I promise. She’s even an ambulatory wheelchair user, which is so rarely represented. #EDS #disabilityinclusion #RepresentationMatters #NESVoid
The new marvel superhero Sun Spider has the disability Ehlers Danlos Syndrome and people are annoyed, saying it's "woke" or "tick box". Disabled superheroes like Charles Xavier and Daredevil have always been around. Disability is a spectrum and it's representation should be too.
#NESVOID #disability #medicaltwitter
I am having pelvic bleeding.
July 13- August 7 I bled like a period, but unending.
Today it restarted.
I don't know what's wrong with me and my doctor can't see me until the 30th.
I am exhausted. I am scared. Help.
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