Top Tweets for #NF2AWARE
We are #NF2Aware Are You - thankyou Addenbrookes team
Join our campaign, print your poster and be #NF2Aware
Print your poster here>
https://t.co/1jnVwEo1R4
Send us a copy for our socials
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family
We are #NF2Aware Are You? thankyou Derrie who sent us this lovely picture supporting pour campaign.
Join our campaign, print your poster and be #NF2Aware
Print your poster here>
https://t.co/1jnVwEo1R4
Send us a copy for our socials
#endNF2 #NF2awareness #NF2Schwannomatosis
We are #NF2Aware Are You
Join our campaign, print your poster and be #NF2Aware
Print your poster here>
https://t.co/1jnVwEo1R4
Send us a copy for our socials
#endNF2 #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
Over to those wonderful people at the Addenbrookes NF2 clinic
We are #NF2Aware Are You
Join our campaign, print your poster and be #NF2Aware
Print your poster here>
https://t.co/EPDuEzjMa4
Send us a copy for our socials
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
The Oxford NF2 team set out to promote and educate colleagues, patients, and the public about NF2 and about the service offered in Oxford & Southwest Region for patients with NF2-Related Schwannomatosis on NF2 day on May 22nd with @NervetumoursUK & @CanYouHearUsNF2
#NF2Aware #NF2
May 22nd is World Neurofibromatosis type 2 (NF2) Day! Today in a mark of support for the NF2 community we are resharing Olivia’s story which you can find in Issue 3 of #RarityLife:
https://t.co/G2LmxN8kj2
#RareDisease #NF2awareness #NF2Aware
@nf2biosolution1
I am #NF2aware, are you? Check out the podcast from medical genetics expert Prof Gareth Evans & our PhD student @GraceGregory_ on research, treatment options, and personal stories of resilience of this lesser known condition
#NF2awarenessday
Watch here: https://t.co/JnscApz2oE
We are #NF2Aware Are You?
Join our campaign, print your poster and be #NF2Aware
Print your poster here> https://t.co/EPDuEzjMa4
Take a pic, Send us a copy!
#endNF2 #NF2awarenessday #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
Who wants to take part in our campaign? Print your poster, snap a pic and send to us! #NF2Aware
I AM #NF2Aware Are you?
Our campaign is running to NF2 Awareness Day 22nd May.
Print off the poster, snap a pic and send to us
Get EVERYONE involved.
Print poster here: https://t.co/EPDuEzjMa4
OR from website (Called Stronger Together against NF2 poster)
#endNF2 #NF2awareness
Blog 5 covers Oscar’s 4th Avastin treatment, with a sensibly scheduled same day physio appointment, to reduce time off school. More treatment lessons learned for the next time: Expect the unexpected!
Read more: https://t.co/nvm9jHc1oJ
#NF2Week #AvastinDiaries #NF2Aware #NF2
Blog 2 is all about Oscar’s first Avastin treatment session. Jo gives a step by step account of a day that will live long in the family’s memories, and then turns her thoughts to the next session: https://t.co/2Cj5aEEz0V
#AvastinDiaries #NF2Aware #NF2Week #NF2 @nf2biosolution1
Who is this lovely team?
Oh yes! ... thats our utterly fabulous NF2 team at Addenbrookes who are all #NF2Aware - thankyou all for taking part in our campaign!
Are you NF2 Aware??
#endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN
#NF2support #nf2 #nf2family #nf2warrior
We have been raising awareness throughout the month of May with our hugely successful #NF2Aware campaign and many of you have taken part both this year and last.
thankyou everyone who has taken part.
WE ARE #NF2AWARE ARE YOU?
#endNF2 #NF2awareness #neurofibromatosis type2
Have you had a read of our new blog series "THE AVASTIN DIARIES"
My name is Jo Ward, I wanted to give a truthful account of what life is like on Avastin and how its affecting us as a family
Please do have as read: https://t.co/HAG3j9Uuze
#endNF2 #NF2aware #neurofibromatosis type2
Today is NF2 Awareness Day 2023.
Follow our member @nf2biosolution1 to learn more about his rare condition and how it affects those living with the condition.
Staff at Genetic Alliance UK are #NF2Aware. Are you?
Our next journey for NF2 Awareness Day is Simons story from our blog.
Simon was diagnosed in 2013 after he fell from his bike on a summers day in July,
Have a read of his story here:
https://t.co/3tFvAxJden
#neurofibromatosis type2
#NF2support #nf2 #nf2family #nf2warrior
More of those lovely people from Addenbrookes who are all #NF2Aware Are you?
Join in our NF2 Aware campaign, print your poster -->
https://t.co/EPDuEzjMa4
and send us a pic and raise awareness about #NF2 Simple!.
#endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN #NF2Aware
Grace is #NF2Aware Are you?
Join in our NF2 Aware campaign, print your poster ->
https://t.co/EPDuEzjMa4
and send us a pic and raise awareness about #NF2 Simple!.
#endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN #NF2Aware
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
We are #NF2Aware Are you?
Join in our NF2 Aware campaign, print your poster -->
https://t.co/EPDuEzjMa4
and send us a pic and raise awareness about #NF2 Simple!.
#endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN #NF2Aware
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
The Whitlock family are #NF2Aware Are you?
Join in our NF2 Aware campaign, print your poster -->
https://t.co/EPDuEzjMa4
and send us a pic and raise awareness about #NF2 Simple!.
#endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN #NF2Aware
#NF2support #nf2 #nf2family
The Whitlock family are #NF2Aware Are you?
Join in our NF2 Aware campaign, print your poster -->
https://t.co/EPDuEzkjZC
.
and send us a pic and raise awareness about #NF2 Simple!.
#endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN #NF2Aware
#NF2support #nf2 #nf2family
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