Top Tweets for #NF2AwarenessDay
Today is #NF2AwarenessDay. I have this disease. I have tumors in both ears & on my brain. While benign they still cause problems. I’m deaf in my left ear. I have equilibrium issues. I need to have the brain tumor removed because it’s causing swelling & inflammation.
Today is NF2 Awareness Day. NF2 is a rare genetic condition that can cause tumors to grow along the nervous system, impacting hearing, balance, vision, and more. But behind every diagnosis is a person, a story, and a community that refuses to give up.
Proud to be part of these networks and collaborative movements.
.#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
#nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2prognosis #nf2research #nf2awarenessday #StrongerTogetherAgainstNF2
The #OneTeamOneOUH NF2 specialist team recently hosted a landmark event, kindly funded by Oxford Hospitals Charity, to raise awareness and build community among people affected by NF2-related Schwannomatosis. #NF2AwarenessDay
Thank you, team, for all that you do 💙
Today is World #NF2AwarenessDay
@nf2biosolution1 #NF2
#schwannoma
@nfnetwork
@NervetumoursUK
@TheBrainCharity
#Neurofibromatosis #NF
at #Ataxia #RareDisease patient charity we support the day
#StrongerTogether
Today is NF2 Awareness day. I have it. I have tumors in both ears & on the front of my brain. I’m deaf in my left ear because of it. It can be hereditary. #NF2AwarenessDay
NF2 Related Schwannomatosis is a rare genetic disorder that causes tumors to grow on nerves throughout the body, especially the brain and spine.
It can lead to:
Hearing loss
Vision problems
Balance issues
Pain, numbness, and more
On May 22, we raise awareness and take action.
NF2 BioSolutions PhD student and Trustee @GraceGregory_, represented the charity at the Cambridge Rare Disease Conference hosted by @M4RareDiseases. It was a brilliant conference designed to educate junior doctors about rare diseases.
#NF2awarenessday
I am #NF2aware, are you? Check out the podcast from medical genetics expert Prof Gareth Evans & our PhD student @GraceGregory_ on research, treatment options, and personal stories of resilience of this lesser known condition
#NF2awarenessday
Watch here: https://t.co/JnscApz2oE
We are #NF2Aware Are You?
Join our campaign, print your poster and be #NF2Aware
Print your poster here> https://t.co/EPDuEzjMa4
Take a pic, Send us a copy!
#endNF2 #NF2awarenessday #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
Today is Neurofibromatosis type 2 awareness day!
#endNF2 #NF2 #raredisease #curenf #letstalknf #nf2awarenessday #nf2journey #NF2support
22nd May is World NF2 Awareness Day and is a about spreading awareness & education about those who are living with and are affected by NF2.
Find out about what NF2 BioSolutions UK do by visiting our website:
https://t.co/ErIL2zjXsF
#endNF2 #NF2awareness #neurofibromatosis type2
Midweek knowledge! on Eye Issues today.
Remember look after your eyes!
#endNF2 #NF2awareness #neurofibromatosis type2
#NF2support #nf2 #nf2family #nf2warrior #NF2SWN #LetstalkNF2
#nf2charity #nf2cure #nf2treatment #nf2gene #nf2research #nf2awarenessday #nf2journey #raredisease
Message from Clare Goddard our charity lead.
I am #NF2Aware Are you?
Thankyou for being #NF2Aware
#endNF2
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
#nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2ismyteam #nf2awarenessday
We are celebrating all things golf today. Pete held a charity golf day in September raising £3000 and Cathy proudly nominated us as charity of the year at the Thornbury Golf Club raising £5000 over the year.
As ever we cannot do any of this without you
#endNF2 #NF2awarenessday
Look at more amazing fundraising
Together we have raised an amazing amount.
We are celebrating Hannahs walking last year
As ever we cannot do any of this without you, our supporters.
#endNF2 #NF2awarenessday
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
#nf2charity
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