Top Tweets for #NHGIST
Congratulations @sarcomapatients, @Liferaftgroup, @LRGCanada, @GISTSupportUK, @stompoutcancer and all of the global #GIST patient advocates on a successful New Horizons meeting. We are proud to stand with you in the fight against GIST! #NewHorizons #NHGIST
Dr. Neeltje Steeghs @hetAVL gaf een presentatie over o.a. plasma testen en het GALLOP project. Ze had succes bij het gehoor! #NewHorizons #GIST #NHGIST
@Deciphera excited to meet and share information with the New Horizons team in Vienna. #NewHorizons #NHGIST #SPAEN
Kathy Gram, @Deciphera’s head of patient advocacy, with Ginger Sawyer of #GIST Support International attending New Horizons conference in Vienna Sept 5-7. #NewHorizons #NHGIST #SPAEN
"GISTs need additional genetic mutations apart from the KIT mutation to help it growing"
Sebastian Bauer, Essen, Germany
#NewHorizons #GIST #NHGIST #advocacy #education #research #KITmutation
"Hope" is having friends and family by one's side - we just learned that in our session about psycho-oncology.
It's a really good thing that we are currently having a lot of friends by our sides - have a look for yourself!
#GIST #NHGIST #NewHorizons #advocacy #friendsbymyside
FOM City Chapter Leader @drnikhilsg , Trustee & Region Head @vijivenkatesh at @stompoutcancer with @sarcomapatients & @Liferaftgroup advocates at the New Horizons Meet in Vienna #GIST #NHGIST #NewHorizons #education #advocacy
Such an honour and privilege to be a part of this amazing group of GIST patients, advocates , physicians and volunteers #GIST #NHGIST #NewHorizons #education #advocacy #psychooncology #psychosocialsupport @sarcomapatients @Friends_Of_Max @drnikhilsg @stompoutcancer
Hope is not only to be healthy again . Hope is also having family and friends on my side #GIST #NHGIST #NewHorizons #education #advocacy #psychooncology #psychosocialsupport @sarcomapatients @drnikhilsg @Friends_Of_Max @stompoutcancer
"At least 50% of cancer patients suffer from stress-related symptoms or distress."
Elisabeth Andritsch, Graz
#GIST #NewHorizons #NHGIST #psychooncology #copingwithcancer #copingwithGIST
20% of all cancers are rare which means 1 in 5 patients have a rare cancer - Markus Wartenberg @sarcomapatients @Friends_Of_Max @stompoutcancer @drnikhilsg
#GIST #NHGIST #NewHorizons #education #advocacy
"Recruitment for clinical trials is very difficult in rare cancers such as the rarer subtypes of GIST."
Dr. Ramesh Bulusu, UK
#GIST #NHGIST #NewHorizons #subtype #rarecancer #wildtype #shddeficient #advocacy
"In localized GIST, D842V mutations are found in 8 % of all cases. In gastric GIST, 1 out of 5 GISTs is driven by the D842V mutation."
Patrick Schöffski @schoffski
#NHGIST #GIST #NewHorizons #advocacy #noveltherapies #research #D842V #avapritinib #DCC2618 #crenolanib
"Wild-type GIST represent approx. 15 percent of all GIST."
Jayne Bressington, @GISTSupportUK @PAWSGIST
#GIST #NHGIST #NewHorizons #advocacy #PawsGIST #paediatricGIST #wild-type
Because we have only three approved treatment options get the most of each therapy and stay in treatment , (use the therapy) for as long as possible #GIST #NHGIST #NewHorizons #education #advocacy advice from #MarkusWartenberg @sarcomapatients @stompoutcancer @Friends_Of_Max
"The most common question we get from patients about adjuvant treatment in GIST is: How long do I stay on the drug? We advise: As long as you tolerate it, stay on it until we know better."
Norman Scherzer, @Liferaftgroup
#GIST #NHGIST #NewHorizons #openissues #advocacy
"We are facing a lot of challenges in GIST. For example, patients in many countries have problems accessing proper diagnosis and treatments."
David Josephy, @LRGCanada welcoming the GIST community on behalf of the steering committee
#GIST #NHGIST #NewHorizons #advocacy
We are all set up and ready to go: NEW HORIZONS GIST is starting now and Vienna is welcoming us with beautiful sunshine!
We are looking forward two days of learing, exchange, discussion and a good time with friends!
#GIST #NHGIST #NewHorizons #education #advocacy
#NHGIST #advocacy #global #strongertogether #newhorizons @stompoutcancer @Friends_Of_Max @drnikhilsg @sarcomapatients @Liferaftgroup And yes we begin just now and as it says everywhere here at The Astoria #SartHere
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