Top Tweets for #RAVICTI
#StockInNews | Lupin: Launches authorized generic version of Ravicti (Glycerol Phenylbutyrate) Oral Liquid in the US
#Lupin #Pharma #Healthcare #Ravicti
#株式会社オーファンパシフィック は、 #尿素サイクル異常症（Urea Cycle Disorder: #UCD）に対する治療薬である #フェニル酪酸グリセロール（開発コード：HPN-100、海外販売名：#RAVICTI）の国内における医薬品製造販売承認申請を #厚生労働省 に行ったと発表しました。
https://t.co/xncDJEETSB
Vamos a comparar el EEG de hoy con el de hace unos meses para ver si ha funcionado el tratamiento de #Ravicti bajando la actividad epiléptica de su cerebro.
Queda mucho por aprender sobre la mutación del gen #SLC6A1.
#epilepsia
@SLC6A1_SPAIN @IlaeEs @FEDER_ONG
#razemporavocti campaign in Poland! Our #syngap1 community is fighting for repurposed drug treatment. Please support the cause by signing petition. @curesyngap1 #autism #epilepsy #ID #raredisease #ravicti
https://t.co/ZbgB6iYC6w
"¡¡ESCUCHA, hay una posibilidad y hay #ESPERANZA!!
(...) la financiación de #ensayoclínico y cobertura de #Ravicti (#fenilbutirato) en #Polonia es muy importante para personas con #mutaciongenética #SYNGAP1, #STXBP1, #SLC6A1, #TBC1D24, #GABA y #DNM1."
Słuchajcie jest szansa i jest nadzieja !!!! Bardzo wszystkich prosimy o podpisanie Naszej petycji w sprawie finansowania badań klinicznych i refundacji leku Ravicti w Polsce. Jest on barfzo ważny dla osób z mutacjami genetycznymi SYNGAP1, STXBP1, SLC6A1, TBC1D24, GABA i DNM1
Saylor received her 1st dose #Ravicti thanks 2 @DrZachGrinspan @WCMpeds. Leading our 1st #SYNGAP1 drug trial. Ravicti, orig. 4 urea cycle disorders, now explored in preventing seizures and helping cognition. We 😍 this opp. & remain hopeful for 🙌 outcomes! @cureSYNGAP1
Dr Mildrid Yeo describes the @UCLchildhealth experience of transitioning children with #UCD from Sodium benzoate to glycerol phenylbutyrate. #ravicti @UCDConsortium @ureacyclerm #podcast #scicomm #raredisease
Shortcast no 19:
Direct replacement of oral sodium benzoate with glycerol phenylbutyrate in children with urea cycle disorders
Soundcloud: https://t.co/fAZND45CRb
Apple: https://t.co/xtQir38V9q
Spotify: https://t.co/yPF7oTijgP
#ureacycledisorders #UCD #podcast #scicomm
New #openaccess content in #JIMDReports
Direct replacement of oral sodium benzoate with glycerol phenylbutyrate in children with urea cycle disorders
Mildrid Yeo et al
https://t.co/OIIwnF8Rrp
#ravicti #ureacycledisorders @ureacyclerm
@pop_popculture Great idea. I did see @RareDiseases post about the prohibitive pricing of #raredisease medicines. A great case study would be @HorizonNews and #Ravicti. At $720k/year for a daily drug, this is the most expensive medication in the world.
Hoping @HorizonNews will go to incredible lengths impact the #SLC6A1 Community as we begin a small trial to repurpose #Ravicti ($722k/year!)
Please Retweet
#MilestonesforMaxwell #ACureForCharlie @SLC6A1_Mom @HuffPost @OnceUponAGene
Contribuez à évaluer le #médicament #RAVICTI / extension de l’indication aux #enfants âgés de 0 à 2 mois comme #traitement #adjuvant, pour la prise en charge au long cours de #patients atteints de #troubles du cycle de l’#urée>https://t.co/CmjqAaH0xc
Pleased to share that FDA approved our #UreaCycleDisorder medicine for children 2 months of age & older. Read more: https://t.co/1dLomTTbbq
We're seeking patient input on the drug #Ravicti for the tx of Urea Cycle Disorders. For more information, visit https://t.co/9ugwXAnQKz.
We're seeking patient input on the drug #Ravicti for the tx of Urea Cycle Disorders. For more information, visit https://t.co/9ugwXAFrC7.
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