Top Tweets for #REdefineRare
As we wrap up 2023 #RareDiseaseDay, we want to thank our #SMACommunity for sharing their rare stories with their network. Together we can #RedefineRare by spreading awareness and advocating for change.
Check out this story:
https://t.co/VTF1iHyFXf https://t.co/YR04p4ftsI
Have you met our friend, Saida? She battles her diseases with grit and grace, and doesn't let anything stop her from achieving her dreams.
Watch more of Saida's story by visiting our link in bio and fill out the form to let us know how you #RedefineRare. 💙
As a platform for rare disease patients, we want to elevate your voice, your story, and your journey. Together, let's change how the world sees rare disease patients through #RedefineRare. Tomorrow morning tune into @lifetimetv at 7:30 AM ET/PT.
We would love for you to share with us why you "Care About Rare?" Or what #RareDiseaseDay means to you?
Alone we are Rare, but together we are strong!
#ShowYourGenes #RedefineRARE #InclusionIsAlwwaysIn @GlobalGenes #SanfordRare @SanfordCoRDS #GlobalGenes
How are you celebrating Rare Disease Day? Show us your rare!
#ShowYourGenes #RareDiseaseDay #RedefineRARE #CareAboutRare #SmithMagenisSynrome
It's #RareDiseaseDay, and we're seeing so many great #ShowYourGenes and #RedefineRare. Have you shared your photos or videos with us yet? #CareAboutRare #raredisease
Mayo Clinic Laboratories offers more than 500 genetic tests and biochemical assays to help our patients end their diagnostic odyssey. #CareAboutRare #RedefineRARE #RareDiseaseDay
https://t.co/qYMA8ygRFF
It's #RareDiseaseDay 🦓 today I'm thankful for a diagnosis, expert doctors, and access to treatment as seen below in a new vlog. Wishing ya'll the same ☺️ #shareyourstripes #careaboutrare #redefinerare #globalgenes #showyourstripes #cytoxan
https://t.co/mMacqnCkvA
My baby was born with massive bone growths on his legs due to Caffey disease. Read my journey from feeling traumatized and alone at birth to being a mom of a thriving nine month old: https://t.co/zPJ68vw5eT
#RedefineRARE #RedefineRARE #CareAboutRare #ShowYourGenes
@GlobalGenes
#SelteneErkrankungen können jeden treffen und brauchen mehr #Aufmerksamkeit!
Lasst uns heute am Tag der seltenen Erkrankungen gemeinsam sichtbar sein und einstehen für mehr #Unterstützung und #Forschung. #CareAboutRARE !
#RareDiseaseDay #RedefineRare
Diaper "Geneie" in a bottle.. 🤔 We're having way too much fun with this! 😅 We're still showing our jeans in @GlobalGenes #ShowYourGenes challenge! Donate $10 for the 1 in 10 affected by rare disease. Text RARE to 41444! #RareDiseaseDay #RedefineRARE #CareAboutRare
"Billie Gene".. we're still showing our jeans in @GlobalGenes #ShowYourGenes challenge raising awareness for #RARE disease day!
Donate $10 for the 1 in 10 affected by rare disease. Text RARE to 41444! #RareDiseaseDay #RedefineRARE #CareAboutRare
In addition to the challenge, the board will be also donating to the @GlobalGenes Rare Impact Fund & encourage you too as well! Text “RARE” to 41444 to donate & join the challenge now through February 28th!
#CareAboutRare #RedefineRARE #GlobalGenes #RareDiseaseDay
We are participating in @globalgenes #ShowYourGenes challenge raising awareness for #RARE disease day! You can show support by donating $10 for the 1 in 10 affected by rare disease. Text RARE to 41444!
#RareDiseaseDay #RedefineRARE
Leading up to #RareDiseaseDay, and to recognize the 1 in 10 affected by rare disease, we are asking for donations of $10 to support the Global Genes Rare Impact Fund, supporting families & orgs. battling rare diseases. Share and text “RARE” to 41444! #ShowYourGenes #RedefineRARE
I live with a rare #genetic antibody deficiency disease. My body does not make enough antibodies to fight infection normally which can lead to frequent & severe infections, organ damage & death. #ShowYourGenes #RareDiseaseDay #RedefineRARE #CareAboutRare @GlobalGenes
Virtual Gallery at Rare Disease Week - @BarbyIngle Rare Disease Patient - https://t.co/tKokwuI3dR #RareDC2022 #IamRare #CareAboutRare #RedefineRare #ShareYourGenes
Its #RareDisease Wk w Global Genes - Show you #CareAboutRare by sharing how you #REdefineRare - "#Iam unusually good or remarkable showing rare strength and sensitivity" - @BarbyIngle My Rare includes: palb2, valley fever, CPS, dystonia, hypoglycemia, gastroparesis, duplex kidney
Next week is Rare Disease Day! Follow the Bain Brain Lab this week as we #RedefineRARE!! For more events and information, check out @GlobalGenes 🌏🧬
I’m joining @GlobalGenes & #ShowYourGenes to raise awareness for #RareDiseaseDay. I nominate @TanaZwart, @BreatheBravely & @RareByDesign to join the challenge & #ShowYourGenes or donate $10 for the 1 in 10 affected by #RareDisease. Text RARE to 41444. #RedefineRARE #CareAboutRare
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