Top Tweets for #SEPTAD
Needed 2 hours of oxygen during MG crisis #MyastheniaGravis grateful to be alive. Will be needing support though on how to move forward. I very much want to stay alive xx for both myself and our community
hoping this is no longer true 🙏 thanks to all now and future doctors working on #LongCovid and the #SEPTAD !
An historic moment yesterday as we started @IcahnMountSinai's first ever course for med students about infection-associated complex chronic illness. We discussed #LongCOVID, #MECFS, chronic #Lyme and much more. Students were intrigued, inquisitive and eager for more!
We need mandatory clean air & the investment to manage it now, now, now. This is what government is for. This is infrastructure. This is public health.
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
MD school offering thoughts and prayers after a child dies from Covid. @cannonroadpta blood is on your hands.
Where are the clean air mitigations? American Rescue Plan offered grants to improve air quality in schools. You didn’t take it. This is on you
https://t.co/BTLir8KWvg
It's year 5. How much are supposed to lose merely because we were going to work, studying, running errands & visiting a doctor's office. The avg American has had 3.2 infections.
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
I got sick in Jun 2022. In Nov 2022 I sold my home. In Apr 2023 I took “medical retirement” at the ripe old age of 43.
Today I sold my car. It’s amazing (and scary) how life can be interrupted so suddenly and permanently.
#LongCovid #pwLC #LCME
This is only available from compounding pharmacies & isn't covered by insurance. From $50-75 monthly depending on dose. MANY clinicians won't prescribe it. It's year 5. Help us. #HELPLongCOVID
@SenSanders
@GOPHELP
@HELPCmteDems
#LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
Clinical Therapeutics ft. Nancy Klimas et. al: "Low-Dose Naltrexone Improves post–COVID-19 condition Symptoms"
H/T @TomKindlon
https://t.co/xRQQMiMt9y
WE DON'T HAVE TIME FOR POLITICS.
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
I have to wait 22 DAYS for the imaging to confirm a clot in my brain, then get treatment. That is absurd. If it don't make it that long, it was nice knowing you all (but I'm going to make it out of spite if nothing else, I hope). Sxs are rough tho #LongCovid #Teamclots
Mandatory clinician continuing ed now.
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
#LongCovid patients should be tested for:
– cerebral hypoperfusion
– venous oxygen saturation
– endothelial dysfunction
– autonomic dysfunction
– brain hypometabolism
– amyloid microclots
– hyperactive platelets
– mast cell activation markers
– cytokines
– functional GPCR AAbs
1/
Do you see what's happening? The average American has had 3.2 infections. The avalanche of LongCovid begins. We need to act fast.
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
My husband has seen 3 GPs this week alone, who all have Long Covid. What do we do when an impactful percentage of core workers in public sector jobs or highly specialised roles (whom we ALL rely on) get covid damage from repeat infections? Do we have a plan for this?
@JimBethell
We must have massive, coordinated investment in clean air NOW. We need a LongCovid Moonshot NOW. This is YEAR 5.
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
Every single research scientist recognizes the risk of re-infection & esp to chronically ill, disabled & other vulnerable groups. Even the CDC does. But HCWs can do whatever?
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
My husband threw out his back a couple weeks ago and was in excruciating pain. He’s well enough now to see an RMT. He just set up an appointment and requested the RMT wear a mask. The RMT just texted him and said he would not be masking and cancelled his appt. #fredericton
It's YEAR 5.
There's no more road to kick this can down.
We're all in trouble.
We need to solve LongCovid NOW.
@SenSanders
@GOPHELP
@HELPCmteDems
#HELPLongCOVID #LongCovid #MECFS #SEPTAD
@CrookedMedia
#PodSaveJon
The average German worker took TWENTY sick days last year; a new report finds that this lost productivity sent Germany into a recession.
Why are we still pretending zero COVID mitigation is good for the economy?
https://t.co/ukS7lOV1Nv
Had chance to sit in for a filming of @RuhoyMD and Dr. Kaufman’s podcast, Unravelled. I described myself as having #EDS, non-hypermobile type. I actually think a category something like this might help patients a lot.
This piece is a must-read. I truly believe connective tissue-related issues (like EDS) are going to be the key clue behind #LongCovid, and have already historically been linked to #pwME and other illnesses.
Also, this doctor is truly amazing.
https://t.co/j94Dcw8Hot
@OxMEDiscovery The links between collagen in multiple sites in the body, #hEDS & the often connected conditions #PENTAD #SEPTAD #OCTAD really need more research.
Finished assessing EDUC 490 (secondary cohort). A smaller group. Been with this crew since Term 1. They’ll have all 4 terms with me. I’m a little invested. Amazing practicum reports. Amazing self reflections and pages in their e-Portfolios. ALIGNMENT. So good. So proud. #septad
When co-planning for practicum looks like frantic 5 minute calls just to see if your manipulatives make sense 😂😂😂
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#unbced #teachereducation #classroommanipulatives #thisisunbc #septad #virtuallearning #cohortsupport #collab
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