Top Tweets for #SickleCellCrises
Living with sickle cell can feel like a group chat you never asked to join symptoms, reminders, and constant checkins. But behind every message is a warrior showing up daily. This one’s for you.❤️
#rockbottominitiative #sicklecellwarriors #sicklecellcrises #sicklecellawareness
So wonderful to see!🙌🏿 Thank you @GhanaboyPharmd for always educating and advocating for our #scklecellcommunity! It's amazing to see you 3 Drs discussing the management of acute #sicklecellcrises during #SickleCellAwarenessMonth and #PainAwarenessMonth!👏🏿👏🏿! Great!
#PAINWeek2023
It's amazing seeing all our hard work into action!! Had a great time presenting at #PAINWeek2023 on Managing acute sickle cell pain crises with @PharmD_intheED and @headdock #TwitteRx #MedTwitter
THIS! Many fellow #sicklecell Warriors have talked about getting dressed up nicely, made up with full makeup, Everything, just to go into the #ER, simply due to the inherent bias, racism & stigma that MANY of us go through when seeking treatment for our #sicklecellcrises. 😠😞
It's sad that this happens.. I know of sickle cell patients who have to do this.. Healthcare providers should be caring for patients, but the opposite happens far too often
Things like this, or I should say, #biases like these, are just some of the main reasons why so many of my fellow #SickleCellWarriors are extremely hesitant to go to the hospital and/or ER for our #sicklecellcrises & any other #SCDPain or SCD related complications we may have.😡
Yes, the unrelenting, at times daily, #SickleCellPain is 1 issue, then we have the excruciating, oftentimes triggered, VERY often unpredictable, #SickleCellCrises, but after the #pain of #SCD comes the lasting #fatigue that puts many of us out of commission 4 the rest of the day.
Heartfelt reflections from @DrShaniGray as a GP & patient with #SickleCell
Growing up feeling different
Limits as a child
Effect on maturity
Support for hidden disability
#Fear & unpredictability #SickleCellCrises
Family impact
Compassion
#RCGPPatientDiversity2021
@EAnionwu
@WarriorsClub5 I'd press #NoMoreFatigue. Why? Bc as horrific, excruciating, unpredictable & scary as #sicklecellcrises are 🥺, I've coped & dealt w/them often. But the #fatigue is a different kind of monster, @ times you're so fatigued that it just overwhelms you & that's scarier than a crisis.
#SickleCellWarrior @635x472 graciously shares some of the helpful things she does to manage her painful #SickleCellCrises at home. It's vital that we have our own at home treatments to help keep us comfortable as we wait for the #paincrisis to pass.
1 VITAL thing I said Friday, Pls take Note, #Nurses & ALL #MedProfessionals: #SCDPatients should NOT be penalized for knowing the specific names & dosages of #opioids that will help alleviate our #painful #sicklecellcrises! We've lived w/this disease our ENTIRE lives! We KNOW!
With #Fall comes changing temps, leading 2 the possibility of #sicklecellcrises, affecting our #health in many ways. Let's discuss this, plus How was your week & much more! Join our #CommunityCheckIn 2morrow @ 1PM CST!🙋🏿♀️
#SickleCellMidwest
#SickleCellSupport
#CommunityCheckIn
Let’s usher in Fall by discussing weather changes and the affects on our bodies! Discuss this and more on the next Community Check In tomorrow at 1 PM. Email the Association for the login details. #SickleCellMidwest #CommunityCheckIn #StrongerTogether
YES! Water is vital in the prevention of #sicklecellcrises. From personal experience, a crisis while dehydrated, is one of the most excruciatingly painful crises you can have. It makes it that much harder to find your veins for an IV & it is more painful with every try. Drink Up!
Drink up....September is Sickle Cell Awareness Month.
@hersickledj
@SAMIupdate
@sicklecell_kel
@SCDAAorg
@DrSickleCell
@SCDadvocate
@SCDForum
@SCAFKenya
@CeaseAndSickle
@MOH_Kenya
@Novartis
@TheRealTBOZ @awareness_cell @Memej99 @SCDadvocate
@juliemakani
#Vasoocclusivecrises are a group of #acute complications that include #paincrises, #acutechestsyndrome or #acs, #stroke, and problems with the #spleen. 1/2
#SickleCellCrises
#SickleCellAwarenessMonth
Didn't get to Tweet this earlier, it's a screenshot from the #SCDWebinar with Dr. Jacob @seethal_jacobmd about avoiding #sicklecellcrises. She mentioned taking care of our bodies in the best ways possible aids in preventing #SCcrises too. I find that #stress is the worst culprit!
How do we as #SickleCellPatients receive the #optimalcare? What's the latest news in #GeneEditing therapies for #SCD? How can we avoid #sicklecellcrises? Join this DHH Program as Dr. Jacob, @seethal_jacobmd, discusses all of this, Thurs, Sept. 9th @ 11AM PT.
#SCD
#HealthEquity
Hey #SickleCellCommunity!Register for the upcoming @DHealthhub #SickleCell webinar! Join DHH & @seethal_jacobmd to ensure #optimalhealthcare for your #SCDPatients & Families! Discuss #COVID19 & it's impact on #Bloodtransfusions, #GeneEditing news & avoiding #sicklecellcrises.
Doctors are testing a new #experimental #GeneTherapy for #SickleCellDisease patients without other #treatment options. 19 yo Razel Colon underwent the treatment and no longer has #sicklecellcrises but is still a carrier of #sicklecell. Razel says, “Don’t give up, there’s #hope.”
My Life as a Sickle Cell Patient, Sickle Cell Anemia Crisis Experience &... https://t.co/Y157oAXA3n #SickleCell #sicklecellcrises #storytime
@Yiorgos_a Nothing cute or funny about the graphic when you're actual sufferers of #SickleCellDisease. The amount of pain that many of us endure, sometimes daily & during painful #vasoocclusive crises or #sicklecellcrises, is more excruciating than Any of us can describe. Learn about #SCD!
I've been taking care of my #SickleCellCrises @ home 4ever now, but in the midst of it, I always think, how the f am I gonna deal w/this!?🤭 I try & think about what 1 of my #WarriorFriends would say 2 me if he was still here, surely something funny!🤪🥰
#SickleCellLifeOfMemej
@HoneyFreckles_ @GhanaboyPharmd Some Med. professionals don't seem 2 understand or care, that #SickleCellCrises aren't just excruciating pain, but it does long term damage 2 our bodies, our organs, in addition 2 the pain. So by not treating or undertreating us is only going 2 prolong the crisis AND the damage
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