Top Tweets for #SpinalMusclarAtrophy
@merohittsaxena @SunielVShetty @AlamDlp @Kritika67693690 @Brahmdeo_ @doctorrichabjp @yogitabhayana @SonuSood @BeingSalmanKhan @PMOIndia @narendramodi @MoHFW_INDIA @BharatKumar1857 @boxervijender Dear Sir @SunielVShetty. Rqst yr support 2 Indian #SpinalMusclarAtrophy community. V r running against time, battling b/n life n death. Kindly reqst ur H'ble PM @narendramodi @PMOIndia n H'ble @drharshvardhan 2 intervene immediately 2 save lives of ur kids. #BattleAgainstSMA ๐.
@MoHFW_INDIA @PMOIndia @drharshvardhan @AshwiniKChoubey @PIB_India @mygovindia @COVIDNewsByMIB @CovidIndiaSeva Dear Sir @drharshvardhan @DrHVoffice, kindly make it available 4 ALL patients battling #SpinalMusclarAtrophy irrespective of age as they r extremely vulnerable. Simple flu turns 2 pneumonia in #SMA then how 2 protect patients frm #COVID19 as parents have 2 go out 2 work, earn.
@Venkateshnrk @mehtahansal @MoHFW_INDIA V don't c it in COWIN portal n so waiting, staying at home. Not just her, all Indian #SpinalMusclarAtrophy patients in @curesmaindia r waiting. Whereas #RespiratoryFailure is d reasons 4 #COVID19 as well as #SpinalMuscularAtrophy. Once on ventilator, very difficult 2 save๐ฅ.
#SpinalMusclarAtrophy: #GeneTherapy approved by #NHS @BBCNews
@FibroFlutters Mar 10 #chronicillnessVOICE #health #patients #medical #research #pharma related newsletter for everyone #notjustpatients
This week is #PMFPatientWeek @precisionforum
https://t.co/bwdETWvdHa
@curesmaindia @kutchinadotcom @NamitBajoria06 @SMA_mom #SpinalMusclarAtrophy community follow @curesmaindia
Request @GautamGambhir @drharshvardhan @anandmahindra @DrJoyeeta @ua_shirin
@KapilChopra72 @PMOIndia
@Tejasvi_Surya @IGeetaSharma
@SureshNakhuav @Karan_Gilhotra @GovindAgarwal_ @SonuSood
Donate,#RT ๐
https://t.co/NsYP9qA8AS
@curesmaindia @kutchinadotcom @NamitBajoria06 @SMA_mom Heartiest thanks to @kutchinadotcom @NamitBajoria06 for supporting our indian #SpinalMusclarAtrophy to get medicine to all our #Smawarriours
And i personally thank Moumita ma'am @SMA_mom
Many tks @kutchinadotcom @NamitBajoria06 4 yr support 2 Indian #SpinalMusclarAtrophy community, our #SMArtWarriors n our Andolan #BattleAgainstSMA 2 bring SMA treatmt 2 India n save lives of Indian kids n patients ๐. Tks 2 our Co-founder Director @SMA_mom 4 all d initiatives๐๐ช
@PandaVashist @anandmahindra @curesmaindia Thanks for sharing this story. All our #SpinalMusclarAtrophy kids and patients are waiting for the "FRUIT" .This ll happen by all #smamedicine @anandmahindra @curesmaindia
@Dr_subhro @asheel_mohammed @OffCMCVellore @vishnuvy @AiimsNeurology @av_archana @SMA_mom Thank you @Dr_subhro 4 being very supportive 2 CureSMAIndia n Indian #SpinalMusclarAtrophy community ๐. @wbdhfw @drharshvardhan @MoHFW_INDIA @NITIAayog @CDSCO_INDIA_INF #BattleAgainstSMA
V thank @profpiyushgupta, President @iapindia 4 his Key Note Address n support 2 Indian #SpinalMusclarAtrophy community n CureSMAIndia. Tks 4 helping us carry out dis massive awareness drive on International Rare Disease Day @EditorIndPed @drharshvardhan @MoHFW_INDIA @NITIAayog
V thank Dr. Vinod. K. Paul, Member @NITIAayog 4 d key note address in "All India SMA (SMArt) Update n new ray of hope in 2021" Prgm. Tks u Sir 4 encouraging words n assurance 2 support Indian #SpinalMusclarAtrophy comnity @MoHFW_INDIA @drharshvardhan @ICMRDELHI @CDSCO_INDIA_INF
We are committed to sharing the stories of those affected by #RareDisease like #SpinalMusclarAtrophy. Proud to highlight the incredible work of @CureSMACanada and the SMA community as sponsors in the @TorontoStar Canada's Rare Voices.
https://t.co/3QfzT45dZO
@GCC_MP @PMOIndia @nsitharaman @dp_satish @AsianetNewsSN @Vijaykarnataka @loksabhaspeaker @MVenkaiahNaidu @narendramodi @publictvnews @tv9kannada @anusharavi10 Sir, v reqst u 2 arrange dis medicine 4 ALL patients. Dis step only endorses dat India is okay wid such astronomical price tag. Pls discuss vid pharma n arrange 4 ALL. 2day v lost yet another baby in B'lore 2 #SpinalMusclarAtrophy. Dere r 2 more life saving drugs. Pls help all.
@narendramodi @PMOIndia @nsitharaman @FinMinIndia @DYChandrachud @RajivKumar1 @NITIAayog @Dev_Fadnavis v reqst u all 2 make dis as policy b4 v lose more kids. Already 1 baby succumbed 2 #SpinalMusclarAtrophy 2day morning in @aiims_newdelhi n 5 more r on ventilator across India.
@alpanaS16 @vinodkumarmenon @curesmaindia @Dev_Fadnavis @PMOIndia @narendramodi @Ankurku85309600 @Tahira3390 @MoHFW_INDIA @DevidasSathwane @mid_day @Dev_Fadnavis being a parliamentarian, v expect u 2 take up this issue at policy level 2 benefit ALL patient community. What happens 2 other ordinary parents who can't reach you? It's gud 2 help but it's just tip of an iceberg, dere r many #SpinalMuscularAtrophy patients waiting
@CuresWReach Can @CuresWReach support Indian #SpinalMusclarAtrophy kids battling dis life threatening draconian disease?. Clock is ticking 4 us as v r losing children rapidly. #SMA death rate is >Covid19. Lack of funds is d only reason 4 kids dying despite 3 life saving drugs on dis planet.
A small contrbn 22K to #PMCaresFunds frm CureSMAindia 4 #IndiaFightsCoronavirus in memory of #lostwarriors 2 #SpinalMusclarAtrophy. 1s #Covid19 situatn z contrlld, v reqst ur PM @narendramodi 2 help save lives n get life saving drug 2 India @ affordable prices #BattleAgainstSMA
@curesmaindia @narendramodi Children battling #SpinalMusclarAtrophy always practiced #SocialDistanacing 2 protect themselves. In #SMA even simple flu can easily turn into pneumonia n life threatening. We've been losing kids rapidly despite drug #spinraza available on dis planet @PMOIndia @MoHFW_INDIA
A small contrbn 2 #PMCaresFunds frm CureSMAindia 4 #IndiaFightsCoronavirus in memory of #lostwarriors 2 #SpinalMusclarAtrophy. Once #Covid19 situatn is controlld, v reqst ur PM @narendramodi 2 help save lives n get life saving drugs 2 India @ affordable prices #BattleAgainstSMA
@LouisianaGov I will miss her! Please consider fighting to have #spinalmusclaratrophy to Louisianaโs #NewbornScreening @rebekahgeemd wishing you the best of luck in your future endeavors!
@malini_aisola @curesmaindia @LSDSS @wwgnem @ORDIndia @ThePrintIndia @ChandnaHimani 15 lakh 1 time 4 poor patients? #SpinalMusclarAtrophy drugs cost 5 Cr 4 a maintenance drug #spinraza n 15 Cr 4 cure #ZolGenSMA. All middle class parents r bpl 4 dis amount. V r law abiding tax payers n citizens of India n struggling 2 get HM appt.
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