Archana Panda

Auditor and expert for Social Accountability, Environment and Safety and Quality management systems, Activist for children health care and education.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt gratitude to Padma Shri awardee Sudarsan Pattnaik Sir @sudarsansand for his support to @curesmaindia .Humbly request @PMOIndia to intervene & bring #SMAmedicines - #Risdiplam #Spinraza#Zolgensma to India.
#AtmaNirbharBharat #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Many thanks @PPHF_Asia. Let’s prioritise rare disease 2gether. Join us 4 d North Region Rare Diseases consultation, an initiative by Govt. of Chandigarh, Punjab & PPHF 2 b held on Jan 22, 2021 frm 10:00 to 1300hrs. @MoHFW_INDIA @PMOIndia #BattleAgainstSMA https://t.co/nb0ul6cCp8

[Alpana Sharma @alpanaS16]

We @curesmaindia r extremely grateful to @ThePksinha @SPJIMR @NovartisIndia for d exceptional learning opportunity through #Saksham The learning Continues empowering the patients, caregivers, health care professionals to make the best use of resources in these unprecedented times

[Alpana Sharma @alpanaS16]

We @curesmaindia hv been tryin to draw attention @CMOMaharashtra @uddhavthackeray @UNinIndia available treatment 4 SMA in west But lack of treatment access 2 Indian SMA patients #BattleAgainstSMA #everylifeisprecious #treatment4all #righttohealth #invokeConstitutionalRight

[Rajesh Rathod @RajeshR12347381]

@satisht24 @narendramodi @AmitShah @drharshvardhan @RahulGandhi @rashtrapatibhvn We are leading painful life plz save our kids @PMOIndia sir plz consider and bring miracle medicine in innocent kids life
@curesmaindia
#BattleAgainstSMA

[Filter Coffee @BenzTonyStephen]

@alpanaS16 @curesmaindia @PMOIndia @DrHVoffice @SonuSood @sachin_rt

[Rajesh Rathod @RajeshR12347381]

@alpanaS16 @curesmaindia @PMOIndia @DrHVoffice @PMOIndia plz help and save innocent kids
@curesmaindia
#BattleAgainstSMA

[Alpana Sharma @alpanaS16]

Thanks Amruta Durve for the insightful article on #Teera’s struggle. As parent it’s absolutely heartbreaking for us @curesmaindia to see our children slowly wasting away in front of our eyes despite a life saving treatment available but not accessible @PMOIndia @narendramodi

[Rajesh Rathod @RajeshR12347381]

@satisht24 @RNTata2000 @anandmahindra @PMOIndia sir plz show mercy on innocent kids.
Plz bring miracle medicine to India and save innocent kids.
@curesmaindia
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

CureSMAIndia wishes a happy republic day 2 ALL
#SpinalMuscularAtrophy #BattleAgainstSMA @MoHFW_INDIA @CDSCO_INDIA_INF @NITIAayog @ICMRDELHI @biogen @Roche @NovartisGene @ScholarRock @sgrhindia @aiims_newdelhi @aiims_jodhpur @SGPGI @hospadmnpgi

[Unmesh Deshpande @UnmeshDeshpand8]

@Anjana98385662 @alpanaS16 @curesmaindia @PMOIndia @DrHVoffice @JayantiRavi @NHMGujarat @CMOGuj @drharshvardhan @narendramodi @PMOIndia SMA children at @curesmaindia need access to life saving medicines in India at affordable prices. Could you imagine pain of parents losing their kids due to lack of access to the treatment. Help us please. #ZolgenSMA #spinraza #risdiplam

[Anjana @Anjana98385662]

@alpanaS16 @curesmaindia @PMOIndia @DrHVoffice @JayantiRavi @NHMGujarat @CMOGuj we need your support to bring medicines to India at an affordable cost.. We have children who doesn't have the liberty of time.. Help us please!
#Spinraza #Evrysdi #Risdiplam #Zolgensma #BattleAgainstSMA

[Alpana Sharma @alpanaS16]

Health is fundamental right but sadly in India it’s privilege 4 few #SMA Patient @curesmaindia r dyin due 2 lack of access 2 lifesaving treatment @PMOIndia make sma treatment #Risdiplam #zolgensma #Spinraza part of #AyushmanBharatYojna @DrHVoffice ⁦ https://t.co/THFLW4YhJ1

[satish @satisht24]

@KTRTRS Sir, Happy Republic Day from CureSma India,we r keeping a big hope on you,one day you will get the #SpinalMuscularAtrophy medicine #Risdiplam #ZolgenSma #Spinraza to SMA kids who r leading painful life & dying as medicine is getting delayed,pls show mercy & save #SMA kids

[Alpana Sharma @alpanaS16]

Health is fundamental right but sadly in India it’s privilege 4 few #SMA Patient @curesmaindia r dyin due 2 lack of access to lifesaving treatment @PMOIndia make sma treatment #Risdiplam #zolgensma #Spinraza part of
#AyushmanBharatYojna @DrHVoffice @drharshvardhan @narendramodi

[Archana Panda @av_archana]

@narendramodi @LinkedIn #AtmaNirbharBharat is much needed in #HealthForAll #EveryLifeIsPrecious #LeaveNoOneBehind. #SpinalMuscularAtrophy children r dying as they r deprived of life saving drugs becoz India is a poor country n our govt can't afford 2 save them🤦‍♀️ and v parents pay tax to govt 😭.

[Archana Panda @av_archana]

@USAndIndia @USAmbIndia @State_SCA @usaid_india @MoHFW_INDIA @USAndKolkata @USAndMumbai @USAndChennai @USAndHyderabad Had there been Health cooperation, so many Indian #SpinalMuscularAtrophy wouldn't die n be deprived of life saving drugs whereas its available in USA since 4yrs. Neither US nor Indian govt cares for children's innocent lives @curesmaindia @PMOIndia @narendramodi @drharshvardhan

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On this #Christmas Day, we wish the world to heal soon!With no medicine available yet in India, SMA families still live in the constant #fearforlife.
Our children wish for SMAmedicine -#Risdiplam, #Spinraza, #Zolgensma for which we need your financial help. Will you #BeOurSanta?

[Rustom Irani @TweetsbyRusty]

Vaccines and returning to normalcy isn't promising when I have to keep my muscles functioning or be bedridden and kids with my disease die before they say their first word. We finally have treatment options but affording it is tough. @curesmaindia needs you to spread the word.