Top Tweets for #SpoonieProblems
Self diagnosis. I don't need Google to tell me this. I have Doctoritis Burnoutarosis.
Ba ha ha ha.
Credit: Carrie, #MySeveralWorlds
#SpoonieProblems #AxSpA #PsA #CreakyTruth
#AnkylosingSpondylitis #fatigue #Fibromyalgia
I was gonna take a pic for monochrome Monday, but I ran out of spoons.
So maybe just imagine I posted something cute, ok?
#SpoonieProblems
You know it's bad when you are pouring through anatomy books trying to find any kind of clues for your leg pain. It turns out I honed in on the right areas and was right, but how desperate is it that?! Out. Of. Control. Pain.
#SpoonieProblems #RicketyBones #MySeveralWorlds
Had the longest/'best' night's sleep in YEARS last night. So why do I feel like a zombie this morning? Oh yeah #MEcfs... #pwME #SpoonieLife #SpoonieProblems
My biggest challenge is not to get ill when my mom has a health problem. She had cancer and now she is really better, but when she fell ill It was a hard time, and after her recovery, I was almost a month in the hospital. #spoonie
#spoonieproblems
How many of my chronic illness friends are primary caregivers for a parent or another disabled family member (spouse, child, aunt, grandparent) ?
What’s your biggest challenge?
Working on a teaching conference and would find your stories helpful.
Thanks for sharing.
The weirdest thing about having a partial recovery (I’m no longer bedridden) is the amount of clothes washing I now need to do. Previously I only wore pyjamas! #MECFS #PWME #LongCovid #SpoonieProblems
You know you're tired when No 39539...
You can't find your phone. This is because, you'd put it in the fridge.
#MEcfs #pwME #SpoonieLife #SpoonieProblems
This medication is $150 and I’m very glad it’s optional cause that’s too much this month. #spoonieproblems
@TsaiMeLemoni Usually I can tell cause they knock me out — and in retrospect my energy has been lower than it was a week ago. I just get lost tracking symptoms: it’s “Flight of the Bumblebee” playing on an endless loop up there 🐝 #spoonieproblems
I’ve just realised I’ve not been out of my flat in almost 5 weeks, I think that’s a record, I didn’t realise it had been that long until I looked at my diary 😕. The joys of chronic illness #chronicillness #ChronicPain #Spoonie #SpoonieProblems
Count yourself lucky that you’ve never had to do a mad dash to the bathroom with a big bag of piss that has a hole in it & is coming out very quickly! Also my mad dash is a slow dash because I can’t walk properly 😫 #spoonieproblems #chronicillness #CatheterLife
So, this how today went: I hurt my shoulder sitting at my computer writing. #spoonie #spoonieproblems
Next time someone is belittling your POTS diagnosis and why you’re so fatigued, please remind them “POTS patients use about three times more energy to stand than a healthy person”
@BDMed_Bear Oh, a pulse oximeter!
(I sure wish I wasn't quite so intimately familiar with medical devices... it wouldn't be so galling if I were a nurse or pharmacist instead of a perpetual patient! 🙄 #SpoonieProblems 🥄🤕♿💊😷❤️🩹)
@ShaneyWright @JanetDafoe @OpenMedF @exceedhergrasp1 … and I ended up figuring out that the pain seemed to be triggered by mcas issues & mcas eye drops helped . I haven’t had a chance to get back to the Drs 6 years later… 🤦♀️ It sucks being so sick that you can’t actually make it to see doctors …. 😔 #spoonieproblems
Just need space and a moment to scream that my mid to upper back is in sodding agony! It feels like someone is twisting all the nerves and it really, really hurts 😭 Fibromyalgia sucks. #ChronicPain #chronicillness #SpoonieProblems #SpoonieLife
Vivir sola y enferma no es problema. El problema es saber cuándo salir de casa para buscar ayuda. A veces uno no puede resolver todo solo aunque seamos muy fuertes. Ojo con eso, amig@s #spoonies
#SpoonieLife
#SpoonieProblems
I regret nothing, somehow my body isn't hating me from rocking out to at least 15 songs last night 😁
Instead, my ankle is hating me because I stepped on my shoe getting out of bed...😅 #Spoonieproblems
Ah, the chronic illness irony of signing up to watch a Zoom panel on disability and chronic illness issues & then missing it b/c the meds you took to prevent a serious allergic reaction made me sleep late. 🤦🏼♀️🙄 #SpoonieProblems #DisabilityTwitter
"If you yourself live with #celiacdisease, or know someone who does, you’re probably familiar with the sense of panic that creeps in when we fear there may not be “safe” food available": https://t.co/iuXAZDkNoS
#ChronicLife #SpoonieProblems #ChronicIllness #spoonie
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