Top Tweets for #StopBatten
Best netwerk! Aankomende week is het de nationale collecteweek voor Stichting Beat Batten! Hieronder vind je mijn digitale collectebus, en je weet alles is welkom! Dank voor je steun, op naar een behandeling 💪. #stopkinderdementie #stopbatten https://t.co/UnZVhcxS7p
So thankful to @ChildrensColo and @BostonChildrens for making Milasen so easy on us!!
#savingmila #stopbatten #milasmiracle
A big thank you to Dr. Lauren Black and Julia Vitarello (@stopbatten) for joining us during our most recent global #webcast. Learn more about Mila’s fight with #BattenDisease here: https://t.co/gZYTVW7NlJ #LIFEatCRL #LIVEwithJim #StopBatten
Wow! What an honor to have @NIHDirector Francis Collins
@NIH write such a personal and encouraging article on Mila's treatment and the impact it is already making across medicine, including in his own lab.
https://t.co/IcuieJuXm6
#savingmila #stopbatten #milasmiracle #milasen
My latest Podcast - for your next walk, bike ride or drive to work. Thank you @CRiverLabs for inviting me as the very first guest in the new studio to discuss a very first treatment!
https://t.co/YH2BN4RAIF
#savingmila #stopbatten #milasmiracle #milasen #personalmedicines
Today at 3:00pm ET Julia & Dr. Tim Yu will be presenting Mila's story at MIT & Harvard's Broad Institute in honor of Rare Disease Day. We hope you'll watch the livestream: https://t.co/xUCUzTCwvq
#savingmila #stopbatten #milasmiracle @broadinstitute @rarediseaseday @RareDayUS
Mila has had a rough last month with back-to-back colds which level her system. Despite not feeling herself, she keeps fighting. Even during a therapy session she finds a reason to smile.
#savingmila #stopbatten #milasmiracle #FridayFeeling
It was an honor to speak this past weekend at the annual 1500 person gala organized by @cureangelman - I was humbled by the impact Mila's story had on their community... and wasn't expecting to follow #colinfarrell on stage! #fastgala2018 #cureangelman #savingmila #stopbatten
Humbled to speak at the 10th Anniversary of the @MantonCenter for Orphan Diseases in Boston. Thanks for highlighting Mila's story & dedicating so much time & energy to Batten & other rare diseases over the past decade. #Manton #BCH #savingmila #stopbatten
https://t.co/YNFsBLG7Ou
Milasen Part II -
@BostonChildrens Hospital put together this short animation on how Mila’s drug - which was given the name “milasen” - works.
#savingmila #stopbatten #milasmiracle #milasen #bostonchildrens
Milasen Part I -
@BostonChildrens Hospital put together this short animation on how Mila’s drug - which was given the name “milasen” - works.
#savingmila #stopbatten #milasmiracle #milasen #bostonchildrens
@MilasMiracle Foundation is doing amazing work every day. Let's help them #StopBatten and other rare diseases. Let's help Mila.
These spring flavors are giving us alllll the feelzzzzz. @freshthymesest #pairingsforapurpose #milasmiraclefoundation #stopbatten
Fab event this Fri 5/5 @UnionMarketDC for @MilasMiracle #stopbatten @TaKorean @Ghibellinadc @MasseriaDC & more! https://t.co/nvsXWMXE7N
Robin Hickenlooper, Gov's wife, co-chairing #StopBatten event @ Gov's mansion to raise $$ for deadly disease: https://t.co/pwY57Bgu8Z #KDVR
Today is #RareDiseaseDay. Help us spread awareness of Batten Disease—pls share our story!
➵ https://t.co/kMbNUJFSIf
#stopbatten
Another child diagnosed. Batten disease needs a cure #battendisease #teambrianna #stopbatten #curebatten
https://t.co/jtLzIsmr4j
PLEASE RT
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