Top Tweets for #UpdateYourKnowledge
@RobWust talking about things any health professional should know before considering activity/exercise for some with #ME and/or #LongCovid
#UpdateYourKnowledge
#DoNoHarm
.@RobWust talks about the ventilatory threshold, #PEM & lactic acid due to over-exertion in #MEcfs and #LongCovid.
๐Watch this & other videos in this series here:
https://t.co/ojONq1sRn3 (with subtitles)
Doing something a bit different this Tuesday evening! #UpdateYourKnowledge
Tomorrow evening we'll be leading a session on "what is ME, and pacing" for the Royal College of Physicians of Edinburgh as part of an evening learning event about ME and Long COVID
#rcpeMECFSLC
https://t.co/QBBDYNeYkm
@karenphysiocouk @ClagueNjc36 @Hilliard_Nat As part of my PhD learning I was told:
Consider the ALL the evidence, even if it contradicts what you have always thought/what has gone before.
Wise words which have served me well since hearing them
#DoNoHarm ##UpdateYourKnowledge
2/2
BBC Spotlight News, focussed on the lack of care, resulting in the death of Maeve Boothby-O'Neill, aged 27.
https://t.co/Fe3Y2LbStj
4th talk about #ME and #Longcovid. Over 150 #physio students @LivUniPhysio now taught. Very proud of them. Happy to give this talk to any #physio course. @thecsp @thecspstudents. Plans to expand to the rest of the @LivUniHealthSci. #updateyourknowledge @PhysiosForME
Thank you @cstroeckw and @weandmecfs for your generosity. #physios worldwide @thecsp @WorldPhysio1951 @apaphysio @PhysioCan @PhysioNZ @APTAtweets please take up this offer of a free book about #ME and physiotherapy management #donoharm #updateyourknowledge
Thanks to the generosity of @cstroeckw & @weandmecfs , we have 20 of our books to give away!
๐๐ฑ๐ฅณ
We are asking for nominations of a physiotherapy clinic or service (worldwide) to receive a free copy
See here for more details: https://t.co/HVpgLpdHwT
Physios please listen to Todd and do better.
You might also want to think about informed consent and scope of practice! See @PhysiosForME and/orr @LongCOVIDPhysio for more info on working with people with #MECFS and/or #LongCovid #UpdateYourKnowledge #DoNoHarm
Nope. This ainโt it.
Physios, please, dear God, be better.
@aftab_usa People with #MECFS actually have an abnormal physiological response to exercise so this is factually incorrect. To learn more please visit our @PhysiosForME website
https://t.co/vNH9HigcIP for some helpful #CPD & #UpdateYourKnowledge please. Similar responses seen in #LongCovid
Hard to understand the brutality of severe #MECFS if you haven't seen it. We have so much more still to learn - it is very real & we need to do better for this group of people living with #SevereME #SevereMEDay
This thread is a good place to start to #UpdateYourKnowledge
New Video: Very Severe #MECFS is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.
#physios and #hcps on #SevereMEDay please remember that a lot of #pwme say they became severe after doing too much physical activity/exercise. Please learn about #PEM. Please #updateyourknowledge @thecspstudents @thecsp @WPhysioFuture
Today is #SevereMEDay
We encourage any physio (or other #AHP ) to take a moment to learn about severe ME
Our new book has an entire chapter dedicated to severe ME and we have further info on our website
https://t.co/iBqIVWReqt
@thecspstudents @thecsp
It's all getting very real now!!! #UpdateYourKnowledge
In THREE WEEKS our book โA Physiotherapistโs Guide to Understanding and Managing ME/CFSโ will be released!! ๐ฅณ
Publication date is Monday 21 August, but you can pre-order a copy on the link below
https://t.co/8qfm7B8L64
Rehab professionals this is not OK. Please educate yourselves before you do harm. See @PhysiosForME @LongCOVIDPhysio for more information on screening for #PEM #PESE before considering exercise #UpdateYourKnowledge #DoNoHarm
@ahandvanish My son went to rehab to improve his "deconditioning" due to his post-COVID POTS. Before he could go to school. After six weeks of graded exercise therapy, he's now housebound, semi-nocturnal, and needs a wheelchair to go to the doctor. He's 13.
No mention of the ever growing evidence base about abnormal physiological response to exercise in this group of people in either the @guardian article or the original paper. If you would like to find out more then pls visit https://t.co/vNH9HigcIP #DoNoHarm #UpdateYourKnowledge
Chronic fatigue guidance discouraging exercise is flawed, say researchers https://t.co/Ds8qAOH262
Might I politely suggest @BBCMorningLive that you find a health professional who is an expert in rehabilitation for post viral illness like #LongCovid #MECFS ?
Iโll give you a clue, it doesnโt look like this. #UpdateYourKnowledge #DoNoHarm
Nearly 2 million people in the UK are suffering from #LongCovid. Dr @xandvt explains why diet, exercise, and keeping a routine can help manage the condition.
Happy with this! Physios need to get up to speed with the latest evidence #UpdateYourKnowledge
Pleased that we have had all three of our abstracts accepted at the Chartered Society of Physiotherapy conference in November. Time to spread the word about #ME #itisnotanxiety #donotuseGET @PhysiosForME thanks to all participants with #me @MEAssociation @sarahftyson @helendawes2
Seen too many tweets today about people with #LongCovid getting really poor advice from health professionals. Time to do better. No excuses to not know- Educate yourself in post viral illness @PhysiosForME @LongCOVIDPhysio good places to start #UpdateYourKnowledge #DoNoHarm
@1goodtern Hopefully you can zoom in to my daughter's piece 'Rona Lisa' from her recent exhibition #IAmStillHere with @LongCovidKids.
These are all things she and her peers have had said to them by doctors, family, friends, classmates...
..which supports their theory. Techniques such as pacing and energy management can help with symptom control but we need to find out more to treat the causes of post viral conditions #UpdateYourKnowledge #DoNoHarm 5/5
There is significant evidence that there is an abnormal physiological response to exercise in people with #ME and including #GET could do lasting harm. Have a look here to #UpdateYourKnowledge learn about pacing instead https://t.co/vNH9HigcIP 2/2
Pacing is seriously hard work. We need to acknowledge this and not tell people they haven't been doing it right if they're not better.
Unbelievably I have actually heard this from others.
#UpdateYourKnowledge
How can pacing be โdoing nothing?โ
Pacing involves such hard work! Planning. Preparing. Missing out. Isolation. Boredom.
Change your mind about this.
Pacing is work.
Pacing is โdoing not-doing.โ
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