Natalie Hilliard

Neurological and Musculoskeletal Physiotherapist, Special interest in ME/CFS and more recently, long-covid. Co-Founder of 'PhysiosForME'. 🏳️‍🌈

[Natalie Hilliard @Hilliard_Nat]

Those struggling with long-covid symptoms need help and support. I am offering zoom consultations, please see the covid page on my website for more details https://t.co/m0jQAUNXeh

[Dr Nicola Clague-Baker @ClagueNjc36]

Now formally published

Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study https://t.co/J2bkR4dvxJ

[Dr Nicola Clague-Baker @ClagueNjc36]

https://t.co/J2bkR4dvxJ
So pleased this is finally published. Thanks to all the #pwme who took part. Thank you also to @MEAssociation for funding, @LivUniHealthSci for your support and @sarahftyson @helendawes2 we couldn't have done it without you @PhysiosForME

[Physios For ME @PhysiosForME]

We are thrilled to announce we have had another paper accepted for publication!

"Home-based testing protocol to measure physiological responses to everyday activities in ME: A feasibility study" will be published very soon as open access 🎉

[Bateman Horne Center @BatemanHorne]

#MEdMatters #ResearchMatters #SevereME #verysevereME #MECFS

[Adam @ABrokenBattery]

New Video: Very Severe #MECFS is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

[Lucinda Bateman @LBatemanMD]

Today, on August 8th, we recognize and honor the suffering of people with Severe ME (myalgic encephalomyelitis). We also vow to raise awareness of this most debilitating presentation of ME/CFS. It is only through heightened awareness that progress will be made. 1/3

[Lucinda Bateman @LBatemanMD]

To the caregivers of those with severe and very severe ME: be strong and know you are not alone. We need to seek change that makes supportive care more readily available. Even more important, we must fight for scientific progress regarding diagnosis and treatment. 3/3

[Lucinda Bateman @LBatemanMD]

Tragically, the more severe the ME, the more the invisible the afflicted person becomes, especially to the medical community. This must change.
To those with severe and very severe ME: your life matters. Please don’t give up hope. 2/3

[#MEAction Network @MEActNet]

Today we honor and recognize #SevereMEDay. Severe ME Day is a day of remembrance when we think of those we have lost to myalgic encephalomyelitis (ME) and focus on those living with severe ME. For all those who have severe ME, we love you and we are fighting with you. #pwME

[Dr Michelle Bull 💙 @MichelleBull4]

Hard to understand the brutality of severe #MECFS if you haven't seen it. We have so much more still to learn - it is very real & we need to do better for this group of people living with #SevereME #SevereMEDay
This thread is a good place to start to #UpdateYourKnowledge

[Dr Nicola Clague-Baker @ClagueNjc36]

#physios and #hcps on #SevereMEDay please remember that a lot of #pwme say they became severe after doing too much physical activity/exercise. Please learn about #PEM. Please #updateyourknowledge @thecspstudents @thecsp @WPhysioFuture

[KarenLesliePhysio @karenphysiocouk]

As a neurological physio I've seen very complex brain injury and very profound disability

But nothing has shocked me more than the level of suffering of people with severe ME - not least because of the lack of support or even abuse from medical professionals

#SevereMEDay

[Physios For ME @PhysiosForME]

Today is #SevereMEDay

We encourage any physio (or other #AHP ) to take a moment to learn about severe ME

Our new book has an entire chapter dedicated to severe ME and we have further info on our website

https://t.co/iBqIVWReqt

@thecspstudents @thecsp

[Physios For ME @PhysiosForME]

In THREE WEEKS our book “A Physiotherapist’s Guide to Understanding and Managing ME/CFS” will be released!! 🥳

Publication date is Monday 21 August, but you can pre-order a copy on the link below

https://t.co/8qfm7B8L64

[Dr Michelle Bull 💙 @MichelleBull4]

Might I politely suggest @BBCMorningLive that you find a health professional who is an expert in rehabilitation for post viral illness like #LongCovid #MECFS ?
I’ll give you a clue, it doesn’t look like this. #UpdateYourKnowledge #DoNoHarm

[Natalie Hilliard @Hilliard_Nat]

@ClagueNjc36 Dr Amolak Bansal prescribes as far as I'm aware. He is at Spire Bushey Hospital, he does video and telephone consultations

[Natalie Hilliard @Hilliard_Nat]

Remove Bishops From The House Of Lords - Sign the Petition! https://t.co/JmyDfZGfVD via @UKChange

[Dr Nicola Clague-Baker @ClagueNjc36]

Hi all here is a link to a googledoc with a draft for a reply to the lancet article - please review, add, change. We have 3/4 weeks. 400 words - https://t.co/t4pMltc7bv
@keithgeraghty @davidtuller1 @LongCOVIDPhysio @dysclinic @SimonDecary @JanetDafoe @sarahftyson @PhysiosForME

[Dr Nicola Clague-Baker @ClagueNjc36]

HR monitoring study
We are pleased to say after less than 2 weeks of recruiting we only need 3 more #pwme for our study. We do need more people with #longcovid to sign up though. See info sheet here:
https://t.co/rl3qP99pdG
Thanks @PhysiosForME

[Dr Michelle Bull 💙 @MichelleBull4]

People living with #LongCovid 👀
we are looking for people to participate in our @PhysiosForME heart rate monitoring study