Top Tweets for #castlemans
Time for another #blooducation podcast release and this time Helen’s talking to @SatyenGohil all about #castlemans. Available on all major platforms from tomorrow 👌

Paraneoplastic pemphigus and #castlemans disease . Today's late night reading Immunology reading . Such a rare entity, sometimes even harder to prove and treat

@CateConnors @jenbrea Keep an eye on lymph/glymph and MCAS symptoms, supplement for vascular health. Don’t be surprised if hypnic jerks, tremors interrupt sleep. Vibration therapy, compression boots, headache hats. #castlemans
@__ice9 endothelial g/lymph damage is no joke #castlemans #mcas mild #TransientGlobalAmnesia -like symptoms #tinnitus #insomnia Indomethacin & Seroquil ftw
@DrDonnica @BoggildLab @alvie_barr @OpenAcademics @ZhealaQayyum @HalletJulie @DrKhan_do @NawazFaisal_ai @CBLevineMS @unL1Meded @wordfinga @KTamirisaMD @hvanspall @CardiacPA1 @fitmslax @DrJenniferCo_Vu @rajdoc2005 @drmaggarwal @DrMarthaGulati @amydjohn @karenerrichetti @DrHowardLiu @YaneValdezT @DrvanTilburg @AnkurKalraMD @MeadowGood @drjenniferhunt @AEscalanteMD @DrDaniJackson @SarahNadeemMD @DrRGebhard @usnehal @fr_hossain @DrKristieLeong @DrJRMarcelin @AminaBenyoucef5 @afedwardMD @JinaSinskeyMD @AgnesSolberg @arghavan_salles @imswimming3 @aoglasser @ShikhaJainMD @AnastasiaSMihai ❤️ @TheRealDoctorT #storytellingbest @DavidFajgenbaum #ChasingTheCure #COVID19 #Castlemans @RanaAwdish #BrilliantPhysicianWriter @SabinehazanMD #PhysicianScientist @LeahHoustonMD #PhysicianFuturist #OurTrojanHorse @HPECid
A dynamite set of new reviews from @BloodJournal covers #LCH, #HLH, #Erdheimchester, #castlemans, etc. https://t.co/Bx2achiG2q
@HistiocyteSoc
@Histiocytosis
The amazing @DavidFajgenbaum - who turned his fear into action and found a treatment for his own rare disease (#castlemans) - has now - with his incredibly army of volunteers. catalogued all drugs being #repurposed against #COVID19. #leadership #cures #hope
Our goal: identify all drugs being #repurposed against #COVID19 and detect signals of activity! We rallied a team of 30 💪volunteers to review 2500+ papers in 11 days & extract data on 100+ drugs already tried for COVID19 in the first 5,000+ patients... https://t.co/SBW80I1ciw

Physician/patient researcher, @DavidFajgenbaum diagnosed with multicentric #Castlemans disease, #raredisease tells his story in his book #ChasingMyCure {9/10/19}
"Chasing My Cure: A Doctor's Race to Turn Hope Into Action"
https://t.co/q2LPxkyXuB
The 2017 @nytimes piece below.
The Doctor, His Elusive Disease & His Successful Quest. https://t.co/ePLPTTMpKG
#raredisease #patientactivism
PLEASE SHARE ME ON BEHALF OF EVERYONE WHO SUFFERS FROM PAIN. #pain #ChronicPain #castlemans @CureCastleman @CastlemanDisea https://t.co/310oV1D1iv
When Dr. @DavidFajgenbaum was diagnosed with a rare disease called #Castlemans, he spearheaded the search for a cure���and became a champion for a new approach to medical research. You can read about his journey in his new book, coming out Sept. 10th: https://t.co/UJwjKI8mka

Absolutely riveting and inspiring talk by @DavidFajgenbaum at #Vasculitis2019 on his personal journey with #castlemans nd his dedication to study @RareDiseases - what a story/man- Bravo!

How to Face Hodgkin and Castleman While Staying Strong https://t.co/8IQ09FQNTl #castlemans #cancersucks #raredisease
Editor's Choice: The Quest for a Cure https://t.co/HekA6woVqg #acromegaly #behcets #addisonsdisease #addisons #castlemans #raredisease
Hanging Spoons. A Family Tradition. #castlemans @courtenay81 cmm1006 eleanormartin9 https://t.co/D8g6u4LYZi
Backstage @ #castlemans sippin & smokin... #Blessed🍷🙌🏽🎤@realyoungfree @Boo_Fritta https://t.co/LbsjPTRAXw
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