Top Tweets for #decodeMe
Even in 2026 with the existence of #longcovid there is still the belief that post-infectious illnesses including #MECFS are psychosomatic, despite scientific evidence of physical neuroimmune damage. Re the recent UK #DecodeME study: "One cannot believe one’s way into a genome."
ME support groups have written an open letter to @rcpsych challenging its defence of last month's Congress session on ME and Long Covid. A general "biopsychosocial" framework cannot rescue specific treatments the evidence has already rejected.
“Final #DecodeME analysis has been stalled since 22 April when UK Biobank removed access to its compute for all users.Yesterday,they wrote again but w/o a timetable for re-opening, just saying this timetable would be available in June. We’ll complete our analyses asap thereafter”
No effective Tx means there is no evidence either for ‘biological Tx’ and patients advised not to make exaggerated claims for that. Nor for evidence of biomedical factors in illness. IMO, there is none.
Except for #DecodeME, which in my view is total game-changer.
Looking for 9000 Brits with long Covid to donate DNA
Please consider donating. My DNA was already used for DecodeME
#longcovid #mecfs #decodeme
https://t.co/RsSER7Nz77
The world's first genomic study into ME, or Myalgic Encephalomyelitis, has been announced.
Researchers are hoping that by building a genetic map of the illness, it will help pave the way for a future diagnostic test and even treatments.
But charities have warned that there is more to do and this must only be the start.
@hopefullizzy Thank you for sharing.
I am only in year 7 of #LongCovid and I need hope too
Here is some from Prof Chris Ponting
who just got UK funding to do round 2 of #MECFS #DeCodeME research into genetic component of MECFS
Great news. Thanks to Chris Ponting and the #DecodeME team and the government for the funding. With the hope of more funding to come.
(£) https://t.co/Icgi8UubkX
#MEcfs #LongCovid
@ABrokenBattery @amolrajan Amol, please get someone more knowledgeable on this subject on your podcast
eg Professor Chris Ponting who leads the #DecodeME project
Cort explores £20m #SequenceME & Long COVID study's plan 2 study whole genome of 18,000 ME/CFS & long-COVID patients. He explains what Dr Ponting aims 2 do, why & how it adds 2 other research like #DecodeME. They've employed a fundraiser to raise first £6m
https://t.co/mOdloICtf0
@DrAnnieHickox @sanilrege There is absolutely no evidence of any of this. It's like claiming homeopathy works because someone says it does.
Have you read the NICE guidelines and the detailed look at studies? Are you aware of #DecodeME?
Why are you ignoring the science?
No, #MEcfs is not just fatigue.
No, our symptoms are not deconditioning.
Yes, we really do want to get better.
Yes, NICE found no evidence that any treatment is effective.
Yes, #DecodeME found biological differences.
Yes, we really do want to get better. Honestly.
#LongCovid
Listening to this and it's brilliant
https://t.co/4FbQVSrLbq
(And also marvelling how Holgate is a totally different man from the first years of the collaborative and is really very good.)
#MEcfs #LongCovid #DecodeME
Listening to this and it's brilliant
https://t.co/4FbQVSrLbq
(And also marvelling how Holgate is a totally different man from the first years of the collaborative and is really very good.)
#MEcfs #LongCovid #DecodeME
Dr Jarred Younger discusses a study using #DecodeME data to look at genetic disease signatures in ME/CFS. He concludes that altered genes alone don't cause ME, there are at least 4 subgroups & there will never be 1 single cure for ME. [16 mins] +Transcript
https://t.co/OnYJT9hCdY
Solve ME asks Prof Chris Ponting from the #DecodeME project "What has changed in ME/CFS research over the last year?" and if he is hopeful about ME research. [8 mins] View on YouTube for Transcript.
https://t.co/Fl0qfzHHOB
Precision Life Press Release: Groundbreaking myalgic encephalomyelitis study identifies over 250 core genes, shared biology with long COVID, and dozens of drug repurposing opportunities
Read more: https://t.co/JWIwNbeERE
#MECFS #MyalgicEncephalomyelitis #DecodeME #Research #LongCovid
YOU GOT MY CODE..........."Decode Me" #citizenXai #DecodeMe #Please
Listen NOW on #Spotify #AppleMusic #AmazonMusic #YouTubeMusic #SoundCloud
SoundCloud | https://t.co/ccwW3t44Fp
@LauraCayuela7 Inmunitarios, teniendo XUECs de autoinmunes, varios CSURs, el VHIR, etc. Y que aún estén con SSC y permeabilidad intestinal, viendo los avances del #DecodeME etc.... Ayyy...
Ck out this new blog from @mecfsskeptic -- the 2nd installment on the #DecodeME results, this one focused on genes associated with #MECFS:
https://t.co/o73UGf84Mo
#MEAwareness #MEAwarenessHour
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